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the steve irwin in port adelaide - 8191735 by bill doyle

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
Social Workers raise and join hands for Rare Disease Day by Rare Disease Day

The Portuguese Association of Cerebral Palsy from Leiria support the Rare Disease Day.

Today, these social workers were at a high school speaking and sharing their experience with many interested students. The developed group activities were spectacular!
hands across the sand 2018 - 0638 by bill doyle

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight
hands across the sand - 4848 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
the steve irwin in port adelaide - 8191762 [mono] by bill doyle

Mirning elder Bunna Lawrie comes ashore.

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

#OperationJeedara
Reconocimiento by Rare Disease Day

Deliverig recongition at the Spanish Asociationof charities i Guatemala chief by PROCRECE in support at the rare diseases
the steve irwin in port adelaide - 8191260 by bill doyle

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
Hands up for rarediseases with findacure by Rare Disease Day
Doctor involved in Raising hands for RD patients by Rare Disease Day

Our colleague involving physicians in raising hands for RDD
Health Minister, Chief Medical Officer and Chief Nursing Officer of Northern Ireland and team Raising and joining hands for people living with rare diseases! by Rare Disease Day

Health Minister, Chief Medical Officer and Chief Nursing Officer of Northern Ireland and team

Raising and joining hands for people living with rare diseases!

 
Charlotte's office by Rare Disease Day

A littel bit late, but we are in !
hands across the sand - 5170037 by bill doyle

the bike ride nears it destination

 

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Raise Spanish hands by Rare Disease Day

Join our efforts to find a cure for rare diseases.

the steve irwin in port adelaide - 8191029 by bill doyle

Conservation legend Bob Brown, Sea Shepherd's Jeff Hansen and The Wilderness Society's Peter Owen.

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
Grammie and I on Rare Disease Day 2013 by Rare Disease Day

GSD VII is not something I can easily explain to people and effects each of us in individual ways and varying degrees. The lack is information can be frustrating at times but it's important to keep on keeping on!

Rare Disease Awareness by Rare Disease Day

Our Family is gearing up to spread awareness on 2/28/14
hands across the sand - 5071 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
16th Debra Day in Belgium by Rare Disease Day

Our annual meeting is a gathering of patients, parents, doctors, nurses, babysits, ..... This year we had the honor to have the Director of the Belgian NHS - Health care Department - with us.
hands across the sand 2018 - 0911 by bill doyle

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight
Rare Disease Day in Messina, Sicily by Rare Disease Day

Let's try to fight together against rare diseases!!!!!!!!!!
Raising hands for Rare Disease Day! by Rare Disease Day

Pfizer colleagues in Collegeville, PA joined hands to recognize Rare Disease Day and bring needed attention to rare diseases.
Raise your Hand for Rare Disease by Rare Disease Day

I took a photo of a piece I am working on that is actually going to be a free standing sculpture piece. The hand is constructed out of a print I printed on printmaking paper and I collaged other pieces to the hand. I have other hands I am currently working on at the moment for Rare Disease day and will be posting to my website No More Band Aids Just Cures on Facebook. The first one I made was for Behcets Disease which I have.
Union County Educational Services Comission/Crossroads School Westfield, NJ by Rare Disease Day

Showing our support for Rare Disease 2013
Praying for an Angel, Hoping for a Cure! by Rare Disease Day

This is a group of wonderful people, most suffering from Mastocytosis. It was taken in Boston, Ma. during the walk run by The Mastocytosis Society. Praying for an Angel, Hoping for a Cure ! <3
Intracranial hypertension australia by Rare Disease Day

I'm passionate about raising awareness for intracranial hypertension australia - a rare brain disease.

Passionate to be participating in disease day...together, hand in hand we can all make a difference for rare diseases.
Action Medical Research raise hands by Rare Disease Day

UK children's charity Action Medical Research raise hands in a show of solidarity with rare disease patients around the world!

 

Today in the UK, there are thousands of families coping with the challenge of caring for a child with a rare and devastating disease for which there is no cure. Research is the key to saving many of these children from a lifetime of suffering. Yet surprisingly, medical research into conditions that devastate children’s lives is poorly funded.

 

Action Medical Research is currently funding over 75 projects targeting rare diseases, tackling premature birth, treating sick and vulnerable babies, and helping children affected by disability, disabling conditions and infections.

 

Research underway in 2013 includes projects on rare conditions: primary ciliary dyskinesia (PCD), Smith-Lemli-Opitz syndrome and Perthes' disease. www.action.org.uk
I am rare (x 17) by Rare Disease Day

As many say I am so very lucky.... Not only do I have a Rae disease, I have17!!!!

Life is a roller coated ride, ups, downs, fast turns, upside down and sometimeS out of commission. Yes this is my life and I have to live it minute to minute, and very thankful for each minute.
the steve irwin in port adelaide - 8191647 by bill doyle

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
hands across the sand - 4852 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
1 équipe et 12 mains avec vous by Rare Disease Day

Maladies Rares Info Services est un service d’information et de soutien spécialisé dans les maladies rares. Nous répondons par téléphone, courrier électronique et live t’chat aux questions des personnes touchées par une maladie rare.
the steve irwin in port adelaide - 1051 by bill doyle

Conservation legend Bob Brown, Sea Shepherd's Jeff Hansen and The Wilderness Society's Peter Owen.

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
hands across the sand - 5170211 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, at the Rosebud Sioux Tribe Tipi Spirit Camp, Ideal, South Dakota.

 

Photo by Diana Steskal / Bold Nebraska

 

#NoKXL, #JoinHANDS
hands across the sand - 2015 - 6553 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
1-Rare Disease Day Awareness by Bin Adam Foundation.Pakistan by Rare Disease Day

www.binadam.net
Taha ( Crigler-Najjar Syndrom ) by Rare Disease Day

I have Crigler-Najjar syndrome. I have to spend half of my time (10/12 hours a day, each day of my life )under these lights, just to stay alive.

I raise my hand in solidarity with all the Crigler-Najjar patients all around the world and all the children who have rare diseases.

crigler-najjar.fr

  
Rare Disease Day Awareness by Bin Adam Foundation.Pakistan by Rare Disease Day

Rare Disease Day Awareness by Bin Adam Foundation.Pakistan

Arranging a walk, www.binadam.net
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
#Pray4Hay by Rare Disease Day

Never stop praying hoping and fighting for a miracle
hands across the sand 2016 - 5211362 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
Rare disease day in Colombia by Rare Disease Day

This year we conmmemorated our sixth year of rare disease day. The theme was football and we invited patients community to kick a goal for life ¡JUNTOS SOMOS MÁS!
hands across the sand 2016 - 5211383 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
Attendees at the CBI Hub Models Conference Raise Hands in Honor of Rare Disease Day by Rare Disease Day

At the recent CBI Hub Models and Program Design conference in Philadelphia, manufacturers, payers and solutions providers came together to recognize Rare Disease Day. Sonexus Health, a company that designs and implements access and patient support programs for pharmaceutical manufacturers of specialty drugs, provided colorful gloves for the attendees to where. They also shared facts about rare diseases. In addition, Sonexus Health and CBI made a $1,200 contribution to Rare Disease Cycling, a non-profit organization that raises funds for research into the cause and treatment of rare diseases.
hands across the sand 2016 - 5210071 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
Raising Hands: Patient Association for Children with Congenital Heart Disease by Rare Disease Day

The Patient Association for Children with Congenital Heart Disease, member of PESPA.
the steve irwin in port adelaide - 8191520 by bill doyle

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight
Salud digna para todos en Punta Arenas Chile by Rare Disease Day

Marcha de los enfermos realizad por nuestra agrupación en 4 de mayo del 2013, en la ciudad de Punta Arenas Chile con una asistencia de más de 400 personas . POR UNA SALUD DIGNA PARA TODOS, SIN EXCLUSIÓN DE NINGÚN TIPO.
2016 Convaid Ambassador by Rare Disease Day

Raising awareness for Cornelia de Lange Syndrome (CdLS)
Entrevista por las enfermedades raras by Rare Disease Day

Interview by the Rare diseases day in 2.28 in cannel Antigua
Shattered~APPENDIX CANCER SUCKS by Rare Disease Day

APPENDICEAL ADENOCARCINOMA WITH SEEDING TOOK MY 53 YEAR OLD HUSBAND OF 32 YEARS - DADDY TO OUR 4 CURE - i wonder is ANY1 really looking for cures KIDS! NO

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