I've had CIDP for almost eight years now, but that doesn't mean I'll give up. I'm still hoping for a remission but it hasn't happened yet, but it will because I have faith and a positive attitude.

Gary Springman

Hi!

As most of you know Nepal is now having a very rough time after the earthquakes that hit them this year, many lost everything and everyone and need our help to rebuild their lives and country that's why the Join Hands organization has partner with World Food Program which is the Asian branch of the UN organization.

JOIN HANDS FOR NEPAL - organized by a group of Second Life© residents - is supporting WFP in their mission and provide one of the most basic needs of human survival to those impacted by this massive calamity in Nepal - FOOD.

The activities to raise funds include:

* May 13th @ 1PM SLT - Fashion Showcase by SCALA™Models

* From May 13th to May 16th, all outfits donated by all designers that joined this event and will be for sale at Indian Paradise sim.

* Celebration with several parties and DJs through the days of the event.

We need to fill the space with your positive energy and joy, in all our endeavor to help and succeed in doing so, with your generosity.

* Closing Party: May 16th with SCALA™ DJ - Seashell Dench.

For this fund raising TASHI donated 2 items and the proceeds will be donated 100% to Join Hands for Nepal

The first item is TASHI Tory a mesh dress that comes in 3 colors and HUD to change the colors

The Second Item is TASHI Spring a nail polish for Slink it comes with 5 options to choose from

So please join us at this event to give a hand to the people in need at Nepal

SLURL of JOIN HANDS FOR NEPAL maps.secondlife.com/secondlife/Indian%20Paradise/127/183/...

Thank you!

Shinya Tandino

Tashi Owner

Main Store: maps.secondlife.com/secondlife/Soul%20Explosion/239/4/22

Marketplace store: marketplace.secondlife.com/stores/4440

Flickr: www.flickr.com/photos/tashistore/

Flickr group: www.flickr.com/groups/tashigroup/

Website: tashisl.wordpress.com/

Facebook Page: www.facebook.com/tashisl

Group: secondlife:///app/group/0ed5a4fe-271d-a9ca-336e-ad1f16104c1b/about

Twitter: twitter.com/TashiSL

Pinterest: www.pinterest.com/tashistore/

Gli amici di Grazia per le malattie rare da Bergamo - Atrofia Multisistemica C

El despacho de Addvante de Madrid, apoyando el dia de las enfermedades raras.

environment.change.org/petitions/view/sos_from_borneo_say...

Ginevra's classmates at I.C. MARGHERITA HACK school join and raise hands for Pitt Hopkins on #RDD2017.

hands across the sand, an event organised by the wilderness society, south australia

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

semaphore foreshore reserve and beach, adelaide, south australia

hands across the sand

#BP_BIGRISKS

#joinHANDS

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

Ethan 5 ans est porteur d'une délétion 22q11. Il est le quatrième de sa fratrie et le seul touché... Nous joignons nos mains tous les 6 pour porter notre petit rayon de soleil <3

I was diagnosed with Ehlers-Danlos after 12 years of searching for an answer.

*Join the International Online Community for people living with Ehlers-Danlos syndrome: www.rareconnect.org/en/community/ehlers-danlos-syndrome

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

Giuseppe, trisomia 9 a mosaico , cono agli amici per la giornata delle malattie rare 2015

LAND lebanese association for neuromuscular disease

My son, Maris Paul and myself - he is 9 months SWCAH.

La Polisportiva Trocedo per la giornata delle malattie rare

From NY, NY, Mark Krueger & Associates shows its support for Rare Disease Day

Diagnosed in May of 2012

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

For Rare disease day I made a movie, about my story with Ehlers Danlos and Gastroparesis.

The movie is in Dutch, if you speak Dutch and want

to watch it, you can see it here: youtu.be/O8--uaTTeQI

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

My daughter, MichaelAnn has a rare disease, Beta-Propeller Protein Associated Neurodegeneration (BPAN) approximately 50 diagnosed worldwide.

Joining our hands to show our solidarity with patients with all types of rare diseases

Amici di Sonia, trisomia 9 a mosaico, per la giornata per le malattie rare 2015

Hi!

As most of you know Nepal is now having a very rough time after the earthquakes that hit them this year, many lost everything and everyone and need our help to rebuild their lives and country that's why the Join Hands organization has partner with World Food Program which is the Asian branch of the UN organization.

JOIN HANDS FOR NEPAL - organized by a group of Second Life© residents - is supporting WFP in their mission and provide one of the most basic needs of human survival to those impacted by this massive calamity in Nepal - FOOD.

The activities to raise funds include:

* May 13th @ 1PM SLT - Fashion Showcase by SCALA™Models

* From May 13th to May 16th, all outfits donated by all designers that joined this event and will be for sale at Indian Paradise sim.

* Celebration with several parties and DJs through the days of the event.

We need to fill the space with your positive energy and joy, in all our endeavor to help and succeed in doing so, with your generosity.

* Closing Party: May 16th with SCALA™ DJ - Seashell Dench.

For this fund raising TASHI donated 2 items and the proceeds will be donated 100% to Join Hands for Nepal

The first item is TASHI Tory a mesh dress that comes in 3 colors and HUD to change the colors

The Second Item is TASHI Spring a nail polish for Slink it comes with 5 options to choose from

So please join us at this event to give a hand to the people in need at Nepal

SLURL of JOIN HANDS FOR NEPAL maps.secondlife.com/secondlife/Indian%20Paradise/127/183/...

Thank you!

Shinya Tandino

Tashi Owner

Main Store: maps.secondlife.com/secondlife/Soul%20Explosion/239/4/22

Marketplace store: marketplace.secondlife.com/stores/4440

Flickr: www.flickr.com/photos/tashistore/

Flickr group: www.flickr.com/groups/tashigroup/

Website: tashisl.wordpress.com/

Facebook Page: www.facebook.com/tashisl

Group: secondlife:///app/group/0ed5a4fe-271d-a9ca-336e-ad1f16104c1b/about

Twitter: twitter.com/TashiSL

Pinterest: www.pinterest.com/tashistore/

We RAISE AND JOIN HANDS in memory of our co-worker's granddaughter, Adalynn Grace.

Uniamo le nostre mani in segno di solidarietà con le persone affette da malattie rare perchè crediamo che un piccolo gesto può aiutare a superare grandi ostacoli!!!!!!

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHANDS

#oilfreeseas

#oilspillsR4eva

Cassandra diagnosed with NOMID, a rare disease that affects about ONE in a MILLION people worldwide joins hands with her kindergarten class to show their support with rare disease patients around the world.

Belah has monosomy 21 mosaicsm.

The Morgan Leary Vaughan Fund, Inc. #‎MorgansFund is proud to be a 2015 ‪#‎RareDiseaseDay‬ Partner. Our inaugural luminary event, Illumin8ing Rare, provides a moment of reflection and appreciation for all those who have been directly affected by a rare disease. It is an opportunity to celebrate survivors and to share tributes to those who are no longer with us. ‪#‎RDD2015‬

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

Laura advocates with www.facebook.com/KlippelFeilSyndromeFreedom to conquer a rare skeletal disease.

Rare Disease Day - Morquio Syndrome

arthur,11 years old, angelman syndrom and his family

hands across the sand, an event organised by the wilderness society, south australia

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

semaphore foreshore reserve and beach, adelaide, south australia

hands across the sand

#BP_BIGRISKS

#joinHANDS

Gli amici Grazia, tutti insieme per le malattie rare da Firenze - Atrofia Multisistemica MSA C

Go Klippel Feil Syndrome Alliance!

The rare purple elephant Pongo went to schools in order to explain kids not to be affraid of rarity.

Battling mitochondrial disease every day!

Donnons-nous la main.

Que la recherche fasse un bond.

Pour la guérison…

Donnons un peu de nous,

Avec ou sans talent,

Donnons-leur de l'espoir,

Afin qu'un jour prochain cette info l'on colporte.

Nous sommes guéris,

La maladie est morte

IRCCS "EUGENIO MEDEA" BRINDISI Supports Rare Disease Day!