View allAll Photos Tagged multiplesclerosis
Part of the 2002 Dartford MS Funday. Scooters were lent to allow people to race along the running track (at walking speed).
A few more shots from the walk to raise funds to fight Multiple Sclerosis. The M. S. Walk took place in multiple locations, yesterday. I attended the one in Hershey, PA.
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
HEALTH
the golden inner glow
a state of mind
sometimes my body fails to function as it should
sometimes my body fails to respond as it should
my body will never be completely well again
but my illness does not define who I am, or who I can be
I am not my illness, and my illness is not me
as long as I can feel life is worth living
I will live life as well as I can, and for me that is healthy living.
Every comment, view and fave continues to bolster my pledge to MS Australia to support research efforts into this disease. Thank you for your continued support, your words, your stories, your photos.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
Neurology is a branch of medicine dealing with disorders of the nervous system. Neurology deals with the diagnosis and treatment of all categories of conditions and disease involving the central and peripheral nervous system including their coverings, blood vessels, and all effector tissue, such as muscle. Neurological practice relies heavily on the field of neuroscience, which is the scientific study of the nervous system.
Read about The ‘Giant’ Scope of ‘Mini’ Brains - bit.ly/2eEvDze
This is yours truly with my better three quarters, captured with my phone by a staff member at today’s MS Awards Ceremony in London.
‘Kiss Goodbye to MS ‘ is a fundraising challenge by the MS Society UK challenging people to give up something during the month of May. The aim of this is to raise money for research into the condition . Huw himself is giving eating up cheese ;-)
" Some 110,000 are diagnosed with MS across the UK, a neurological condition which creates a disability unique to the individual. There is no cure and so the MS Society for (which I volunteer) through its fundraising, supports research to provide disease modifying drugs, seek to find a cure whilst simultaneously providing support across the UK to all affected by MS"
I would love to use this as my Photo a Day but being a stickler for rules, as mentioned above I didn’t take it myself.
One of the things I took to heart was to do small things to advance myself while healing. What I didn’t know was that too manny small things have the opiate effect.
Now I’m paying for that.
With interest.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
I have four legs, the two polka dot ones work a little more reliably than the other two. I won't be completely defined by the MS but it is a very large and influential part of my life. I thought I'd try and capture some of how my MS and I relate ;-)
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
One of Janice's favorite tee shirts. For her, it refers to the slowness that comes from multiple sclerosis. I'm glad she has a sense of humor!
Below the graphic, the shirt says, "We'll get there when we get there!"
Baking with MS .... One minute your holding the muffin try and then your dropping the muffin tray #multiplesclerosis #fuckyoumultiplesclerosis #multiplesclerosisfighter #baking #foodporn #messykitchen #selfcleaningoven
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Having #multiplesclerosis the energy I spend needs to be focused on me and what I'm doing. . Spending my time watching the "Winners" within my area doesn't help me, it wastes my time and energy. . Granted, yes, I do learn from the A-Listers with how they do certain things so I can emulate it and make it better. I try not to compare or compete because my energy is better spent focusing on me and my efforts. . Watching winners enables negative thinking in my life. So I chose to focus on my personal progression! . #lifechoice #focusonyourself #michaelphelps #winnersclub #olympicgold #successtips #lifetip #bethebestyou #focusingonme
When I was a kid I found this book in my dad’s shelf. It was very intimidating being over 1000 pages. I’d read this instead of doing my homework (ah well) because it was so riveting and fed my imagination. I have trouble reading books, now, due to my MS (can’t concentrate and retain what I read and I tear the pages because of my tremors). So I was able to download the unabridged audio book from the library (53 hrs long). I just finished listening to it and still love the story.
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
Janice cools off in a sprayer set up for that purpose. People with multiple sclerosis are especially susceptible to hot weather.
Friday is usually my "day off," but this week I'm working seven days. So, I have to scoot. Here's a quick post from the M.S. Walk. Happy Fence Friday! If you're in the area where I live, stay dry!
5 years ago, at 12:09 PM, I received my stem cells. I still struggle every day. Am WAY better though. The alternative would’ve been… dire.
I’ll never have to ask:
“What if…”
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
Onyx with her MS Flappy and MS Loofa toys that came from Care-a-Lot Pet Supply. The profits from these toys and other MS items sold by Care-A-Lot are donated to the National Multiple Sclerosis Society to go toward research for finding a cure.
Seventeen years ago this week I awoke one morning with symptoms that would later be diagnosed as Multiple Sclerosis. The onset of my symptoms were sudden and the progression quick and quite unusual. Within a year of my first symptoms I was using a cane and six months after that I walked into the hospital and came home five weeks later in a power wheelchair, unable to use my legs and with limited use of my right arm. Two years later the MS affected my respiratory system and two years after that I was trached and put on a vent. I have been in the power wheelchair for 15 1/2 years and on the ventilator 24/7 for 11 1/2years. Despite the limitations imposed on me by the MS not much slows me down! I am grateful and very fortunate to have a wonderful family, great friends, and an exceptional team of medical professionals - all of who are very supportive and help to enrich my quality of life. I also have Onyx who enriches my life, makes me smile every day, is a great helper, and my very best friend.
I got this tattoo on 4/11/2012 It reads m.s. warrior. Living with multiple sclerosis is a daily fight, there is no cure, no ribbon for" I beat ms" or "ms survivor" so.. I came up with this... it is my own lousy handwriting :)
Life is a funny thing. Sometime we do not think how much we were given.
Imagine yourself at age of 26, making meal for friends, when suddenly your vision goes away in one of eyes. Imagine panic and confusion you would have when it doesnt come back. And then doctors would toss you around, and ... then they will tell you you got Multiple Sclerosis (MS). And you are ONLY 26 years old!
MS is a disease that makes you suffer in silence. It’s a slow progression, one day you can practice yoga, the next morning you can’t even get out of bed. Sometime pain is only thing around you, blinding, crippling, pushing you down. There are few forms of this disease, but they all have same end result.
Terminal.
And younger you are, faster it progresses. Some older folks getting diagnosed around 60-70 and pushing 90s now. People who diagnosed around 20s - rarely live past 30.
But Svetlana didnt give up. She is a born fighter, she threw herself at the researching about MS, created one of the most popular MS support sites and helped others.
9 long years battle continues. 9 long years, sometime going to wheel chair, sometime going with cane, sometime just walking slowly - she lives, she fights. Every step. Every day. We, her family, helping her as much we could, but most importantly she has amazing inner strength that keeps her moving, working and not complaining how hard it is for her, how horrible her days are.
Her life became series of visits to doctors, MRI scans, trials with various medical solutions that should help stabilize MS patient.
Alas, 9 years in, every single existing medical solution is exhausted and nothing helped. She starting to detiorate more rapidly than ever before and 10 more active lesions now show up on latest MRI. She shouldnt even be able to move. Yet - she does fight on. But ghost of wheelchair is more and more materializing in front of us through past two years.
Our youngest is 7 years old now, and , bearing with typical MS lifespan prediction she wont see him graduate.
Hematopoietic stem cell transplantation (HSCT) is a
relatively new procedure for MS patients. We started doing research, asking ,applying everywhere. Two places accepted her application - facility in Russia and facility in Chicaco. Both are not free, one is 45K USD and travelling overseas, another is 125K USD (and place where her family can come and visit her). Given recent progression of the disease doctors recommend to do HSCT as soon as possible, but money is where it all stops, as such amount is beyound our pockets for now .
www.gofundme.com/lanamsfighter
If you got something to spare to help Lana to get procedure done so she can see her grandkids , please donate to this cause. If you stranded - just send Lana smile and a good thought. She can use them too.
Thank you.
There is what is called the EDSS Score. It is used to measure your disability. 0 is none, 10 is death. I went from about a 2 to 6 in a little less than a year.
My MS was VERY aggressive.
I’m very loath to think of how I would have been next summer.
Remember that I felt I was being dragged down? I had no idea that the bottom was worse than I imagined.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Bob Diamant, Shaolin Kempo instructor with United Studios of Self Defense and guest presenter, right, demonstrated self defense techniques against Gabby Acton, group leader for the monthly multiple sclerosis support group at HealthSouth Rehabilitation Hospital in Las Vegas, Wednesday, June 17, 2015.(Jason Ogulnik/Las Vegas Review-Journal)
Not only is Janice happy about the new cowl she's just crocheted, but the project itself has personal significance. This is the first garment she's crocheted since she broke her left elbow, in 2008.
A measure of wellness!
The tattoo at the nape of Lara Ewen's neck, dedicated to the weekly interferon injections she endured for years, references a proverb: "It's a fool who dances and a fool who watches; if both are fools, you might as well dance."
this was a very sweet moment, and I just happened to capture it.
As I was walking up behind this couple I was thinking "Oh, that would be sweet, if I could get a shot of them in the "light path" of the sunset"
Just as I got the shot set up and focused, he leaned in for a kiss. Perfect!
After I passed by and was starting to look for my next shot, they got up and came up the hill, and asked Larry if he would take a picture of them with their little cheap-y camera They told him they had just gotten engaged, and wanted to have a memento of the moment.
. After they got a few shot on their camera, I offered to take a few more on my camera and then I emailed them the results. I also put this photo in, as I realize afterward that I had captured the moment after she said "Yes!" 8-)
Congratulations to Chris & Lauren.
This post is for a new group called
"Pledge to Kiss Goodbye to MS", started by my dear contact Paloetic, to raise awareness and funds for research for Multiple Sclerosis
THEME #1: Kiss
Multiple Sklerose unterbricht die Nervenbahne. Zu den Folgen gehören Kontrollverlust und Schmerz.
“Multiple sclerosis interrupts the nerve racts. Multiple Sklerose Gesellschaft Schweiz”
Read more:
osocio.org/message/multiple_sclerosis_interrupts_the_nerv...
Yesterday marked the 5th year of my washout of all MS drugs . Had I stayed on the drug it’d be $540k by now
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
I love this shot I took of George with his nephew Bobby riding shotgun on the back of his wheelchair.
People who have multiple sclerosis vary in how many medications they take. Some people don't take any. Many give themselves an injection each day or each week, because the best meds to ward off exacerbations are injectables. MS is often a hidden disease because the symptoms are not evident in casual social situations. The same applies to what an MS person does routinely at home.
Andrea and Michael Steele, Monica Turner. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
It’s been 2+ years since I had my stem cell transplant to halt my MS. It not that it’s better for me nor that it’s easier to accept. It’s that I’m understanding more that I’m a different person now.
The old me is dead. Rebirth is not an overstatement. I still struggle. Especially understanding my limits and adhering to them. My world is very different. Everything is in a very different light. I think I’m on the other side of my mourning. I recently had a dream that I was on a space station over the Earth. The whole station was on fire. Yet I was totally not scared. I saw a yellow stick note and I was able to read the words clearly:
“You can still fly”
© 2022 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
An upload and run shot due to the busy-ness of today. These are bubbles coming from a bubble machine a the O2 Shop, Parc Trostre, Llanelli today. Today was the day I was photo-ing a Family Fun day with proceeds going to the MS Society UK. At the same time, not only was I doing a bucket collection but was interviewed by The Wave local radio who were broadcasting from there, and also doing my 'Wear your Wig to work' personal fundraiser. I was also busy Tweeting updates and pics from there. The day went exceptionally well on many levels - and my thanks go to all who donated to my personal justgiving page for that bit of fundraising. Below is a phone pic of me in my wig before the event started *cringe :)