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Life has its “Ups” and life has its DOWNs”
Life has its “HIGHs” and life has its “LOWs”
Life has its “EXPECTED” and life has its “UNEXPECTED”
And this all seemed to happen to me all at once like a whirlwind.
October 15, 2015 I brought a beautiful baby girl, Amelia Princess-Angel Clarke into this world (this blessing was EXPECTED); it was one of those HIGHs before I even knew that an UNEXPECTED journey was about to begin.
In the following months, I started feeling changes in my body and I couldn’t pinpoint the problem. I kept working as well as being a mother of a toddler and a teenager. I ignored signs & symptoms, I took my memory loss and excused it by claiming that it was only “baby brain”. My energy was low but that was to be expected from any woman juggling a career & a family. Tired then turned into lethargic where I couldn’t get out of bed on some days and projects started to get backed up, and this wasn’t like me. I kept this all to myself, still thinking that this would pass.
It all started in March of 2016 when I began to feel strange sensations in my arm/leg that would not go away. So, I just popped into an Urgent Care thinking that there was a quick & simple fix to the problem. Tests & bloodwork; more bloodwork & more tests but no real answer; from Urgent Care to my primary doctor who immediately started a plan of care which also consisted of tests & bloodwork; from my primary doctor to Neurologist #1. Sitting in waiting rooms…waiting for good news while fearing bad news. As I met with Neurologist #1, I felt a coldness from him. Here my life was taking a drastic turn for the worst but I wasn’t feeling the empathy from him that I needed. He gave lots of information & used a multitude of big, technical, medical jargon. I couldn’t remember anything that he said once the appointment was done. X-rays…MRI’s..fighting the unknown until it happened…the “UNEXPECTED”. A diagnosis of MS. What? MS? Me? NO!
Lara Ewen was happy to let go of her "jar of sharps", the two-inch needles she self-injected intramuscularly every week for years, & her last unused dose of Avonex, a manufactured interferon beta that ultimately failed to slow the onset of her MS.
It feels really good to be home again.
The day after I got back my wife made me pancakes, bacon, and lots of coffee.
Been home over 2 months now and healing. It’s gonna take a while and I’m ok with that.
Gonna go one more time around.
As I’m fond of saying to my students:
“Thus endeth the lesson”
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Aidan Larkin, MS Ireland, Professor Mary O’Sullivan, Dean, Faculty of Education and Health Science at University College Limerick, Anne Winslow, Chief Executive of MS Ireland, Professor Don Barry, University College Limerick, President Allen O’Connor Chairman, MS Ireland and Dr. Susan Coote, University College Limerick.
23rd May 2011. MS Ireland, the services, research and information society for people with multiple sclerosis, and The University of Limerick (UL), is delighted to announce the signing of a new memorandum of understanding to mark World MS Day Wednesday May 25th 2011. Together with MS Ireland, UL will conduct evidence based research into various aspects of MS, and increase understanding among students, health professionals and those with or affected by MS, a progressive neurological condition.
Currently collaborative research is taking place across a number of UL departments including, physiotherapy, sports science, electronic and computer engineering and under this new agreement further research is set to commence within the areas of clinical psychology, adapted physical activity and exercise and fitness. Product design faculty and students have been involved with MS Ireland to develop products based on the needs of those living with MS and computer engineers at UL have been involved in work on falls and activity monitors, while occupational therapy researchers and students have completed projects on fatigue management.
Multiple Sklerose unterbricht die Nervenbahne. Zu den Folgen gehören Kontrollverlust und Schmerz.
“Multiple sclerosis interrupts the nerve racts. Multiple Sklerose Gesellschaft Schweiz”
Read more:
osocio.org/message/multiple_sclerosis_interrupts_the_nerv...
Well - yes, that's me - and it's the first photo of me on "golden wheels".....
Some of you know, but many of you don't: I am a bit handicapped caused by MS...
At home I refuse to use any helping tools like that but outside I need my little helper...
I can walk a few steps still - which differs: sometimes it's 5-10 meters only and sometimes even 100 - wowww!
Yet: it's always me - with or without my wheelchair - and I wouldn't wish to be reduced to those wheels.........
I'm the same as I always was.... only my weight increased - due to lack of sports, you'd bet....... ;-)
Yess - it's me - So... smile with me....
Bindhu Pamarthi, Michael Steele. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
I'd already taken my photo a day for Flickr but resisted uploading because I'd hoped that we'd get a visit at our local Twocann Tuesdays MS Support Group from Stuart Nixon who was recently awared an MBE for his work for the MS Society UK. To me he's the most inspirational person I know to those living with, or affected by MS (Multiple Sclersosis) Check out what he did to celebrate the MS Society's 60th birthday ...
www.mssociety.org.uk/ms-news/2013/10/stu-steps-60km-9-day...
His pride in the award is a tribute to his achievements and, as he is the first to acknowledge, reflects the hard work done by all those affected by MS .
Stuart has also been given a new role within the MS Society as Ambassador for the MS Society. This is a completely new role at the MS Society and one which will allow the Society to continue to benefit from Stuart's unique blend of passion, commitment and knowledge.
Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
April Delaney, Jennifer Whipp, Jamie Dorros. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Carol Clarke, Shea Mullen, Devereaux Raskauskas. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Here's Nila (who has Multiple Sclerosis) at the Fairview MS Achievement Center strutting her stuff in a EasyStand StrapStand.
After 2 days of cancelled flights, we decided to up the ante. We called in the Russians and flew into Lukla in style!
Today marks the 6th month post HSCT and I can now go outside whenever and eat a wide variety of foods.… like fresh fruit. I decided to start with a vanilla milkshake }:-)
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.