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Beachgoers are Stakeholders!

They care!

Urban Paradise Guild at Hands Across the Sand Miami Beach

#JoinHands #NoKXL

 

Urban Paradise Guild at Hands Across the Sand on 5/17/2014 (RODRIGO GAYA for URBAN PARADISE GUILD)

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva

Planting the beans on the Machare Coffee Farm in Tanzania

Tom has a Primary Immune Deficiency, all his family and friends supporting this special day!

I met my best friend by my illness. disease also brings beautiful things .I want to thank her because she is always there for me .

SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...

CSL Behring Supports Rare Disease Day!

Jane Velkovski is a 9 years old boy with Spinal Muscular Atrophy from Macedonia. He believes in miricles and he never gives up!

Hello everyone! Please come together to support rare diseases! We are not alone! We are care! We are fighting together !

 

#Run4Rare2019

#RareDiseaseDay

#ShowYourRare

#ShowYourCare

#praderwillisyndrome

Took this photo with my son and daughter to show our stripes. I was diagnosed with Vasculitis in August of 2017. I did a month long fundraiser leading up to Rare Disease Day for the Vasculitis Foundation and raised just over $1,000

 

Art Diaz

Pupils of the Form 4 D of Moscow school 1409, Russia have supported Rare Disease Day by their handprints

Elena earned her master's degree in architecture at the Politecnico in Turin on RDD. We had the lucky opportunity to celebrate these two important events in the same day and show our solidarity.

This is a collection of pictures of information in Arabic you have published on the occasion of the International Day of Rare Diseases. Please contribute to the re-publication of the Arab Region

www.facebook.com/pg/national.days.arab.area/photos/?ref=p...

Workers on the Machare Coffee Farm taking a well deserved break.

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva

This "photo" is a screen grab of various Arteriovenous Malformation (AVM) survivors, along with two people fighting Ataxia and Mitochondrial Disease, showing themselves, and what their "Rare" is. Each of these survivors and fighters are reading lines from the poem "Show Your Rare!" making the statement of challenging what society considers to be "right" or "normal" and letting the world know that we may be Rare but we're here, and still human. A link to the video poem of "Show Your Rare!" is below.

 

www.youtube.com/watch?v=DToL5eWZuRg

We wish the happiness of the patients who are suffering from rare diseases. We continue to engage in developing of innovative medicines for them.

SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...

Mes collègues me soutiennent au quotidien dans la lutte contre la maldie invisible et encore inconnue. Le fait de pouvoir travailler partiellement est un facteur moral important de ma vie quotidienne. Merci à tous!

CSL Behring Supports Rare Disease Day!

We’re SmithSolve, experts in healthcare communications. We work with many companies and organizations in the rare disease community to help them understand, engage and earn the trust of the people they need to reach. Together, we share a goal of making more birthdays possible for the millions of people worldwide diagnosed with devastating and rare genetic diseases.

Coffee bushes on the Machare Coffee Farm in Tanzania

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS

CSL Supports Rare Disease Day!

I was born with KFS. I found out when I was 16 and in a car accident.

In November 2013, Don McKenzie who was a loving father and husband died after receiving a heart transplant. A diagnosis of hemophagocytic lymphohistiocytosis came when it was too late. We would like to bring awareness to this and other rare diseases and show our support for those individuals and their families who are affected by them.

-Chrissy & Alex McKenzie

Thomas was born with fused cervical bones in his neck, several abnormal vertebrae in his spine, with hearing loss, Duane Syndrome in his eyes and a few other things. He is a very active, smart young man who loves trains and the color Blue. His personality shines brightly in this world and he is a force to be reckoned with!

Ciro's barista trainer is put through his paces on the Machare Coffee Farm in Tanzania

I wish to dedicate this photo in memory of my late mother and sister who both passed away due to a rare disease.

"Hands Around the Spirit Camp," National Day of Action to Say #NoKXL, May 17, 2014, in Ideal, South Dakota. Photo by Kernit Grimshaw / Bold Nebraska

 

#NoKXL, #JoinHANDS

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