View allAll Photos Tagged multiplesclerosis
© Leanne Boulton, All Rights Reserved
Posed street portrait taken for my 100 Strangers project in Glasgow, Scotland.
This picture is an alternative shot from #72 in my 100 strangers project. Find out more about the project and see pictures taken by other photographers at the 100 Strangers Flickr Group page
Stuart was telling me how hope and courage, inspired by others, helps him to fight against his multiple sclerosis. He spoke positively about the troubles that ail him because fighting those made him stronger and more hopeful. Inspirational words. Enjoy!
Today I had my long awaited appointment with my Neurologist. The outcome of that makes me want to dance ( not that I can do ) but suffice to say that as long as my blood tests are satisfactory then I'm to get a drug called Fampyra/Fampridine which I've been campaigning for on behalf of others for many years ( in comments)... i.e. as long as my health authority are willing to fund that and the two extra staff required.
www.mssociety.org.uk/what-we-do/news/fampyra-fampridine-r...
Taken at Swansea SA1 this evening before attending our monthly meet for those affected by Multiple Sclerosis , whether it's mums and dads, friends , spouses etc ...
www.mssociety.org.uk/care-and-support/local-support/local...
From a photography aspect I was disappointed to arrive to see the clouds descending, but it was so rewarding also humbling to meet old friends and new friends seeking the support they need.
If I'd have known I was going here today, I'd have used this for my PoTD, because after I'd uploaded that, Huw took me for an appointment in my Parkinson's Clinic where I learned that the meds I'm taking may be the cause of something else. Taken through someone's wineglass at Verdi's , Knab Rock, Mumbles after I'd walked totally unaided from the clinic to the car and from the car to Verdis and half way back to the car again when my legs go tired that I used my rollator.
I didn't care to go out today in the high winds and after heavy rain and sleet but a 'needs must'. This was taken at Ynystawe Park where I went for a stroll to keep my legs moving in prep for the event I'm shooting next week, and from there along the new cycle track and back to the car.
Taken at Swansea Vale Ponds, a place I often come to on a Sunday afternoon. This time however , the truth of the matter is that last Monday after we'd arrived home from an early morning visit to Swansea Beach to get my daily physio in , is that my legs packed up entirely after it. 'Packed up' in so much as I could stand but whilst my brain tried telling me to put one foot in front of the other, it wasn't happening. I contacted my Neurology team immediately and the following day , I had a 'Virtual Appointment' with the Lead Physio who confirmed what I'd suspected all along - I'd burned out my legs in overdoing the walking but given time and rest they'd recover.
I've rested them all week apart from the odd jaunt out in the car so today we came here to test them.
I'm not out of the woods yet, but so thankful for the help I've had from my GP, who rang at 7 pm on Friday, my MS Team and last and not least , my very significant better half who's been my gopher , including helping getting my photo props from a) to b) , listened to the tears but in the middle of all that he told me how proud he was ( and is ) of my determination and tenacity and that he's rather see me like this than giving in to it and be a cabbage in the corner.
PS Please no sympathy - there are others in this current global crisis who are living with Domestic Abuse and worse.
In the market for a new car? This 2007 Lamborghini Gallardo Coupe AWD is listed for $139,900 CND. It would look very nice in my garage :-)
Before Janice begins training with a service dog, we're spending a few days just hanging out with one. Bogie, our top choice for a new helper and family member, slept over with us last night. All went well!
We'll have one more night together before Bogie returns to his "puppy raiser" on Wednesday. He's a big guy, with a big presence in the house! So far, we're doing just fine.
The Island
I’d love to be an island:
Alone on my way through the universe
See nothing, think nothing, feel nothing…
I’d fly through the space
In a vacuum – in the dark…
No breath – no life…
No fainting, no anger
No desire, no despair
No guilt, no regret.
But also:
No love, no compassion,
No heart, no soul…
Empty, burnt out…
This is how I feel sometimes
In the night
Alone on my island…
From afar I see
The stars
They carry:
My thoughts, my feelings
My helplessness, my anger
My hope, my love
A far away light…
But everybody can see them
At night:
My yearning, my ache,
My asking, my entreaty…
Open, without shame…
Sometimes
I’d wish myself
On that island…
… with you.
© livDE 2004 - all rights reserved
German version - Deutsche Version: www.flickr.com/photos/8416695@N02/766554455/
The original background photo Bird of Paradise was kindly provided to me from Liska Rial Eman. Thank you so very much, Stephanie!!!
Tuxudo clad riders from KRCG at the Express Scripts MS Bike Ride (MS 150) in Columbia in Boone County Missouri.
Please check out my photos at: notleyhawkins.imagekind.com/
©Notley Hawkins
TO ALL MY CONTACTS .. I have tried to visit but everything is so painfully slow and leaving a comment is taking forever and then fails. Will try again soon, once my stress levels subside once more.
Having some fun with the gorgeous socks from the Kiss Goodbye to MS memorabilia. One week left to sock it to MS and kiss it goodbye!
Before you escape into a big black hole ... share an image with the pledge to kiss goodbye group to help raise awareness about MS.
I also have a fund raising page, Palo's Pledge, that accepts donations on behalf of MS Australia to further research into this disease.
Thanks to eflon who shared his wall and window under creative commons.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
A team of cyclists pose for a photo to mark the finish of the Express Scripts MS Bike Ride in Columbia in Boone County Missouri.
Please check out my photos at: notleyhawkins.imagekind.com/
©Notley Hawkins
Malika Bradley organised this charity fundrasier craft fayre at St Anne's Church Hall for the West Lancashire Ormskirk MS Society Fundraiser
One of the two hospitals in my life and very much part of the Sheffield skyline. A building that gives me very good vibes due to the exceptional (on the whole) care I receive there..
Most days when people ask how I feel, I want to just blurt out, “Oh I feel like I’ve been hit by a dump truck, have the worst hangover of my life, and have the flu. And all of those things are simultaneously fighting against each other, making my mind and body feel like a complete wreck”, but since that seems a little intense, I just simply reply with “I’m good, but I’m tired today.”
sohawtsl.wordpress.com/2024/04/06/what-is-it-like-to-have...
I will #climbtothetopnyc on 3/3/19 for ‘A World Free of MS’. Please help me to raise $$$ for #MultipleSclerosis. Msg for details or find my page on Facebook (Tatyana Ve). Any help is greatly appreciated 😊
Díme cuándo. Pero cuándo.
# # #
Tell me when. But... when.
# # #
White for MS fundraising project.
Featured on cover of the White as a colour benefit book.
Janice and I are in the midst of several processes that are life-changing. Our movers will come, next week, to take us to a new residence. I'll also begin a new job next month, applying my career skills and personal gifts in a more specific way.
Today, we have also received the name of the service dog for whom we have been waiting for six years. His name is Lucky!
Janice will begin training online, next week, soon afterward, she'll spend time training with Lucky in person, before we finally take him to our new digs.
Life sometimes takes several good turns at once. This is a shot I took of Lucky on the day that Janice met him as part of a set of five potential life partners.
Numbness has been a part of my MS journey since the beginning. I experienced it in many levels and in different parts of my body, such as my feet, legs, arms, hands and areas of my torso. When I was in my worst shape before I got diagnosed, almost the entire left side of my body was numb.
The image I used for this symptom exemplifies not only the numbness, but something else called Dysesthesias. It's a hot/cold sensation on the area of the body. The sensation was so aggressive that it was like it was burning my skin nonstop. It lasted for days or weeks.
This was the only photo I posed myself for this project. My husband captured exactly the way I had in my mind. It was my first idea for this symptom since the beginning of this project three years ago. I knew I couldn't ask anyone else to go that far. I had to wait for the snow to come. There was no other way I wanted it to be. It had to be real to feel real.
I feel extremely glad that after being treated I didn't feel this anymore.
It's 13th March 2025. If awful illness had not intervened, today would have been Martin Maclean’s 80th birthday. He’s on the right, aged 15, in this photograph. And that’s me, a year older, on the left.
I met Martin at school in Banstead, Surrey, in 1959. We rapidly hit it off, and over the years we forged a friendship that was to last a lifetime.
But towards the end of the 1960s, Martin was diagnosed with a particularly vicious strain of multiple sclerosis, and it wasn’t long before he was unable to walk. In his mid-twenties he was condemned (the only word) to a wheelchair and his promising career as a quantity surveyor was over.
The years went by and this most pernicious of diseases relentlessly continued to play havoc with Martin’s nervous and immune systems until it eventually reaped its final horror. In June 2000, this good and decent man, by now the father of three, died at the age of 55 – far too young.
From the age of 15 right through to the end, Martin was my closest friend. I still miss him, of course I do, and on what would have been his 80th birthday, I commemorate and remember him with great affection. This is the first photograph of us together (but not the last); it was taken by his mum in 1960.
Diamonds - RIHANNA www.youtube.com/watch?v=w-hBBsyxLDI
121/365: The 2013 Edition www.flickr.com/groups/3652013/
365 Canada - www.flickr.com/groups/1027862@N23/
15. Droplets or dew 113 pictures in 2013 www.flickr.com/groups/2107611@N24/
25. today- pledge to kiss goodbye- a new group started by Palo www.flickr.com/photos/paloetic/ - make multiple sclerosis a thing of the past - www.flickr.com/groups/pledgetokissgoodbye/
Thanks so much for your wonderful visits they are much appreciated!!
Very soon after my transplant I began to notice unexpected changes: within 24 hours the double vision I had was going away rapidly. Within days I was able to clearly distinguish hot from cold, it became easier to tie my shoes, my overall movement improved, my appetite improved, my overall attitude was better. Most importantly, my cognitive ability was vastly improving.
I took this photo a few days before my transplant thinking I’d play with it later. Not long after my transplant I saw this image on my phone and knew EXACLY what I needed to do (black and white, blue filter to add contrast to the shadows and to bring out the details in the gravel texture, etc.) and how it was going to look at the end. All of this in about a second.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
It's impossible to have this disease and not have your emotions affected by the ups and downs along the way. The emotional changes can be triggered anytime. Sadness, irritability, worries, anxiety, depression are all common. My experience with those mood changes started very subtle and happened within the past 2 years. First I realized some sort of sadness started. It started out of nowhere. It was like a grief and that was enough to change my mood completely. I remember my husband looking at me and saying, "What happened? You were great 5 minutes ago."
I started analyzing myself in order to identify how the mood change was triggered. Then I try to stop it from happening because I knew that it would ruin my day and upset people around me. I was determined to not allow it. I learned to read myself.
Anxiety is what affected me most. I had a counselor for a while and now I take medicine for it. I thought I'd go crazy. My mind was restless with thoughts, questions and worries about everything. A simple question such as "who am I?" would run around my mind an entire day. I wouldn't concentrate in anything else because of this one single question. I was afraid, nervous and terrified about losing my sanity. It was one of the worst experiences that I had. I looked for help. It's very important to be open about what's going on and not be afraid to ask for help. I had great doctors that helped me to go back to myself and life goes on.
First of all I hope the explanation isn't TMI.... no sooner had we arrived at Gnoll Country Park and Estate today that I had the sixth episode in 6 months of a little problem with my eyes called nystagmus. Last week when I saw my Clinical Nurse Specialist about this he asked me to describe it e.g. was it rolling, wavy, zig zaggy? but at the time I failed to come up with anything. Today however as I sat waiting for it to pass, I came up with the notion that it was akin to zoom burst photography but not half as bad as it looks here ( my Photoshops skills aren't that good😉 ) but wavy, moving lines on my peripheral vision.
I’m having a great deal of difficulty in writing these days. My fine motor skills in my dominant right side are not as good as they used to be. My left side is having to compensate.
Copyright © 2019 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Something else from the archive – this time we’re in the 1960s and this is my late close friend Martin, standing in front of Stonehenge.
What’s interesting about this image is the crude daubing of the ‘Ban the Bomb’ CND logo on the standing stones – no wonder the authorities roped off the area in 1977 and banned the public from walking among the monoliths. Not just because of basic vandalism like this, but also because visitors would scramble all over the site and climb the stones... and some people actually took chisels, no less, to extract their bit of these 5,000-year-old structures.
Anyway, back to Martin, who was my closest friend from our schooldays, and who died far too young in 2000 from a particularly virulent strain of multiple sclerosis. This photograph was taken shortly before the disease set in and confined him to a wheelchair for the rest of his life. All these years later, he’s still much missed.
We were convinced that her MS symptoms were flaring up. Yesterday, the neurologist said no. What she's experiencing may be explained by sleeplessness. He gave her something for restless leg syndrome.
We're thankful for people who know the options.
Today a huge crowd of us took part in the ‘MS Walk for Elaine’ whether they walked, strolled, wheelied or like myself scootered it along the prom at Aberafan. This was in memory of our dear friend ( pic in comments ) who passed away in 2020 and to raise funds for the #StopMSAppeal.
It was an emotional day because it was the first time since Lockdown that we’ve met most of our friends in the ‘real world’ instead of the virtual reality of ZOOM.
This is my life. I suffer from this. And it is so bad during the summer.
I wanted to share this with you all so that you understand that I am not flaking on purpose. I am doing my best. Both in sl, and mainly in rl.
Bare with me... only a few months left to hell.
My wife, who struggles with Multiple Sclerosis, walks along a paved trail at Brushy Lake Recreation & Picnic Area in the William B. Bankhead National Forest in North Alabama.
In honor of everyone who has suffered with MS, thanks to all my Flickr friends who supported me in the MS Bike Tour Down To The Sound. With your help, I raised $500 for the National MS Society!
Next year, I swear I really will move on to one of the longer routes!
Highest position on Explore: #48!
pluck up the oourage, pucker up and through awareness and support Kiss Goodbye to Multiple Sclerosis.
Share a photos to my Pledge to Kiss Goodbye group and you will boost my personal pledge to MS Australia to support research into this disease that significantly affects not just the individual but their families.
Due to your support, my pledge currently totals $65.10
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This image is part of a private collection from Dragon Papillon Photography and is protected under Australian and International copyright laws. Copying, duplicating, sharing or saving as a digital file, printing, manipulating, transmitting or reproducing this image without written permission from Dragon Papillon Photography is strictly forbidden and would constitute a breach of copyright.
Website: www.dragonpapillon.com or follow us on facebook
“I asked God for strength that I might achieve. I was made weak that I might learn humility. I asked for health that I might do greater things. I was given infirmity that I might do better things. I asked for riches that I might be happy. I was given poverty that I might be wise. I asked for power that I might have the praise of men. I was given weakness that I might feel the need of God. I asked for all things that I might enjoy life. I was given life that I might enjoy all things. I got nothing that I asked for, but everything I hoped for. Almost despite myself, my unspoken prayers were answered. I am most richly blessed.” (source unknown)
The Kiss Goodbye to MS daily photo challenge has given me such a wonderful opportunity to post images to raise awareness, share words I have rarely spoken since diagnosis, to read heartfelt words from others as they share their support and stories of chronic illness. There are many unspoken words ... there are feelings inside me right now that have no words.
My current pledge is $325.50
Share an image with the pledge to kiss goodbye group. You will help to raise awareness while boosting my personal donation to MS Australia at the end of this month.
Donate to my fund raiser's page Palo's Pledge. All funds go directly to MS Australia to further research and to provide service to those affected by MS.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
It's the struggle to concentrate. Forgetfulness. Difficulty to solve problems. You lose track of conversations. Tasks that are simple can be difficult. Things you knew by heart get lost. It's like when making a simple old recipe I have to remind myself of each step, reading over and over again every line until it's done. I started experiencing Brain Fog sometime after my diagnosis. The signs were subtle and it took a while to realize that something had changed. Following directions, confusion to understand what I'm reading, forgetfulness, getting lost in the middle of conversations are part of my struggle. There are several moments I find myself in a conversation and suddenly my mind drags me to another place. My body is there. There's eye contact, but my mind is not there. The connection between me and the other person is slow. Sometimes it makes me feel embarrassed to ask people what we were talking about. Somehow I was present, but not present. It's like the mind is full of infinite boxes, one inside the other. The strangeness of this disease made me question myself about anything and everything in silence.
One of the things that was very important to me was the tour of Puebla that we patients got, in between the chemo treatments which was provided by our very cool drivers. Even though we had to stay in the van, due to COVID, it was still important for our mental health to be out and about. And a great reminder that we are all connected to this world.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
The Kiss Goodbye to Multiple Sclerosis campaign closes out on the theme - MS Awareness. I have been humbled by this experience and the ways in which I have been supported to raise awareness about this disease.
With my deepest gratitude, I pay my respects to:
each of you that has followed this campaign - your words of encouragement, sharing your deeply personal stories and the way in which you have supported my pledge through your views, comments and faves. With one day of viewing left, my pledge is $759.60. I will announce the final result tomorrow at the end of the international day for 31 May 2013.
each of you that helped to raise awareness through the pledge to kiss goodbye group. So many beautiful pictures, so much creativity! Based on a count yesterday afternoon, the 382 photos there have received over 44 thousand views. Can we make it 400 photos by the end of the day? In some countries around the world, the group even appeared on the front page of yahoo. Raising awareness can be done through small individual actions - if there was ever a reason to believe that change can be made though the collective power of an individual's small action then this is one example.
to those of you who extended your generosity by making a donation to my fund raising page. Thank you does not cover my appreciation enough.
to Marty and M8 who are my pillars of support in sickness and in health.
and finally I pay my respects to my disease that has taught me so much about life. Multiple sclerosis has given me such an awareness about what is important for this day, and in this moment - and for those reasons, I consider myself truly blessed.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
Happy Christmas to all our Flickr Friends from Angela & Max!
- Buona Natale a tutti gli amici di Flickr!
P.S.: Max e io, siamo da oltre un anno, Volontari anche per AISM sezione di Biella.
Associazione italiana Sclerosi Mutlipla
Mambo è il nuovo peluche che trovate nelle sezioni AISM in Italia. Il ricavato servirà alla ricerca, come anche le stelline.
© ANGELA LOBEFARO 2019
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30th May 2022
Palazzo Montecitorio, in Rome and the seat of the Italian Chamber of Deputies.
World MS Day which takes place every May 30 in 70 countries around the world,
saw AISM with its Foundation protagonist in the Chamber of Deputies in a morning that saw together all the main actors involved in Multiple Sclerosis, from the institutions to the members of the AISM movement.
La Giornata Mondiale della SM che si svolge ogni 30 maggio in 70 Paesi in tutto il mondo,
ha visto AISM con la sua Fondazione protagonista alla Camera dei Deputati in una mattinata che ha visto insieme tutti i principali attori coinvolti nella Sclerosi Multipla, dalle istituzioni, ai componenti del movimento AISM.
©Angela Lobefaro 2022
ALL Rights Reserved
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Dear MS,
You have short-circuited your way into so many lives. Regardless of your embrace, I SHARE their wish. I DARE to live life well! I will WEAR high heels and dance again! So there is nothing personal when I say, I choose to walk on by and KISS YOU GODDBYE.
How you can help to Kiss Goodbye to Multiple Sclerosis
By donating directly to MS Australia on my fund raiser's page Palo's Pledge.
Posting an an image showing support to my pledge to kiss goodbye group. In doing so you help to raise awareness while boosting my personal donation to MS Australia at the end of this month.
By simply viewing this image you are making a contribution. My personal donation currently totals : $215.80
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
10 Years Full Circle At Circles With Circle Of Friends & Loved Ones - IMRAN™
It was exactly 10 years ago in April 2012 that I had first found and made an offer on what became my blessed home in Apollo Beach for the last decade. I did not know Jaci Stone or her amazing husband Mark at the time.
During my homes search Jaci's name was one of the random three realtors that Zillows showed with the listing. I recall typing a short message expressing an interest in the houses in that area, and asking Jaci to be the realtor to show me around.
During the early round of homes-exploring, Jaci had brought me to lunch at this place called Circles Waterfront, in Apollo Beach, right on the water. She told me I woiuld love coming here once I lived here. She was right.
Over the next many months of seeing homes in addition to the really complicated ups and downs of negotiating the deal on my home, she brought me there twice again. I also met an interesting friend here Dene when she and her friend were sitting on the table next to us at lunch.
During one home-buying trip Mark and I realized we both enjoyed Taco Bell too. But I do not plan to do a Taco Bell dinner wiith them. LOL. By that time later in 2012, even though the home deal was not finalized, Jaci and Mark became more like family friends than realtors to me.
Jaci is an amazing realtor. I am so glad I connected with her. She relentlessly pursued closing the deal until it was done. By the grace of God, the purchase completed successfully and I am blessed to call my Symphony Isles place home for a decade now.
We have remained in touch over the last decade. My beautiful darling Shannon, who is an amazing school teacher, also happens to be a realtor.
I told her I wanted to take Jaci and Mark to dinner at Circles to go full circle on ten years of their being in my circle of friends.
Shannon, looking fabulous as usual in whatever she wears, loved meeting them. She too was amazed by their incredible positive and full-of-life attitudes. The genuine smiles and joy despite some severe health challenges they had both faced are so inspiring. They have continued to enjoy the adventure of life - with Jaci also adding being a fire-walker to her life experiences. That is one walk I am not planning to do.
We loved our dinner, and loved their company. Until we meet again, at Circles, stay smiling Jaci and Mark.
© 2022 IMRAN™
At the time of posting, my pledge tally is $22.20 - thank you all for your support and comments.
Wearing red can give us a sense of power. There are times when living with multiple sclerosis, I feel completely powerless. By supporting the Kiss Goodbye to Multiple Sclerosis campaign, we are restoring a sense of power to those directly and indirectly affected by the disease.
If you would like to offer further support in raising awareness of Multiple Sclerosis, join Pledge to Kiss Goodbye and share a photo related to one of the themes. Go to the group for more details and information about my pledge to this worthy cause.
In the spirit of collaboration, the photo was taken by Marty and edited by me.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This image is part of a private collection from Dragon Papillon Photography and is protected under Australian and International copyright laws. Copying, duplicating, sharing or saving as a digital file, printing, manipulating, transmitting or reproducing this image without written permission from Dragon Papillon Photography is strictly forbidden and would constitute a breach of copyright.
Website: www.dragonpapillon.com or follow us on facebook
I had a whopping great big surprise yesterday when the postman delivered something from Interflora. It turned out to be this – a retirement gift from the information team at MS Society UK London. I’d emailed the team at the end of May to inform them that I was retiring but never ever did I expect this from them. Gobsmacked is understatement and it left me with a great deal of something that I mention myself in one of their Information booklets – a symptom which is known as Emotional Lability or the Pseudobulbar effect, which in my case alone causes me to burst out crying out of joy.
To knock it out of my system, we drove to Mumbles and had lunch in Verdis.
For today's Kiss Goodbye to MS photo challenge, I am going back to my youth and reliving some happy memories. I used to be as passionate about dance as I am today about photography. In dance I used to find ways to express myself and my emotions, and the physical exercise helped to focus my mind and calm my soul. Today, I use the camera in a similar way ... these are my old ballet shoes, tattered and torn and when I take them out of their "special box" my feet still itch to put them on ... I wish I could kiss goodbye to MS.
8 days left to share and image with the pledge to kiss goodbye group to help raise awareness about MS.
I also have a fund raising page, Palo's Pledge, that accepts donations on behalf of MS Australia to further research into this disease.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.