View allAll Photos Tagged multiplesclerosis
Part of the 2002 Dartford MS Funday. Scooters were lent to allow people to race along the running track (at walking speed).
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
HEALTH
the golden inner glow
a state of mind
sometimes my body fails to function as it should
sometimes my body fails to respond as it should
my body will never be completely well again
but my illness does not define who I am, or who I can be
I am not my illness, and my illness is not me
as long as I can feel life is worth living
I will live life as well as I can, and for me that is healthy living.
Every comment, view and fave continues to bolster my pledge to MS Australia to support research efforts into this disease. Thank you for your continued support, your words, your stories, your photos.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This is yours truly with my better three quarters, captured with my phone by a staff member at today’s MS Awards Ceremony in London.
‘Kiss Goodbye to MS ‘ is a fundraising challenge by the MS Society UK challenging people to give up something during the month of May. The aim of this is to raise money for research into the condition . Huw himself is giving eating up cheese ;-)
" Some 110,000 are diagnosed with MS across the UK, a neurological condition which creates a disability unique to the individual. There is no cure and so the MS Society for (which I volunteer) through its fundraising, supports research to provide disease modifying drugs, seek to find a cure whilst simultaneously providing support across the UK to all affected by MS"
I would love to use this as my Photo a Day but being a stickler for rules, as mentioned above I didn’t take it myself.
One of the things I took to heart was to do small things to advance myself while healing. What I didn’t know was that too manny small things have the opiate effect.
Now I’m paying for that.
With interest.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Neurology is a branch of medicine dealing with disorders of the nervous system. Neurology deals with the diagnosis and treatment of all categories of conditions and disease involving the central and peripheral nervous system including their coverings, blood vessels, and all effector tissue, such as muscle. Neurological practice relies heavily on the field of neuroscience, which is the scientific study of the nervous system.
Read about The ‘Giant’ Scope of ‘Mini’ Brains - bit.ly/2eEvDze
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
I have four legs, the two polka dot ones work a little more reliably than the other two. I won't be completely defined by the MS but it is a very large and influential part of my life. I thought I'd try and capture some of how my MS and I relate ;-)
One of Janice's favorite tee shirts. For her, it refers to the slowness that comes from multiple sclerosis. I'm glad she has a sense of humor!
Below the graphic, the shirt says, "We'll get there when we get there!"
I saw my MS specialist yesterday. All continues to improve. I talked to him about how I’m now shifting my weight when I walk. It’s super subtle. It’s a combination of physical therapy and what I learned in aikido.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
I’ve been standing on my toes every day, as a matter of health improvement (and because it still feels new). I decided to attempt to rock back on my heels, just to see if I could. I was amazed to find out I could rock back and forth from toes to heel, as long as I held to a stable item, like a chair, I was crying with joy because I have not been able to do that for several years. Amazing how simple things can fill me with joy
:-)
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
Janice cools off in a sprayer set up for that purpose. People with multiple sclerosis are especially susceptible to hot weather.
The theme for the Kiss Goodbye to MS photo challenge is "today" .. and it has been a glorious autumn day in Sydney. Blue skies, a few fluffy clouds, and even some flowers still out praising the sun.
Remember every view, fave and comment adds to my pledge to the KGTOMS campaign. The current tally is $597.15
Only 6 days left to share an image with the pledge to kiss goodbye group to help raise awareness about MS. Thank you to everyone that has contributed so far.
I also have a fund raising page, Palo's Pledge, that accepts donations on behalf of MS Australia to further research into this disease.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
A few more shots from the walk to raise funds to fight Multiple Sclerosis. The M. S. Walk took place in multiple locations, yesterday. I attended the one in Hershey, PA.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
Having #multiplesclerosis the energy I spend needs to be focused on me and what I'm doing. . Spending my time watching the "Winners" within my area doesn't help me, it wastes my time and energy. . Granted, yes, I do learn from the A-Listers with how they do certain things so I can emulate it and make it better. I try not to compare or compete because my energy is better spent focusing on me and my efforts. . Watching winners enables negative thinking in my life. So I chose to focus on my personal progression! . #lifechoice #focusonyourself #michaelphelps #winnersclub #olympicgold #successtips #lifetip #bethebestyou #focusingonme
5 years ago, at 12:09 PM, I received my stem cells. I still struggle every day. Am WAY better though. The alternative would’ve been… dire.
I’ll never have to ask:
“What if…”
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Well, Janice had surgery again today, her third since breaking her arm in August. This operation lasted a mere five hours, and was intended to examine her arm under anesthesia. Depending on what the orthopod found, he would go ahead and fix it. The big questions: Why was her arm making clicking, ratcheting sounds when she straightened it? And, why was it still hurting like the dickens?
The answer is too complicated to type in this space. It has to do with the ulna nerve (sp?), with spasticity caused by multiple sclerosis, with a joint that wasn't fitting properly, and with arthritis. Whew!
Now, she's in a cast, resting at home, and very glad the surgeon took some action.
Many thanks to the good people of Pocono Medical Center!
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
There is what is called the EDSS Score. It is used to measure your disability. 0 is none, 10 is death. I went from about a 2 to 6 in a little less than a year.
My MS was VERY aggressive.
I’m very loath to think of how I would have been next summer.
Remember that I felt I was being dragged down? I had no idea that the bottom was worse than I imagined.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Aided by a high-powered brain scanner and a 3D printer, NIH researchers peered inside the brains of hundreds of multiple sclerosis patients and found that dark rimmed spots representing ongoing, “smoldering” inflammation, called chronic active lesions, may be a hallmark of more aggressive and disabling forms of the disease.
“We found that it is possible to use brain scans to detect which patients are highly susceptible to the more aggressive forms of multiple sclerosis. The more chronic active lesions a patient has the greater the chances they will experience this type of MS,” said Daniel S. Reich, M.D., Ph.D., senior investigator at the NIH’s National Institute of Neurological Disorders and Stroke and the senior author of the paper published in JAMA Neurology. “We hope these results will help test the effectiveness of new therapies for this form of MS and reduce the suffering patients experience.”
Learn more: www.nih.gov/news-events/news-releases/smoldering-spots-br...
Credit: National Institute of Neurological Disorders and Stroke/NIH
Life is a funny thing. Sometime we do not think how much we were given.
Imagine yourself at age of 26, making meal for friends, when suddenly your vision goes away in one of eyes. Imagine panic and confusion you would have when it doesnt come back. And then doctors would toss you around, and ... then they will tell you you got Multiple Sclerosis (MS). And you are ONLY 26 years old!
MS is a disease that makes you suffer in silence. It’s a slow progression, one day you can practice yoga, the next morning you can’t even get out of bed. Sometime pain is only thing around you, blinding, crippling, pushing you down. There are few forms of this disease, but they all have same end result.
Terminal.
And younger you are, faster it progresses. Some older folks getting diagnosed around 60-70 and pushing 90s now. People who diagnosed around 20s - rarely live past 30.
But Svetlana didnt give up. She is a born fighter, she threw herself at the researching about MS, created one of the most popular MS support sites and helped others.
9 long years battle continues. 9 long years, sometime going to wheel chair, sometime going with cane, sometime just walking slowly - she lives, she fights. Every step. Every day. We, her family, helping her as much we could, but most importantly she has amazing inner strength that keeps her moving, working and not complaining how hard it is for her, how horrible her days are.
Her life became series of visits to doctors, MRI scans, trials with various medical solutions that should help stabilize MS patient.
Alas, 9 years in, every single existing medical solution is exhausted and nothing helped. She starting to detiorate more rapidly than ever before and 10 more active lesions now show up on latest MRI. She shouldnt even be able to move. Yet - she does fight on. But ghost of wheelchair is more and more materializing in front of us through past two years.
Our youngest is 7 years old now, and , bearing with typical MS lifespan prediction she wont see him graduate.
Hematopoietic stem cell transplantation (HSCT) is a
relatively new procedure for MS patients. We started doing research, asking ,applying everywhere. Two places accepted her application - facility in Russia and facility in Chicaco. Both are not free, one is 45K USD and travelling overseas, another is 125K USD (and place where her family can come and visit her). Given recent progression of the disease doctors recommend to do HSCT as soon as possible, but money is where it all stops, as such amount is beyound our pockets for now .
www.gofundme.com/lanamsfighter
If you got something to spare to help Lana to get procedure done so she can see her grandkids , please donate to this cause. If you stranded - just send Lana smile and a good thought. She can use them too.
Thank you.
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Onyx with her MS Flappy and MS Loofa toys that came from Care-a-Lot Pet Supply. The profits from these toys and other MS items sold by Care-A-Lot are donated to the National Multiple Sclerosis Society to go toward research for finding a cure.
Seventeen years ago this week I awoke one morning with symptoms that would later be diagnosed as Multiple Sclerosis. The onset of my symptoms were sudden and the progression quick and quite unusual. Within a year of my first symptoms I was using a cane and six months after that I walked into the hospital and came home five weeks later in a power wheelchair, unable to use my legs and with limited use of my right arm. Two years later the MS affected my respiratory system and two years after that I was trached and put on a vent. I have been in the power wheelchair for 15 1/2 years and on the ventilator 24/7 for 11 1/2years. Despite the limitations imposed on me by the MS not much slows me down! I am grateful and very fortunate to have a wonderful family, great friends, and an exceptional team of medical professionals - all of who are very supportive and help to enrich my quality of life. I also have Onyx who enriches my life, makes me smile every day, is a great helper, and my very best friend.
I got this tattoo on 4/11/2012 It reads m.s. warrior. Living with multiple sclerosis is a daily fight, there is no cure, no ribbon for" I beat ms" or "ms survivor" so.. I came up with this... it is my own lousy handwriting :)
Bob Diamant, Shaolin Kempo instructor with United Studios of Self Defense and guest presenter, right, demonstrated self defense techniques against Gabby Acton, group leader for the monthly multiple sclerosis support group at HealthSouth Rehabilitation Hospital in Las Vegas, Wednesday, June 17, 2015.(Jason Ogulnik/Las Vegas Review-Journal)
It was 4 years ago today that I got my stem cell transplant. Yes, I’m still keeping the tradition that my late wife started, a tart this year.
Things are looking OK for me. I still struggle. Yet, it’s totally not as bad as it used to be. I’m not in constant pain, I’ve not taken any MS drugs for over 4 years, I’m doing things I could not do 5 years ago.
Next year will be the major milestone.
Stay tuned.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
I love this shot I took of George with his nephew Bobby riding shotgun on the back of his wheelchair.
Not only is Janice happy about the new cowl she's just crocheted, but the project itself has personal significance. This is the first garment she's crocheted since she broke her left elbow, in 2008.
A measure of wellness!
People who have multiple sclerosis vary in how many medications they take. Some people don't take any. Many give themselves an injection each day or each week, because the best meds to ward off exacerbations are injectables. MS is often a hidden disease because the symptoms are not evident in casual social situations. The same applies to what an MS person does routinely at home.
It’s been 2+ years since I had my stem cell transplant to halt my MS. It not that it’s better for me nor that it’s easier to accept. It’s that I’m understanding more that I’m a different person now.
The old me is dead. Rebirth is not an overstatement. I still struggle. Especially understanding my limits and adhering to them. My world is very different. Everything is in a very different light. I think I’m on the other side of my mourning. I recently had a dream that I was on a space station over the Earth. The whole station was on fire. Yet I was totally not scared. I saw a yellow stick note and I was able to read the words clearly:
“You can still fly”
© 2022 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Andrea and Michael Steele, Monica Turner. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
An upload and run shot due to the busy-ness of today. These are bubbles coming from a bubble machine a the O2 Shop, Parc Trostre, Llanelli today. Today was the day I was photo-ing a Family Fun day with proceeds going to the MS Society UK. At the same time, not only was I doing a bucket collection but was interviewed by The Wave local radio who were broadcasting from there, and also doing my 'Wear your Wig to work' personal fundraiser. I was also busy Tweeting updates and pics from there. The day went exceptionally well on many levels - and my thanks go to all who donated to my personal justgiving page for that bit of fundraising. Below is a phone pic of me in my wig before the event started *cringe :)
I brought the bins in from the street… for the first time in years. Better yet… I did it WITHOUT my cane!!
It really is the small things :-D
Multiple Sklerose unterbricht die Nervenbahne. Zu den Folgen gehören Kontrollverlust und Schmerz.
“Multiple sclerosis interrupts the nerve racts. Multiple Sklerose Gesellschaft Schweiz”
Read more:
osocio.org/message/multiple_sclerosis_interrupts_the_nerv...
On April 18, 2010, it really happened. I walked the entire 3.2-mile WalkMS in a dress and high heels. To be honest, I wasn’t sure I could walk the whole way with the shoes, and seriously considered taking them off a couple of times. But I knew that at the end of the Walk, I can take the shoes off and the discomfort would eventually go away. My wife, and everyone else with multiple sclerosis, doesn’t have that luxury. So I just kept walking. One step at a time.
Thank you so much for everyone who sponsored me – your donation is helping to make the National MS Society an even better resource for people with multiple sclerosis. Thank you very much for everyone who walked with me on our team – I’m glad you didn’t mind going so slow. Thank you to everyone who has enthusiastically responded to this whole thing – every message I received really inspired and touched me. Thank you to Lan Yin “Eiko” Tsai for inspiring the look of my ensemble. And most of all, thank you to my wife for encouraging me and understanding the very serious ‘why’ behind this silliness.
Photo by Rose Kwasnicki