View allAll Photos Tagged multiplesclerosis
For the folks who know me this will be more dramatic. Before HSCT I lost 30 lbs in one year. Most, was muscle mass. I’ve done the P90X 7 times and enjoyed 20 mile bike rides. I was not slim, a big guy actually. I saw a picture of myself just before I left for Puebla. And I was saddened by it. I’m only recently starting to gain some weight back.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Everything ready today for our Cake Break Event later.... bunting, raffle prizes and electric ballooon pump on standby for these...
It really is the small things. In another “F**K YOU” to MS, yesterday I wanted some chips that were in a high shelf. I had to get on my toes to reach the bag… only then did I realize what had happened.
Consciously, while holding on to the counter for support, I stood on my tiptoes and looked up. I had not been able to do that for years! I began to cry/laugh like a lunatic!
I was told that my recovery from HSCT would be slow and surprising.
I guess so :-D
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Volume Rendering of an MRI scan of the brain.
Disseminated sclerosis.
Stereoscopic view.
Rendering done with a Carestream workstation.
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
It took 10 years to be diagnosed and during that time I had countless weakness episodes. Because I have the Relapse Remitting type of MS it would come and go all the time. My right leg was the most affected one and it still is. If I force it too much with walks, standing for too long or exercising too much I feel It hitting me again. I can't run. I can't jump. But I can walk and that's what matters.
Along those years before the diagnosis I remember dragging myself to go to places. One day, struggling to climb the stairs at work, I noticed some people looking at me as if somehow I was making all that up. Many people thought I was creating that or that there was some psychological problem. Many of my family members thought this.
This picture expresses exactly how I was feeling during the strongest relapse of all. The one that led me to the doctor who diagnosed and treated me for years until I moved to the US. My whole body was losing the strength. Every step was an unimaginable struggle. It was like I was wrapped in some kind of power that weakened my strength everyday a little bit more. By that time my mother took me everywhere looking for answers. I couldn't walk by myself. I was at my worst. I was at the limit by then, but a thought always crossed my mind—nothing lasts forever. This too shall pass. I felt the truth was close to me. It felt frightening and liberating at the same time.
I think this is the worst selfie ever I've done in my life with me looking so miserable and holding a scribbled banner instead of a neat one, also the awful background - but having been involved all week in the MS Society's #treatmeright Awareness Campaign I felt compelled to do it. You can read more about it here...
www.treatmerightms.org.uk/about/
I'd already taken my Photo a Day before going out this morning but I'm submitting this as today's Photo a Day..... *cringe ..........
My intended one in comments.
I got 4 rounds of chemo. 2 at the start to stimulate the stem cell production from my bone marrow and 2 after the PICC line was installed to ablate my old immune system. The first round was the toughest because chemo is so foreign to the body. It was very important to drink tons of water in order to flush your system of the chemo.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Got this tattoo on 4/11/12 on my right wrist, it reads "no fear"... goes with my left wrist tattoo which reads "m.s. warrior" Written in my own lousy handwriting :)
Carrie Marriott, Amy Knight, Ann Romney, Norah O'Donnell. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Photograph by me, quote taken from spinlights.
Between my chronic pancreatitis and multiple sclerosis. This is something I must remind myself on a continual basis.
Today is National MS Awareness Day. I took several photos for the occasion, then decided on this one, as it represents a milestone for Janice, who has dealt with symptoms of multiple sclerosis since 1985. This oral treatment, called Tecfidera, replaces the injections she has taken for years, either on a weekly basis or daily. What a welcome change!
I'm posting this shot of my wife, Janice, with the intention of submitting it to the group, "Positivity, Honesty, and Happiness in Chronic Illness and Disability." Despite having multiple sclerosis, which comes with slow walking and lessened coordination, she walks the zoos with me, even in brutally cold temperatures. Regardless of her physical struggle, she has a blast.
Sometimes, we're among the few people crazy enough to be there!
That's a quick testimony on the first day of the New Year. People can overcome challenges!
As many of you know that I, Ann-Marie Simpson was diagnosed with Multiple Sclerosis(MS) in 2017, an unforgettable day. I didn't see it coming so I was shocked, devastated, livid, kept asking myself why me, etc....
It took months and months for me to accept this horrific diagnosed. With the help of my family, my friends and coworkers, I started to figure out how to get back to feeling like myself. Also with their help, I’ve been learning how to live with this disease and how to thrive despite of it.
With the help of friends and family, we created two Walk MS teams (AnnMSimpson Is Stronger Than MS), one in CT and the other one in NC. I'm going to be walking in the Walk MS: Fairfield 2020 on May 2, 2020 and, I’ll be walking in the Walk MS: Greenville 2020 on April 25, 2020.
We would absolutely love for you to join one of our teams. If you are not able to join, please consider donating to our team. Absolutely all donations go directly to the National MS Society.
Team Page Link: main.nationalmssociety.org/goto/ANNMSIMPSONISSTRONGERTHANMS
Personal Page Link: main.nationalmssociety.org/goto/AnnMSimpson
For the past three years, it has been my mission to help bring awareness and to raise money to help the National MS Society provide award winning programs, services for those affected by MS and to help move closer in finding a cure so we can have a world free of MS.
Thank you so very much! Together we are making a difference! Your continuing support is deeply gratifying to us.
Love,
AnnMSimpson Is Stronger Than MS!
Team Link: main.nationalmssociety.org/goto/ANNMSIMPSONISSTRONGERTHANMS
Personal Link: main.nationalmssociety.org/goto/AnnMSimpson
An odd thing happened yesterday. As my wife and I were going home from a doctor’s appointment, I suddenly felt better. The sensation hit so suddenly that it really threw me. I immediately did a physical accounting of myself and could not pinpoint what was better. The closest thing I can compare it to is a bulb that’s been burned out for years and it suddenly came on without explanation.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
The pain from the surgery ebbed and flowed, but she kept smiling today, knowing what she had gained.
These two beautiful women, Marinela and Nila (both have Multiple Sclerosis) were so proud to have their pictures taken at the Fairview MS Achievement Center.
Volume Rendering of an MRI scan of the brain.
Disseminated sclerosis.
Stereoscopic view.
Rendering done with a Carestream workstation.
I let my students/grads know this week, these plans have been in the works for months now. This will be my last year as a full time instructor due to my health’s rapid decline. I'll be switching to part time and fade into the shadows.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
This is a pseudo-colored image of high-resolution gradient-echo MRI scan of a fixed cerebral hemisphere from a person with multiple sclerosis.
Credit: Govind Bhagavatheeshwaran, Daniel Reich, National Institute of Neurological Disorders and Stroke, National Institutes of Health
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
The day before I left for home, after the neutropenic stage, I went to the roof garden, while my apartment was being cleaned, and got some quiet reflection time.
It was a sunny day and “Popo” (short for Popocatépetl, the volcano) was active.
I’ll never regret taking this journey. Ever. Not even after 4 of my flights were cancelled or even contracting COVID. All is complete now and I’ll fly home tomorrow.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Anna Trone, Jean-Marie Fernandez, Maureen Curley. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Presentation of one of the cheques to the participating charities. A total of £832 was raised for Diabetes and Multiple Sclerosis charities.
Musician Lara Ewen (www.unstrungmusic.com) injects a 2-inch needle into her leg muscle once a week to treat her multiple sclerosis.
Tonight I was very proud of my OH as she walked the fire for MS. Thanks to all friends who took the time to come and support her and to all who have provided sponsorship. Your support and help has been more than appreciated. Diolch.
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
At the second Dartford MS Funday in 2003, the Red Wheelie scooter display team put on a routine based on St George and the Dragon. The dragon was pursued around the arena until caught and its tail removed.
Recently heard that the Red Wheelies have been revived in Canterbury to support the MS Therapy Centre there - watch Kent TV footage
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
David and Carrie Marriott, Jill Hodges, Kellie Romer, Kevin Chugg. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell, Carrie Marriott. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Every day my caregiver, Jair (we called him J) kept me on a rigorous schedule for my meds. This photo does not include the daily injections (sometimes 2x a day) also administered by the nurses.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Day one hundred sixty-nine/365. You may hear people who have MS, or who live with them, refer to the A-B-C drugs.
My wife had been on Avonex, the "A drug," which involved a weekly injection deep into a muscle. Guessing that Avonex was lowering her white blood count, her neurologist switched her to the "C drug," Copaxone. That's a more shallow injection, done daily.
The notebook in the picture helps her to keep her shots organized. It includes a map of injection sites on her body; she needs to rotate them. Often, when a site is difficult for her to reach, or when she just doesn't have the gumption to give herself a shot, she'll ask me to handle the injection.