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Well - yes, that's me - and it's the first photo of me on "golden wheels".....

Some of you know, but many of you don't: I am a bit handicapped caused by MS...

 

At home I refuse to use any helping tools like that but outside I need my little helper...

I can walk a few steps still - which differs: sometimes it's 5-10 meters only and sometimes even 100 - wowww!

 

Yet: it's always me - with or without my wheelchair - and I wouldn't wish to be reduced to those wheels.........

 

I'm the same as I always was.... only my weight increased - due to lack of sports, you'd bet....... ;-)

 

Yess - it's me - So... smile with me....

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Some of the symptoms I’m experiencing is that lights are difficult to look at because they are too bright and sounds are too loud.

 

Copyright © 2020 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Bindhu Pamarthi, Michael Steele. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Lara Ewen was happy to let go of her "jar of sharps", the two-inch needles she self-injected intramuscularly every week for years, & her last unused dose of Avonex, a manufactured interferon beta that ultimately failed to slow the onset of her MS.

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

I’m either sick or very sick. Nothing in between. I’m just now getting over a cold and having some tea just before I go in for MRIs and physical therapy.

 

Copyright © 2019 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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A macro shot of the needle that injected Copaxone, an MS-fighting drug, into Janice's hip last night. Daily shots help to ward off the development of hardened areas in the brain, and therefore, exacerbations.

 

Here, a tiny drop of the clear medicine remains on the point of the needle. BTW, the blue injector is resting on a blanket.

Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Rep. Langevin says hello to members and friends of the MS Dream Center.

Determination means so much.

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

I'd already taken my photo a day for Flickr but resisted uploading because I'd hoped that we'd get a visit at our local Twocann Tuesdays MS Support Group from Stuart Nixon who was recently awared an MBE for his work for the MS Society UK. To me he's the most inspirational person I know to those living with, or affected by MS (Multiple Sclersosis) Check out what he did to celebrate the MS Society's 60th birthday ...

 

www.mssociety.org.uk/ms-news/2013/10/stu-steps-60km-9-day...

 

His pride in the award is a tribute to his achievements and, as he is the first to acknowledge, reflects the hard work done by all those affected by MS .

Stuart has also been given a new role within the MS Society as Ambassador for the MS Society. This is a completely new role at the MS Society and one which will allow the Society to continue to benefit from Stuart's unique blend of passion, commitment and knowledge.

 

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

I took these photographs as my statement of hope. If I can be 36wks pregnant and still have access to medication that may help ameliorate my disease, then maybe someday I won't have this disease at all. I hope they motivate and inspire others with MS too.

 

Please leave a comment or two!

April Delaney, Jennifer Whipp, Jamie Dorros. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Apres Ski at Chambre Neuf

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

March has been proclaimed Mental Retardation and Developmental Disabilities (MRDD) Month and Multiple Sclerosis Awareness Month by Carroll County Commissioners.

Commissioners Larry Garner, Doyle Hawk and Thomas Wheaton signed the proclamation declaring March 2009 as MRDD Month. The Carroll Hills Workshop and School is Carroll County’s program which serves infants, pre-schoolers, school age students and adults who have mental retardation and other developmental disabilities. The Carroll Hills program has adopted the theme “Just Like You” for its month-long celebration.

 

Ed Hale, a county resident stricken with Multiple Sclerosis (MS), presented a proclamation to commissioners declaring March as Multiple Sclerosis Awareness Month. MS is a chronic often disabling disease that attacks the central nervous system affecting young to middle-aged adults. Most people are diagnosed with MS between the ages of 20-50.

 

To the Editor:

I live in Carrollton and I am raising awareness for Multiple Sclerosis. No one has chosen to live with MS, it has chosen us and we do choose to fight it. I am asking you to join me in the fight against MS during MS Awareness Month and throughout the year to make sure the voices of everyone connected to MS are being heard.

 

On March 2, I took the initiative to attend the Carroll County Commissioners meeting and made them aware of this. In return, they have chosen to accept the proclamation I constructed and recognized Carroll County, being one of the 88 counties, that March is MS Awareness Month in the state of Ohio as signed into law by former Governor Robert Taft March 2, 2006.

 

Our bodies are in constant motion, moving information from the brain to the body. MS stops people from moving by attacking the myelin that protects normal nerve tissue. The damage keeps people from moving smoothly, both inside and out. Many have trouble imagining what their lives would be without the ability to move, but I know the effects of MS and I have MS.

 

If you have multiple sclerosis, if you know someone who has MS, or if you want to help the 18,000 Ohioans who battle the disease every day, I ask for your help in raising awareness. We fight MS because this is one battle we can and should win. We fight MS right now so that future generations won’t have to. If you know someone who has MS, call them on the phone or just stop in for a visit to see how they are doing and show your support. To borrow a famous company slogan from AT&T “Reach out and touch someone.” You may just make a difference in their life.

 

Information on MS and awareness events can be located at the National Multiple Sclerosis, Ohio Chapter, website at www.nationalmssociety.org/chapters/OH.

 

Edward L. Hale

Carrollton, Ohio

 

(Photo from News Leader, Editor Kim Lewis)

Carol Clarke, Shea Mullen, Devereaux Raskauskas. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Listen: Year Zero by Ghost

 

5 years ago, at 12:09 PM, I received my stem cells. I still struggle every day. Am WAY better though. The alternative would’ve been… dire.

I’ll never have to ask:

“What if…”

 

© Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

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2012 MS Anual Meeting

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Here's Nila (who has Multiple Sclerosis) at the Fairview MS Achievement Center strutting her stuff in a EasyStand StrapStand.

After 2 days of cancelled flights, we decided to up the ante. We called in the Russians and flew into Lukla in style!

The suprisingly loud snoring and irritatingly good skier award - Robbie Hardy

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

One of the test shots from today's MS Society Cymru's Living with MS Events taken to test the light and see which White Balance Setting was best before subsequently photo'ing the speakers

(www.mudrun.ie)

 

is a different kind of challenge that will leave you dirty, muddy and SMILING. It’s a fun event for people of all fitness levels from serious athletes to first-timers – all you need is a sense of adventure!

 

Charity | Irelands first ever Mud Run is being organized in aid of Multiple Sclerosis Society of Ireland (www.ms-society.ie)

A capital portuguesa foi palco, no último domingo, de mais uma edição da gigantesca prova da Rock 'n' Roll Maratona de Lisboa EDP. Com dezenas de milhares de participantes distribuídos por três distâncias (42, 21 e 6 quilómetros), as cores vibrantes da superação de quem corre encheram as ruas de Lisboa. A equipa EM'Força esteve, pelo segundo ano consecutivo, presente no acompanhamento dos nossos atletas e contámos com 35 participantes. Um número fabuloso!

 

Na distância principal, foram vários os estreantes da Maratona. Os 42 quilómetros e 195 metros continuam a ser o grande chamariz de quem corre e isso não mudou na edição de 2015. Com um total de 17 participantes nesta distância, tivemos 16 atletas a terminar a prova (apenas o João Dias não conseguiu terminar, devido a uma lesão) e a somarem mais uma grande conquista.

 

O grande destaque vai, claro, para a segunda Maratona do nosso Alexandre Dias. Com Esclerose Múltipla há já vários anos, em 2014 abraçou este desafio pela primeira vez e agora está a triplicar a meta: três maratonas num mês. A primeira foi esta, em Lisboa; a segunda será já este domingo, em Frankfurt; e a terceira está guardada para a reedição da conquista de 2014, no Porto, no início de novembro.

 

A acompanhá-lo nesta prova, tivemos os seguintes atletas, a quem agradecemos por toda a solidariedade e endereçamos os parabéns por esta grande conquista: Antônio Nascimento, Carlos Grade, Daniel Ramos, Dário Ferreira, Duarte Pinheiro, Edgar Trigo, Jorge Manuel Silva, Luís Graça, Marta Andrade, Paulo Alves, Paulo Duarte, Paulo Ferreira, Pedro Jaime, Renato Marques e Sandra Carvalho.

 

Meia Maratona

Também na distância da meia maratona a festa das camisolas Mágicas foi em grande. Com uma participação de 14 atletas, as conquistas impressionaram pela superação dos nossos rostos solidários. A vestir a Mágica pela terceira vez numa prova desta distância este ano, o nosso Pedro Braga (com Esclerose Múltipla) igualou a marca dos 99 quilómetros pela EM'Força com mais uma grande prova.

 

De camisola Mágica ao peito, tivemos outros 13 atletas a somarem os 21 quilómetros da Ponte Vasco da Gama, a quem agradecemos toda a solidariedade: Amélia Martins, António Pedro Teixeira, Carlos Ferreira, Cláudia Rato, Eládio Manuel, João Filipe Lourenço, Júlio Verde, Margarida Santos, Paulo Gandum, Ricardo Ferreira, Ricardo Valente e Tiago Sendim.

 

Mini Maratona

Na distância mais curta, da travessia da Ponte Vasco da Gama em 6 quilómetros, contámos com 4 atletas a vestir a camisola Mágica, dois deles com Esclerose Múltipla: o José Martins e a Luísa Matias. Como uma conquista não vem só, os dois já estão com os olhos postos na Corrida do Montepio do próximo domingo. Também na Mini, tivemos os contributos da Maria João Valentim e da Paula Figueiredo.

 

Foto: Pedro Filipe Godinho.

 

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April Delaney, Mariela Trager, Laurie Monahan. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

The Madam Faff, dark horse skier, bit of a bandit award - Sarah Burgess

It's odd to me to think of a world without MS, as it's always been a part of my life. My mom, Sherry, was diagnosed with MS shortly after my birth. While I don't have any recollection of her first attack, I do remember various relapses from her remission througout the years. For a period of time in grade school, my mom was basically bed-ridden and couldn't drive, and she suffered a similar attack during my sophomore year in high school.

 

Through it all, my mom has proven to be strong beyond belief. She always did her best not to let MS get the better of her. There were times when I forgot my mom was sick because she worked so hard to make her family's life as normal as possible. Even now, she spends many days keeping up with two young grandkids who have little awareness their "Nana" struggles with the daily symptoms of this terrible disease.

 

I can't fight my mom's battle, but I can help find a cure. I ride in recognition of this amazing woman's battle, and I ride becuase we can make sure that others don't have to ever fight it.

 

My mom isn't the only person close to me affected by MS. I'm also riding in honor of Donna Sallen, my aunt. Jennifer Kurtz, my co-worker and friend. Lee Ann Stark, my friend Cheryl's mom.

 

Why You Should Sponsor Me

 

The National Multiple Sclerosis Society will use funds collected from the Bike MS: Harmons Best Dam Bike Ride to not only support research for a cure tomorrow, but also to provide programs which address the needs of people living with MS today. Because we can fight this disease by simply riding a bike, because we have chosen to help thousands of people through a contribution to the Bike MS: Harmons Best Dam Bike Ride , we are now getting closer to the hour when no one will have to hear the words, "You have MS."

 

Please click here to make a small donation to the cause

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