View allAll Photos Tagged multiplesclerosis
For years, I've been giving my wife an injection each evening.
With multiple sclerosis, the body's immune system attacks the myelin coating on the nerves. Copaxone serves as a decoy, attracting the body's defense system away from what it shouldn't be attacking in the first place.
All this time, I've been using a plastic, spring-loaded "auto injector" to administer her medication. Years of this practice has caused some trouble with her skin.
So, today a home health nurse came to the house and taught me to inject with only the syringe. I practiced on a device that simulates the resistance of human skin.
I have yet to sink a needle into another human being, manually. But, I am soon to be initiated! The nurse says it'll actually be less painful for Janice than the auto-injector's spring-forced assault.
And quieter.
MS Awareness Week runs from 21st - 27th May.
Multiple Sclerosis effects around 70,000 in the UK. It is a disease which is more common in woman.
It affects the ability of nerve cells in the brain and spinal cord to communicate with each other, electrical signals are sent by the nerve cells down long fibres called axons which are wrapped in a substance called myelin. In MS, the body attacks and damages the myelin, when myelin is lost, the axons can no longer effectively conduct signals which explains alot of the symptoms within MS.
The most common and early symptoms of MS include tingling, numbness, loss of balance, weakness in one or more limbs, blurred or double vision. As the disease progresses other symptoms will become aparent, these can include muscle spasms, fatigue, heat sensitive, impaired thinking, mobilitly and problems with speech and swallowing.
There are 6 stages of MS these are •Benign Multiple Sclerosis
•Relapsing Remitting Multiple Sclerosis (RRMS)
•Secondary Progressive Multiple Sclerosis (SPMS)
•Primary Progressive Multiple Sclerosis (PPMS)
•Malignant Multiple Sclerosis (Marburg Variant)
•(Chronic Progressive Multiple Sclerosis)
Relapsing Remitting Multiple Sclerosis
is the most common form of MS. During this form of the disease, patients tend to experience an attack or series of attacks followed by complete or partial remission.
There is no known cure for MS, however research is on going, there have been break throughs in medication in the last few years which have helped ease some of the symptoms that people suffer from.
My mum has MS, she was diagnosed in 2003 after suffering from an awful MS attack, it was so bad she couldnt talk or barely move, she thought she was having a stroke it wasnt until she was admitted into hospital that she was diagnosed. As time has gone on the dicease has progressed as has her symptoms. She truley is an amazing woman, she fights the dicease everyday and everyday I look at her in awe. I am very proud to call her my mother.
*Please do not use any of my pictures in websites or blogs without permission.
Every day, we had our apartments cleaned, and the patients were invited to the garden roof to wait for the cleaning to finish, to get some sun, and participate in activities. Several times an artist, Monik, treated some of the patients to painting techniques. Even if they have not painted before ^_^
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
As the search for a cure and eventually to Kiss Goodbye to Multiple Sclerosis continues, my wish is for continued research into the role of Vitamin D in the onset and treatment of MS. To date, studies into Vitamin D are largely dismissed by the medical community and drug companies based on the lack of rigorous scientific protocols used in the studies, yet the anecdotal evidence of Vitamin D supplements from those inflicted with the disease grows.
As a side note ... if there is a link between Vitamin D and MS, it worries me that we have a generation of children and young adults that are not getting enough Vitamin D naturally from the sun in their formative years. If there is a link between Diet and MS, it worries me that we are raising a generation of children and young adults on highly processed foods with high concentrations of saturated fat. If there is a link between Chronic Stress and MS, it worries me that the next generation of children and young adults are living in a world of unprecedented stress without the resources and resilience to deal with this stress in helpful ways.
By sharing a photo to my Pledge to Kiss Goodbye group, you will boost my personal pledge to MS Australia this month.
Current pledge tally : $149.85
________________________________________________________________
COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This image is part of a private collection from Dragon Papillon Photography and is protected under Australian and International copyright laws. Copying, duplicating, sharing or saving as a digital file, printing, manipulating, transmitting or reproducing this image without written permission from Dragon Papillon Photography is strictly forbidden and would constitute a breach of copyright.
Website: www.dragonpapillon.com or follow us on facebook
Listen: This Corrosion by Sisters of Mercy
"I bled all I can, I won't bleed no more"
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
HEALTH
the golden inner glow
a state of mind
sometimes my body fails to function as it should
sometimes my body fails to respond as it should
my body will never be completely well again
but my illness does not define who I am, or who I can be
I am not my illness, and my illness is not me
as long as I can feel life is worth living
I will live life as well as I can, and for me that is healthy living.
Every comment, view and fave continues to bolster my pledge to MS Australia to support research efforts into this disease. Thank you for your continued support, your words, your stories, your photos.
________________________________________________________________
COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
Neurology is a branch of medicine dealing with disorders of the nervous system. Neurology deals with the diagnosis and treatment of all categories of conditions and disease involving the central and peripheral nervous system including their coverings, blood vessels, and all effector tissue, such as muscle. Neurological practice relies heavily on the field of neuroscience, which is the scientific study of the nervous system.
Read about The ‘Giant’ Scope of ‘Mini’ Brains - bit.ly/2eEvDze
This is yours truly with my better three quarters, captured with my phone by a staff member at today’s MS Awards Ceremony in London.
‘Kiss Goodbye to MS ‘ is a fundraising challenge by the MS Society UK challenging people to give up something during the month of May. The aim of this is to raise money for research into the condition . Huw himself is giving eating up cheese ;-)
" Some 110,000 are diagnosed with MS across the UK, a neurological condition which creates a disability unique to the individual. There is no cure and so the MS Society for (which I volunteer) through its fundraising, supports research to provide disease modifying drugs, seek to find a cure whilst simultaneously providing support across the UK to all affected by MS"
I would love to use this as my Photo a Day but being a stickler for rules, as mentioned above I didn’t take it myself.
One of the things I took to heart was to do small things to advance myself while healing. What I didn’t know was that too manny small things have the opiate effect.
Now I’m paying for that.
With interest.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
I have four legs, the two polka dot ones work a little more reliably than the other two. I won't be completely defined by the MS but it is a very large and influential part of my life. I thought I'd try and capture some of how my MS and I relate ;-)
One of Janice's favorite tee shirts. For her, it refers to the slowness that comes from multiple sclerosis. I'm glad she has a sense of humor!
Below the graphic, the shirt says, "We'll get there when we get there!"
I saw my MS specialist yesterday. All continues to improve. I talked to him about how I’m now shifting my weight when I walk. It’s super subtle. It’s a combination of physical therapy and what I learned in aikido.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
When I was a kid I found this book in my dad’s shelf. It was very intimidating being over 1000 pages. I’d read this instead of doing my homework (ah well) because it was so riveting and fed my imagination. I have trouble reading books, now, due to my MS (can’t concentrate and retain what I read and I tear the pages because of my tremors). So I was able to download the unabridged audio book from the library (53 hrs long). I just finished listening to it and still love the story.
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
Janice cools off in a sprayer set up for that purpose. People with multiple sclerosis are especially susceptible to hot weather.
The theme for the Kiss Goodbye to MS photo challenge is "today" .. and it has been a glorious autumn day in Sydney. Blue skies, a few fluffy clouds, and even some flowers still out praising the sun.
Remember every view, fave and comment adds to my pledge to the KGTOMS campaign. The current tally is $597.15
Only 6 days left to share an image with the pledge to kiss goodbye group to help raise awareness about MS. Thank you to everyone that has contributed so far.
I also have a fund raising page, Palo's Pledge, that accepts donations on behalf of MS Australia to further research into this disease.
________________________________________________________________
COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
A few more shots from the walk to raise funds to fight Multiple Sclerosis. The M. S. Walk took place in multiple locations, yesterday. I attended the one in Hershey, PA.
5 years ago, at 12:09 PM, I received my stem cells. I still struggle every day. Am WAY better though. The alternative would’ve been… dire.
I’ll never have to ask:
“What if…”
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
Onyx with her MS Flappy and MS Loofa toys that came from Care-a-Lot Pet Supply. The profits from these toys and other MS items sold by Care-A-Lot are donated to the National Multiple Sclerosis Society to go toward research for finding a cure.
Seventeen years ago this week I awoke one morning with symptoms that would later be diagnosed as Multiple Sclerosis. The onset of my symptoms were sudden and the progression quick and quite unusual. Within a year of my first symptoms I was using a cane and six months after that I walked into the hospital and came home five weeks later in a power wheelchair, unable to use my legs and with limited use of my right arm. Two years later the MS affected my respiratory system and two years after that I was trached and put on a vent. I have been in the power wheelchair for 15 1/2 years and on the ventilator 24/7 for 11 1/2years. Despite the limitations imposed on me by the MS not much slows me down! I am grateful and very fortunate to have a wonderful family, great friends, and an exceptional team of medical professionals - all of who are very supportive and help to enrich my quality of life. I also have Onyx who enriches my life, makes me smile every day, is a great helper, and my very best friend.
Having #multiplesclerosis the energy I spend needs to be focused on me and what I'm doing. . Spending my time watching the "Winners" within my area doesn't help me, it wastes my time and energy. . Granted, yes, I do learn from the A-Listers with how they do certain things so I can emulate it and make it better. I try not to compare or compete because my energy is better spent focusing on me and my efforts. . Watching winners enables negative thinking in my life. So I chose to focus on my personal progression! . #lifechoice #focusonyourself #michaelphelps #winnersclub #olympicgold #successtips #lifetip #bethebestyou #focusingonme
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
There is what is called the EDSS Score. It is used to measure your disability. 0 is none, 10 is death. I went from about a 2 to 6 in a little less than a year.
My MS was VERY aggressive.
I’m very loath to think of how I would have been next summer.
Remember that I felt I was being dragged down? I had no idea that the bottom was worse than I imagined.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Aided by a high-powered brain scanner and a 3D printer, NIH researchers peered inside the brains of hundreds of multiple sclerosis patients and found that dark rimmed spots representing ongoing, “smoldering” inflammation, called chronic active lesions, may be a hallmark of more aggressive and disabling forms of the disease.
“We found that it is possible to use brain scans to detect which patients are highly susceptible to the more aggressive forms of multiple sclerosis. The more chronic active lesions a patient has the greater the chances they will experience this type of MS,” said Daniel S. Reich, M.D., Ph.D., senior investigator at the NIH’s National Institute of Neurological Disorders and Stroke and the senior author of the paper published in JAMA Neurology. “We hope these results will help test the effectiveness of new therapies for this form of MS and reduce the suffering patients experience.”
Learn more: www.nih.gov/news-events/news-releases/smoldering-spots-br...
Credit: National Institute of Neurological Disorders and Stroke/NIH
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Bob Diamant, Shaolin Kempo instructor with United Studios of Self Defense and guest presenter, right, demonstrated self defense techniques against Gabby Acton, group leader for the monthly multiple sclerosis support group at HealthSouth Rehabilitation Hospital in Las Vegas, Wednesday, June 17, 2015.(Jason Ogulnik/Las Vegas Review-Journal)
Not only is Janice happy about the new cowl she's just crocheted, but the project itself has personal significance. This is the first garment she's crocheted since she broke her left elbow, in 2008.
A measure of wellness!
The tattoo at the nape of Lara Ewen's neck, dedicated to the weekly interferon injections she endured for years, references a proverb: "It's a fool who dances and a fool who watches; if both are fools, you might as well dance."
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
I love this shot I took of George with his nephew Bobby riding shotgun on the back of his wheelchair.
People who have multiple sclerosis vary in how many medications they take. Some people don't take any. Many give themselves an injection each day or each week, because the best meds to ward off exacerbations are injectables. MS is often a hidden disease because the symptoms are not evident in casual social situations. The same applies to what an MS person does routinely at home.
It’s been 2+ years since I had my stem cell transplant to halt my MS. It not that it’s better for me nor that it’s easier to accept. It’s that I’m understanding more that I’m a different person now.
The old me is dead. Rebirth is not an overstatement. I still struggle. Especially understanding my limits and adhering to them. My world is very different. Everything is in a very different light. I think I’m on the other side of my mourning. I recently had a dream that I was on a space station over the Earth. The whole station was on fire. Yet I was totally not scared. I saw a yellow stick note and I was able to read the words clearly:
“You can still fly”
© 2022 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Andrea and Michael Steele, Monica Turner. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
An upload and run shot due to the busy-ness of today. These are bubbles coming from a bubble machine a the O2 Shop, Parc Trostre, Llanelli today. Today was the day I was photo-ing a Family Fun day with proceeds going to the MS Society UK. At the same time, not only was I doing a bucket collection but was interviewed by The Wave local radio who were broadcasting from there, and also doing my 'Wear your Wig to work' personal fundraiser. I was also busy Tweeting updates and pics from there. The day went exceptionally well on many levels - and my thanks go to all who donated to my personal justgiving page for that bit of fundraising. Below is a phone pic of me in my wig before the event started *cringe :)