View allAll Photos Tagged multiplesclerosis
The day before I left for home, after the neutropenic stage, I went to the roof garden, while my apartment was being cleaned, and got some quiet reflection time.
It was a sunny day and “Popo” (short for Popocatépetl, the volcano) was active.
I’ll never regret taking this journey. Ever. Not even after 4 of my flights were cancelled or even contracting COVID. All is complete now and I’ll fly home tomorrow.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
This is a pseudo-colored image of high-resolution gradient-echo MRI scan of a fixed cerebral hemisphere from a person with multiple sclerosis.
Credit: Govind Bhagavatheeshwaran, Daniel Reich, National Institute of Neurological Disorders and Stroke, National Institutes of Health
Tonight I was very proud of my OH as she walked the fire for MS. Thanks to all friends who took the time to come and support her and to all who have provided sponsorship. Your support and help has been more than appreciated. Diolch.
I let my students/grads know this week, these plans have been in the works for months now. This will be my last year as a full time instructor due to my health’s rapid decline. I'll be switching to part time and fade into the shadows.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
So, a bit of prep was needed before my HSCT. I need a washout of my system of all DMDs (disease modifying drugs) 3 months prior.
I did a bit of more research.
The DMD I was taking, Gilenya by Novartis, came out in 2010 at $4000/month. It’s now $9000/month. You might qualify for a discount because having a debilitating, life long disease that has no cure is not enough. Price setting for drugs is a black hole. The biomedical engineer I spoke to said it takes about $.05 - $1 per pill to make Gilenya.
The average worker at Novartis makes $50k/yr.
Doctors there make about $250/yr.
The CEO, last year, made $11,437,500. That’s before perks.
And I was expected to make a decision on what drug to take within a couple of days based on the pamphlets I was given. Yet, my 8 months of research into HSCT was scoffed at.
What pissed me off the most was that I was not given a choice of this treatment. Even though it’s been around for 50 years and everything that was given to me was FDA approved. I suspect that since HSCT can’t be owned by a single big pharma company it was not FDA approved. Aka: no single owner to make $ off of it.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Anna Trone, Jean-Marie Fernandez, Maureen Curley. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
At the second Dartford MS Funday in 2003, the Red Wheelie scooter display team put on a routine based on St George and the Dragon. The dragon was pursued around the arena until caught and its tail removed.
Recently heard that the Red Wheelies have been revived in Canterbury to support the MS Therapy Centre there - watch Kent TV footage
Presentation of one of the cheques to the participating charities. A total of £832 was raised for Diabetes and Multiple Sclerosis charities.
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
David and Carrie Marriott, Jill Hodges, Kellie Romer, Kevin Chugg. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
I live by my PDA. But, sometimes, I long for my old, paper day planner, with stickers, photos pasted in, and different colors of ink. There's something therapeutic about a real book!
Janice also has a PDA, but plans her MS treatments on paper. The makers of Copaxone supply her with a nifty day planner, complete with stickers.
Norah O'Donnell, Carrie Marriott. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Biting stonecrop , is found in meadows, sandy and rocky places.
For medicinal purposes harvested aerial part of the plant that are made poultices, infusions, decoction.
Biting stonecrop , can reap in May-July.
Biting stonecrop-Natural Treatments
Biting stonecrop preparations have important medicinal qualities, being antiepileptic antiscorbutic, antiperspirants, and even anti-ulcer agents.
This herb can help fight scurvy, a fever, certain skin diseases such as skin ulcers, mycosis, freckles, abscesses, wounds difficult to heal.
Biting stonecrop is indicated in the treatment of MS and hypertension.
Herb may be useful in skin cancer.
Biting stonecrop can be used in treating diseases as diverse as skin induration, gangrenous wounds, tumors.
In internal use, the plant is used as an infusion for treatment of diuresis and fever.
In external use is used as a decoction or infusion addition of bathroom and treating foot pain, arthritis and scurvy (lack of vitamin C).The plant or plant cuts, apply external therapies and fresh form, directly to the affected area. read more
Every day my caregiver, Jair (we called him J) kept me on a rigorous schedule for my meds. This photo does not include the daily injections (sometimes 2x a day) also administered by the nurses.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Ginny Grenham, Norah O'Donnell. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
I came up with a contest amongst my brothers and sisters to see who can wear orange the entire month of March 2019 to bring awareness to Multiple Sclerosis.
Please check out similar license plates by searching for "charity series" or clicking the link below.
Day Three Hundred Forty-One/365. We've been dealing, first-hand, with multiple sclerosis since 1985. But, there is always something to learn!
We recommend this book. It's readable and authoritative . . .and, this one is in large print!
www.flickr.com/groups/pledgetokissgoodbye/
Palo, one of my very first contacts, one very beautiful lady, one extremely talented lady, one very strong lady. This one is for you, and for all MS sufferers, and the people going thru the journey with you, may there be a cure found.
40th Annual Race Against MS June 22, 2023/ Belmont Park/ 2150 Hempstead Turnpike National Multiple Sclerosis Society NYC - Southern New York Chapter
Anna Trone, Karen Donatelli, Maureen Curley, Stacey Lubar, Jean-Marie Fernandez, Amy Baier. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Emily Rouse. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Bob has multiple sclerosis and has to use a scooter. He is not happy about this.
He has five children and an ex-wife.
Bob occasionally tries to convert me to Christianity, but not very hard.
A few more shots from the walk to raise funds to fight Multiple Sclerosis. The M. S. Walk took place in multiple locations, yesterday. I attended the one in Hershey, PA.