View allAll Photos Tagged multiplesclerosis
One of the things that every 3D artist must know is UV mapping. Imagine taking a shirt apart at the seams, repainting it, then putting it back together so that the seams are hidden. It can be a very technical aspect of 3D. Most 3D artists hate it. I love it. It’s like making a jigsaw puzzle in reverse.
Yesterday, my son was talking to my wife about a planter we have. I don’t remember the conversation, my mind had drifted, and imagined this planter as a 3D object. I was able to determine where the seams would go, how it would unfold, saw the textures needed, even optimized the size of the textures for speed of loading the object. All within the span of a few seconds! I began to cry with joy after I realized what my brain did. It’s a skill that was lost to me due to my MS. It will take time to hone that skill again. And that’s ok.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Listen: King of Pain by The Police
One year ago today I got my diagnosis (dx) of multiple sclerosis.
I didn't know that the pain I feel could exist.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Service-dog-in-training, Bogie, waits for Janice to call him in this first encounter with his potential "partner."
At the end of the day, we were asked to rank the dogs we had met from the one we liked best. For Janice and me, it was Bogie. We liked his assertiveness and his eagerness to work. The staff need to make the final decision, if a match is to be made this time around. But, it was fun -- and difficult! -- to state our preference.
This is a pseudo-colored image of high-resolution gradient-echo MRI scan of a fixed cerebral hemisphere from a person with multiple sclerosis.
Credit: Govind Bhagavatheeshwaran, Daniel Reich, National Institute of Neurological Disorders and Stroke, National Institutes of Health
A trainer straps a harness to Timber, a service-dog-in-training. Janice and I returned, today, to Susquehanna Service Dogs, where my wife is on a waiting list. The dog she receives will help her with things like balance, picking up objects, and even responding to a command like "Go find John!"
Today, Janice met three potential matches for her, including this strapping young man. I'm still editing photos from our trip; I'll post more tomorrow!
For everyone who took the time to read my story yesterday, thank you. No words today ... the theme for today's Kiss Goodbye to Multiple Sclerosis is a red building. This is the "red box" or Physical Theatre in Lilyfield. Posting this image does not suggest a relationship or association between MS Australia and the Theatre.
My current pledge is $303.75
Share an image with the pledge to kiss goodbye group. You will help to raise awareness while boosting my personal donation to MS Australia at the end of this month.
Donate to my fund raiser's page Palo's Pledge. All funds go directly to MS Australia to further research and to provide service to those affected by MS.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
A couple of years ago I was diagnosed with multiple sclerosis. This is my daily treatment that will hopefully slow down (or stop) the progression of the disease.
This is a pseudo-colored image of high-resolution gradient-echo MRI scan of a fixed cerebral hemisphere from a person with multiple sclerosis.
Credit: Govind Bhagavatheeshwaran, Daniel Reich, National Institute of Neurological Disorders and Stroke, National Institutes of Health
One of the worst things I've experienced since my MS diagnosis is doing nothing. Merely existing. Unable to help.
Unable to do anything.
Copyright © 2019 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
I was hesitant in choosing this for today's Photo a Day for fear of it being construed as bragging, so I double checked lunchtime with Huw who happens to be in Birmingham today.
Last night when I turned up for our MS fundraising group meeting followed by a Support Group meeting , the four of us who make up the group were given these awards by the Director of MS Cymru. If you look closely it's for the £5000 which we donated to research alone last month . We only started this group less than three years ago but in those three years we've raised over £20,000 in total ( distributed where it's needed ) Events have included Sky Diving, Charity Dinners, 10 k runs - you name it. I'd hoped to do the Velocity Zipwire in Bethesda myself on June 8th but there's another event that I'm to be at.
I don't know where to put it though so for the sake of the photo I moved my laptop from my desk and placed it there..... and cleared some dirty mugs away ;-)
Lovely husband just sent me this 😳 Luckily those on iPads won’t see the ‘live ‘ link 😉
"If you must tell me your opinions, tell me what you believe in. I have plenty of doubts of my own." (Johann Wolfgang von Goethe)
For those who do not know me very well, how this image relates to opinion may be obtuse. I have given it an alternative title "pins and needles and pills" and this brief explanation.
Yesterday I finally got to see my neurologist after a two month wait. For the past two months, I have had a significant relapse of my multiple sclerosis - the first major and physically debilitating episode in 7 years.
Since my last MRI, I have developed two new lesions on the left hemisphere of my brain - not great news but news enough to support my neurologists arguments that I should once again seriously consider one of the treatments available to potentially slow down the rate of relapses and progression of this disease.
After the initial diagnosis of MS, I had for a period of time injected betaferons but suffered from significant side effects and decided to stop the treatment. The options open now are another form of injections that are daily or possibly a new oral pill which has recently become available in the last couple of years. Both options have their pros and cons ... and everyone seems to have an opinion.
The opinions of the medical experts tend to gloss over the harmful side effects, while researching for a second opinion on the web, there seem to be more horror stories than positive acclaims.
At the moment, I am working through my opinions ... as well as sifting through how my internal biases may be clouding or influencing my judgment. At the end of the day, there are two certainties -
(1) this disease is a part of my present and my future and
(2) I firmly believe that the brain has the power to heal itself and no drug will be as potent as that self positive belief in healing.
submitted to 100 words
68/100 words: opinion
© All rights reserved. 2012.
You'll see more of this vest in future photos. In preparation for our first trip back to Lehigh Valley Zoo, where I volunteer, we ordered Janice a cooling vest.
Great for people with multiple sclerosis, the vest's lining has slots for blister packs of water, frozen in our chest freezer. We'll insert the packs before we leave, put the vest in a cooler, and dress her with it when we reach the zoo.
Janice has multiple sclerosis, making her especially sensitive to the summer heat. Now, I'll be the one sweating and she'll be heat proof!
This very friendly dog captured much attention at the M.S. Walk in Hershey, PA. She walked the distance, then fell asleep quickly as her humans ate lunch.
Soon came the day that my stem cells would be collected. The machine was plugged into my PICC line and I sat for a few hours while my cells were harvested.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Wear red today to show your support.
Dare to wear nothing but red for the rest of this month to show your support.
Share an image with the pledge to kiss goodbye group. You will help to raise awareness while boosting my personal donation to MS Australia at the end of this month.
Donate to my fund raiser's page Palo's Pledge. All funds go directly to MS Australia to further research and to provide service to those affected by MS.
WARNING - tomorrow's post will contain quite a long story. Grab a coffee to enjoy while you read
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
I met several other patients and it was decided to have a hair cutting ceremony since everyone would loose their hair. The ceremony was cathartic.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
For years, I've been giving my wife an injection each evening.
With multiple sclerosis, the body's immune system attacks the myelin coating on the nerves. Copaxone serves as a decoy, attracting the body's defense system away from what it shouldn't be attacking in the first place.
All this time, I've been using a plastic, spring-loaded "auto injector" to administer her medication. Years of this practice has caused some trouble with her skin.
So, today a home health nurse came to the house and taught me to inject with only the syringe. I practiced on a device that simulates the resistance of human skin.
I have yet to sink a needle into another human being, manually. But, I am soon to be initiated! The nurse says it'll actually be less painful for Janice than the auto-injector's spring-forced assault.
And quieter.
Every day, we had our apartments cleaned, and the patients were invited to the garden roof to wait for the cleaning to finish, to get some sun, and participate in activities. Several times an artist, Monik, treated some of the patients to painting techniques. Even if they have not painted before ^_^
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
As the search for a cure and eventually to Kiss Goodbye to Multiple Sclerosis continues, my wish is for continued research into the role of Vitamin D in the onset and treatment of MS. To date, studies into Vitamin D are largely dismissed by the medical community and drug companies based on the lack of rigorous scientific protocols used in the studies, yet the anecdotal evidence of Vitamin D supplements from those inflicted with the disease grows.
As a side note ... if there is a link between Vitamin D and MS, it worries me that we have a generation of children and young adults that are not getting enough Vitamin D naturally from the sun in their formative years. If there is a link between Diet and MS, it worries me that we are raising a generation of children and young adults on highly processed foods with high concentrations of saturated fat. If there is a link between Chronic Stress and MS, it worries me that the next generation of children and young adults are living in a world of unprecedented stress without the resources and resilience to deal with this stress in helpful ways.
By sharing a photo to my Pledge to Kiss Goodbye group, you will boost my personal pledge to MS Australia this month.
Current pledge tally : $149.85
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This image is part of a private collection from Dragon Papillon Photography and is protected under Australian and International copyright laws. Copying, duplicating, sharing or saving as a digital file, printing, manipulating, transmitting or reproducing this image without written permission from Dragon Papillon Photography is strictly forbidden and would constitute a breach of copyright.
Website: www.dragonpapillon.com or follow us on facebook
A QUICK NOTE TO ALL MY CONTACTS!
As many of you already know I have gone into business as a photographer to try and see what I can do out there.
You may also know that all of my prints are for sale, and I am starting to list them at
What you may not know is that someone close to me suffers from a very serious illness that unfortunately far to many people suffer from.....Multiple Sclerosis
MS is a bizzarre illness that affects everyone who has it in a different way, and although they do not have a cure for it yet, they are getting closer every day.
As such I have decided to DONATE 100% of the profits form the sale of my artwork to the National MS Society.
So if you like one of my prints and would like to contribute you can get ahold of me via flickr mail for pricing. If you don't want to but a print but still would like to contribute you can visit the National MS Society here
www.nationalmssociety.org/about-multiple-sclerosis/index....
and click on the link on the right hand side to donate.
I know there are a lot of good issues out there to champion, but this is one I have decided to become personally involved in.
Thank you all in advance for your support
While I was in quarantine I experienced more ups and down moods in such a sort time than I ever had before.
It was the uncertainty that was awful.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Listen: This Corrosion by Sisters of Mercy
"I bled all I can, I won't bleed no more"
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Part of the 2002 Dartford MS Funday. Scooters were lent to allow people to race along the running track (at walking speed).
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
HEALTH
the golden inner glow
a state of mind
sometimes my body fails to function as it should
sometimes my body fails to respond as it should
my body will never be completely well again
but my illness does not define who I am, or who I can be
I am not my illness, and my illness is not me
as long as I can feel life is worth living
I will live life as well as I can, and for me that is healthy living.
Every comment, view and fave continues to bolster my pledge to MS Australia to support research efforts into this disease. Thank you for your continued support, your words, your stories, your photos.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
This is yours truly with my better three quarters, captured with my phone by a staff member at today’s MS Awards Ceremony in London.
‘Kiss Goodbye to MS ‘ is a fundraising challenge by the MS Society UK challenging people to give up something during the month of May. The aim of this is to raise money for research into the condition . Huw himself is giving eating up cheese ;-)
" Some 110,000 are diagnosed with MS across the UK, a neurological condition which creates a disability unique to the individual. There is no cure and so the MS Society for (which I volunteer) through its fundraising, supports research to provide disease modifying drugs, seek to find a cure whilst simultaneously providing support across the UK to all affected by MS"
I would love to use this as my Photo a Day but being a stickler for rules, as mentioned above I didn’t take it myself.
One of the things I took to heart was to do small things to advance myself while healing. What I didn’t know was that too manny small things have the opiate effect.
Now I’m paying for that.
With interest.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Neurology is a branch of medicine dealing with disorders of the nervous system. Neurology deals with the diagnosis and treatment of all categories of conditions and disease involving the central and peripheral nervous system including their coverings, blood vessels, and all effector tissue, such as muscle. Neurological practice relies heavily on the field of neuroscience, which is the scientific study of the nervous system.
Read about The ‘Giant’ Scope of ‘Mini’ Brains - bit.ly/2eEvDze
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
I have four legs, the two polka dot ones work a little more reliably than the other two. I won't be completely defined by the MS but it is a very large and influential part of my life. I thought I'd try and capture some of how my MS and I relate ;-)
One of Janice's favorite tee shirts. For her, it refers to the slowness that comes from multiple sclerosis. I'm glad she has a sense of humor!
Below the graphic, the shirt says, "We'll get there when we get there!"
I saw my MS specialist yesterday. All continues to improve. I talked to him about how I’m now shifting my weight when I walk. It’s super subtle. It’s a combination of physical therapy and what I learned in aikido.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
I’ve been standing on my toes every day, as a matter of health improvement (and because it still feels new). I decided to attempt to rock back on my heels, just to see if I could. I was amazed to find out I could rock back and forth from toes to heel, as long as I held to a stable item, like a chair, I was crying with joy because I have not been able to do that for several years. Amazing how simple things can fill me with joy
:-)
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.