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KIDS Albania a young persons advisory group with the mission to raise awareness and make the voice of children to be heard in healthcare, medicine and research is supporting for the 3rd year the Rare Disease Day!!
Those in the photo are from CSL Behring IT, Finance and Quality. One of our Australian native trees is also joined riasing its hands in the photo. Its hands are a lot taller, though, so couldn’t feature them in this picture, just its beautifully two-toned trunk.
Kamryn brumbeloe is 3 years old. At. 6 months , we were told she has Npc which no cure for this terrible disease . Although there are treatments to help. We help and support , nih can help her. Seem to be so unfair . Prayers, doctors, and medicine is our hope .
Rare Disease Day is a good time to reflect CSL Behring Purpose and Values, especially our commitment to Patient Focus, and the positive impact that we make together on so many lives.
We want to show are support for a rare and painful disease called rsd/Crps. A chronic pain disease that effects the nerves in your body. My fiancé sucferes from this disease and has full body RSD. However, she never lets this keep her down. We recently created an orginization to help not just bring awareness, but to also support those who have RSD/CRPS. We offer support to not just people who suffer from this disease, but also there care takers.
CSL was formed to save lives using the latest technologies. In the century since, CSL Behring has grown into a global biotechnology leader, driven by that same promise to save and improve lives. We offer the broadest range of quality plasma-derived and recombinant therapies in our industry. Our ability to innovate and deliver life-saving medicines for patients with unmet medical needs around the world has earned us a reputation for always putting patients first. We are CSL Behring and we are driven by our promise.
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
Our CSL Behring Clinical Trial Supply Team raised their hands to show solidarity with those battling rare diseases, the primary focus of our products.
SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
mancano le foto della piantumazione e del flash mob ma dovrebbero essere pubblicate sul sito del rarediseaseday. vi farò sapere.
Our CSL Behring Clinical Trial Supply Team and our Partners from N-Side raised their hands to show solidarity with those battling rare diseases, the primary focus of our products.
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
CSL Behring is a global leader in the plasma protein biotherapeutics industry. We research, develop, manufacture and market biotherapies that are used to treat serious and rare conditions. Users of our therapies rely on them for their quality of life and, in many cases, for life itself. Whether we are manufacturing and marketing safe and effective products or researching and developing innovative biotherapies, we are first and foremost focused on fulfilling our customers’ needs.
I am a filmmaker, making an interactive documentary for cell phones target and produced in collaboration with patients and family members of patients with Familial Amyloidosis / Andrade's disease, in Argentina. Last summer I settled in the small rural town of Navarro, the base from where I try to deploy my work, getting to know the families, beginning to find the kindest way to record with them. An unexpected experiential trip for me that modifies the look and the conception that I handled about the otherness and the assistance to groups socially harmed.
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
Participants of the Duchenne Parent Project Onlus meeting raised their hands for RDD, February 2015!
I spread awareness of rare diseases in the Arab region and in ArabicThis is a collection of pictures of information in Arabic that you have published on World Rare Diseases Day
CSL Behring is a global leader in the plasma protein biotherapeutics industry. We research, develop, manufacture and market biotherapies that are used to treat serious and rare conditions. Users of our therapies rely on them for their quality of life and, in many cases, for life itself. Whether we are manufacturing and marketing safe and effective products or researching and developing innovative biotherapies, we are first and foremost focused on fulfilling our customers’ needs.