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thivi by Rare Disease Day

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2017_SACE_Hands_Across_the_Sands_web-0217 by The Southern Alliance for Clean Energy

Hands Across the Sand Folly Beach 2017
Laura rocks KFS by Rare Disease Day

I was born with KFS. I found out when I was 16 and in a car accident.
Bringing Awareness to HLH by Rare Disease Day

In November 2013, Don McKenzie who was a loving father and husband died after receiving a heart transplant. A diagnosis of hemophagocytic lymphohistiocytosis came when it was too late. We would like to bring awareness to this and other rare diseases and show our support for those individuals and their families who are affected by them.

-Chrissy & Alex McKenzie
May 17, 2014 0096 by Dan Sheridan
Genetics Class Raising THEIR Hands! by Rare Disease Day

This genetics class raised their hands in their support of National Rare Disease Day!
Thomas - KFS by Rare Disease Day

Thomas was born with fused cervical bones in his neck, several abnormal vertebrae in his spine, with hearing loss, Duane Syndrome in his eyes and a few other things. He is a very active, smart young man who loves trains and the color Blue. His personality shines brightly in this world and he is a force to be reckoned with!
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
May 17, 2014 0085 by Dan Sheridan
Hip To Be Rare by Rare Disease Day

I wish to dedicate this photo in memory of my late mother and sister who both passed away due to a rare disease.
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Around the Spirit Camp," National Day of Action to Say #NoKXL, May 17, 2014, in Ideal, South Dakota. Photo by Kernit Grimshaw / Bold Nebraska

 

#NoKXL, #JoinHANDS
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Sandra stands up to Rare Disease! by Rare Disease Day

I fight Chiari, Ehlers-Danlos Syndrome, Klippel-Feil Sydrome, POTS, and more each day, and I am winning!
Tahoe Rare Unicorn by Rare Disease Day

I was diagnosed with Alpha-1 Antitrypsin Deficiency this past may along with fibromyalgia. This February I was told that my symptoms are are far beyond the fibromyalgia and that I have Reflex Sympathetic Dystrophy Syndrome or Complex Regional Pain Syndrome, which is the new name. My friends say I an a rare Tahoe Unicorn. I have been fighting for answers for over 8 years. I have included the link to the story of my battle that lead to my Alpha-1 diagnosis.

 

healthynv.org/life-changing-email-leads-personal-health-b...
Join Hands to help Nepal by Wildstar Beaumont
CSL: King of Prussia (PA) rIX-FP Team by Rare Disease Day

We raised hands showing IX fingers. CSL Supports Rare Disease Day!
We did it at least!!! by Rare Disease Day

Finally after 8 years of pain we are ok,Nico is out of his craniostenisis acute phase
Hands Across the Sand, #JoinHANDS to protest offshore oil drilling on St. Pete Beach by Robert Neff
Show Your Rare by Rare Disease Day

Show Your Rare face paint
Marika the Angel by Rare Disease Day

Marika was born with Lissenzephaly. (Smooth Brain)
CSL Supports Rare Disease Day! by Rare Disease Day

CSL Behring is a global leader in the plasma protein biotherapeutics industry. We research, develop, manufacture and market biotherapies that are used to treat serious and rare conditions. Users of our therapies rely on them for their quality of life and, in many cases, for life itself. Whether we are manufacturing and marketing safe and effective products or researching and developing innovative biotherapies, we are first and foremost focused on fulfilling our customers’ needs.
Cheerleaders Support Rare Disease Day by Rare Disease Day

Bella has a rare disease and her cheerleader friends support and raise their hands for Rare Disease Day
PIANTIAMO L ALBERO E APPENDIAMO LA TARGA FLASH MOB AISMAC CATANIA 2019 catania by Rare Disease Day

piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
flash mob AISMAC Catania italy by Rare Disease Day

Flash mob aismac 2018
May 17, 2014 0064 by Dan Sheridan
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
May 17, 2014 0104 by Dan Sheridan
2017_SACE_Hands_Across_the_Sands_web-0185 by The Southern Alliance for Clean Energy

Hands Across the Sand Folly Beach 2017
Cheryl's HOPE for KFS by Rare Disease Day

Cheryl advocates from Germany for www.facebook.com/KlippelFeilSyndromeFreedom
Join Hands to help Nepal by Wildstar Beaumont
May 17, 2014 0065 by Dan Sheridan
KIDS Albania in support of Rare Disease Day 2020 by Rare Disease Day

KIDS Albania a young persons advisory group with the mission to raise awareness and make the voice of children to be heard in healthcare, medicine and research is supporting for the 3rd year the Rare Disease Day!!
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
CSL Behring: Broadmeadows Hut 4 Residents by Rare Disease Day

Those in the photo are from CSL Behring IT, Finance and Quality. One of our Australian native trees is also joined riasing its hands in the photo. Its hands are a lot taller, though, so couldn’t feature them in this picture, just its beautifully two-toned trunk.
CSL Behring Canada employees raising their hands in support of patients with rare disease by Rare Disease Day

We feel proud and privileged to support patients with rare disease.
May 17, 2014 0070 by Dan Sheridan
Taylor's Tasty Truck by Healthy Gulf

The Solar Powered Food Truck, Empanada Intifada, made the event sustainably tasty!
CSL: CR&D Japan by Rare Disease Day

CSL Supports Rare Disease Day!
FLASH CATANIA by Rare Disease Day

Flash mob aismac catania piazza nettuno
Join Hands to help Nepal by Wildstar Beaumont
May 17, 2014 0068 by Dan Sheridan
Mom knows best! by Healthy Gulf
CSL: QC Microbiology team in Parkville by Rare Disease Day

CSL Supports Rare Disease Day!
Dad and kam fun day bowling by Rare Disease Day

Kamryn brumbeloe is 3 years old. At. 6 months , we were told she has Npc which no cure for this terrible disease . Although there are treatments to help. We help and support , nih can help her. Seem to be so unfair . Prayers, doctors, and medicine is our hope .
May 17, 2014 0052 by Dan Sheridan
CSL Behring, driven by our promises to patients by Rare Disease Day

Rare Disease Day is a good time to reflect CSL Behring Purpose and Values, especially our commitment to Patient Focus, and the positive impact that we make together on so many lives.

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