joinhands photos on Flickr

Rare Day, Typical Smile by Rare Disease Day

This is my Jax. With a diagnosis of partial mosaic Trisomy 22, his body holds 3 copies -- rather than 2 -- of chromosome 22 in some of his cells. We're still learning about how this 3rd copy is impacting him as he grows, but it sure hasn't dimmed his smile!

Piemonte and Aosta Valley Interregional meeting by Rare Disease Day

Meeting between the tare diseases patients' associations, the participants of the master in rare diseases, and referents of the Piedmob and Valle d'Aosta Itnterregional network for Rare Diseases

Rare or neglected diseases by Rare Disease Day

Today we join in the celebration of #RareDiseaseDay and especially this year that marks a decade of Policy Wisdom making an impact in public health policy. Our social responsibility campaign #EyesWiseOpentoHealth highlights sixteen public health policy issues of global relevance that we identify with and are passionate about, rare diseases being one of them. Share our campaign within your networks, to make it viral so that we raise a call to action for policy makers to address these issues in a timely manner and implement appropriate policy solutions. Rare is beautiful and important!

CSL Behring: King of Prussia, PA Office by Rare Disease Day

CSL Behring Supports Rare Disease Day!

Picking by www.facebook.com/socialbean

The beautiful Machare Coffee farm in the foothills of Kilimanjaro in Tanzania

Adrenochrome by Trixie Pixie

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bagoftrixsl.wordpress.com/2015/05/11/solo-post-adrenochrome/

Dare TWO Be Rare- PEACE! by Rare Disease Day

Even though I have 2 NIH Rare Diseases, Melkersson-Rosenthal Syndrome and Ramsay-Hunt Syndrome, I still have HOPE! I raised 2 fingers for PEACE and one for each of my Rare Diseases! Thank you so much! - Dawn Stancliff

May 17, 2014 0105 by Dan Sheridan

Fiorentina for trisomy 9 mosaicism by Rare Disease Day

Supporters of Fiorentina football team for Sonia and trisomy 9 mosaicism

Piccoli Mamuthones di Mamoiada by Rare Disease Day

La zia di Sonia di Firenze, 6 anni con trisomia 9a mosaico,al carnevale di Mamoiada con i piccoli Mamuthones per la giornata per le malattie rare 2015

Consulta delle disabilità Alpignano by Rare Disease Day

Siamo la Consulta delle Disabilità di Alpignano, Torino, Italia

Alcune delle nostre famiglie fanno parte della comunità dei malati rari.

Svolgiamo nel nostro comune azioni di impulso e sostegno di politiche a favore delle persone con disabilità e le loro famiglie.

Tutta La nostra solidarietà e il nostro sostegno in un piccolo collage di foto

Surfers Honor Charleston AME Victims by Richard Ellis

Charleston area surfers join hands in a floating circle during a traditional memorial paddle out to honor and remember the nine people killed at the historic mother Emanuel African Methodist Episcopal Church June 27, 2015 in Folly Beach, South Carolina. Earlier in the week a white supremacist gunman killed 9 members at the historically black church.

Pulping by www.facebook.com/socialbean

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herries going into the pulpery near Bente's farm in Tanzania

Cheryl Perry by Rare Disease Day

Cheryl - Klippel-Feil Syndrome

Our family trisomy 9 mosaic by Rare Disease Day

Living with Arnold Chiari Malformation by Rare Disease Day

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I am 40 yrs old. I am married with two teenage kids. I suffer from Arnold Chiari Malformation, I live in sever pain every day, preventing me from working. It effects every inch of my life.

CSL Behring Mexico by Rare Disease Day

CSL Behring Mexico team.

Team Klippel-Feil Syndrome Freedom! by Rare Disease Day

This is our RARE community at Klippel-Feil Syndrome Freedom, standing united for understanding about the pain and debilitating health issues that KFS creates. We stand for IMPROVED care and understanding! www.facebook.com/KlippelFeilSyndromeFreedom?ref=hl

hands across the sand - 2015 - 5161083 [mono] by bill doyle

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the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

Join Hands to help Nepal by Wildstar Beaumont

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CSL: Marburg, Germany rIX-FP Team by Rare Disease Day

CSL Supports Rare Disease Day!

EM-150516-HAS-017 by Minister Erik McGregor

Hands Across the Sand 2015

rise hands for all patients with rare disease by Rare Disease Day

Yana. Russia. I have Pulmonary Arterial Hypertension.

*Join the International Online Community for patients living with Pulmonary Hypertension: www.rareconnect.org/en/community/pulmonary-hypertension

#JoinHANDS San Clemente Pier CA by Darin McClure

#JoinHANDS San Clemente Pier CA

Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont

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Alone We Are Rare, but Together We Are Strong by Rare Disease Day

We are students with disabilities from Lithuania, Joniškis city.„Saulė“ basic school. In our classes are students who also have rare diseases: Jacobsen syndrome, Autism, Down syndrome. We are joining to the Rare Disease Day, because we would like solidarity with the rest of the world.

pon tu mano by Rare Disease Day

Saludos desde Ecuador.

Hospital De Verdi Cevallos Balda.

Raras pero no invisibles. Porque un integrante de tu familia puede estar en la lista. Pon la mano !!!

Picking by www.facebook.com/socialbean

looking down a row of coffee bushes on the Machare Coffee Farm in Tanzania

We are rare. by Rare Disease Day

We are living with blount diseaese in Zimbabwe where rare disease day is not official and people have very little knowledge about rare diseases.We decided to join the campaign this year as a first step towards building awareness in our country.

Myositis Let's Meet-Up London by Rare Disease Day

Raising our hands at an informal get-together of persons with Dermatomyosits, Polymyositis and Inclusion Body Myositis. Rare inflammatory myopathies.

CSL: Commercial Development - King of Prussia, PA by Rare Disease Day

CSL Supports Rare Disease Day!

tibyan by Rare Disease Day

tibyan with her family she has a morquio A disease

Arm painting for Rare Disease Day by Rare Disease Day

AllheART painted arms in partnership with the Genetic Support Network Victoria (GSNV).

phpBlHvy4 by Rare Disease Day

from rome by Rare Disease Day

Solidarietà

hands across the sand - 2015 - 5161228 by bill doyle

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the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHands

#oilfreeseas

#oilspillsR4eva

Our stand of rare diseases by Rare Disease Day

We share important information to students and proffesors about rare diseases. The stand was placed at Mariano Gálvez Univeristy in Guatemala.

The heroine mamá- La mamá que salvo a su hija en tierras lejanas, Gracias hermosa! by Rare Disease Day

My dearest mum is my favourite person. She flew from Mexico to Australia and spent with me 6 months in the other side of the world without speaking English. She sorted out things, sat by my bedside everyday and together we worked hard towards my goals. She is the strongest and most positive person that I know!

PALYNZIQ by Rare Disease Day

I had been on my diet since I was 44 years old in 2004. However, I was still struggling daily with trying to get my Formula down!! Then when I heard about a Clinical Trial that was coming, I asked my doctor if I could be considered for being in the Trial. GREAT NEWS!!!!!! NOT ONLY WAS I CHOSEN TO BE IN THE TRIAL, BUT I HAVE NOW BEEN ON PALYNZIQ SINCE 2016 AFTER THE CLINICAL TRIAL ENDED!!!!! THANK YOU LORD!!!!!!!! I take 1 shot daily of 20 mg and that's all.....NO MORE FORMULA!!!!!!!!!

Small and Big hands supporting Rare Disease by Rare Disease Day

Giving visibility to rare diseases. @GENVIP_RESEARCH visited to hospitalized pediatric patients in their classroom @ObraPediatria @AulaChus, for talk about the importance of rare disease research.

Alegría Infantil by Rare Disease Day

Nuestra Organización "Llapan Kallpa" participó del Día Mundial de Enfermedades Raras en el Instituto Nacional de Salud del Niño, dónde los niños con Enfermedades Raras participaron de todos los eventos que realizamos para ellos!

hands across the sand - 2015 - 6591 [mono] by bill doyle

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the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

glenelg beach, south australia, australia

#joinHANDS

#oilfreeseas

#oilspillsR4eva

Alone We Are Rare, but Together We Are Strong by Rare Disease Day

We are students with disabilities from Lithuania, Joniškis city.„Saulė“ basic school. In our classes are students who also have diseases: Jacobsen syndrome, Autism, Down syndrome. We are joining to the Rare Disease Day, because we would like solidarity with the rest of the world.

Flowering by www.facebook.com/socialbean