View allAll Photos Tagged joinhands

This is my photo of my hand and those of my three under three years old children. We are and Ehlers-Danlos Syndrome family; I have EDS Hypermobility Type as does my partner. Our twins have it too and although he is very young to tell it looks to me that our one and a half year old son has it EDS too.

Flashmob sur la place de la Comédie avec nos mains colorées tendues vers le ciel, pour terminer la marche dans un geste commun, un geste joyeux, et aussi une photo en souvenir de cette journée exceptionnelle!!

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

wilderness society community coordinators coordinate the community!

 

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight

The Oxford, London and US branches of Oxford PharmaGenesis raised their hands to support the millions of people who live with a rare disease.

Ataxia South Wales chairman "Crossing Borders"

 

"I have a Rare Disorder and I am Crossing Borders"

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight

In front of University of "La Sapienza" in Rome, organized by Uniamo Federazione Italiana Malattie Rare, before a play-to-decide session in the same University.

Raising hands for #rarediseaseday @ our local patient meeting in the East Flanders

Chapter member picture following the end to our Rare Disease Day photo event.

More photos available: www.facebook.com/pages/FIU-Rotaract/121916111238669

Raising hands for #rarediseaseday @ our local patient meeting in the West Flanders

This is the photo of the event of RDD in February 28th

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS

Over 100 people joined the Skopje Marathon to run in the name of people facing with rare diseases. At the end we joined our hands for rare diseases :)

Foto realizada en las III Jornadas Interdisciplinares en Enfermedades RAras organizada por la Asociación Ahedysia con motivo del Día Mundial de las Enfermedades Raras

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

"Sometimes, real SUPERHEROES live in the hearts of small children fighting BIG BATTLES"

over 100 students and teachers of Sunnybrae Elementary School in San Mateo, Ca. join hands and cheer for the students with rare diseases they include amongst them.

1 year old Neve suffers with a rare disease called Congenital Sucrase-Isomaltase Deficiency.

In support of the Rare Disease Day on 28 February, we made a large-scale handprint collage at the party in the hope of raising social awareness of rare bone disease.

Crew members including The Wilderness Society's Peter Owen, Sea Shepherd's Jeff Hansen, conservation legend Bob Brown, Sea Shepherd's Geoffrey Cann, and Mirning elder Bunna Lawrie.

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

#OperationJeedara

The Genzyme LSD-Team took this picture on a general meeting in 2013. All of them work every day with lysosomal storage disease. They know about the important of making attention to rare disease. Because of that, it is so important to support rare dieseas day.

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

At ZappRx, we wanted to demonstrate our support, so we signed up to “become a friend” of Rare Disease Day 2016. On Monday, we’re heading over to the Massachusetts State House to advocate for patients with rare diseases, listen to their stories, and better understand how our company can make a positive impact on their care.

Hands up for RDD ... Whising to celebrate RDD everyday!

I raise my hand for the rare disease event

Hi my name is Ryker. I'm 4 years old and I was born with SYNGAP1.

Shire celebrating RDD 2016

Here it's our little contribution to this day: Madrid Behçet's disease group supporting this importan day for all of us. Thanks to every single person that has participated in all the events of the International Rare Disease Day 2014.

The Association for the Wellbeing of Children in Healthcare (AWCH) is a supporter of Rare Disease Day. We decided to raise awareness by giving away lolly packs at meetings our Program Manager attends in the weeks leading to 28th of February to promote Rare Disease Day 2014 ~ Join Together for Better Care .

Ataxia South Wales chairman with Institute of Fundraising Cymru Trustee

 

at Carmarthen, Wales event

Residents from Emegency Medicine, Family Medicine and Radiology at Hospital General Plaza de la Salud raised their hands to show their support to the patients all around the globe

Pfizer colleagues in Collegeville, PA joined hands to recognize Rare Disease Day and bring needed attention to rare diseases.

Ataxia South Wales chairman and Cancer Information Support Services mark the Day at CISS shop in Carmarthen, Wales

Family and Friends in support Matthew, who is diagnosed with POLR3A Leukodystrophy (4H Syndrome).

Cu prilejul Zilei Bolilor Rare la Scoala Gimnaziala Nr. 3 Slobozia, jud. Ialomita am desfasurat o serie de activitati pentru informarea elevilor despre bolile rare si impactul acestora asupra vie'ii pacientilor

Team AJ from Annabelle's Challenge our out in force to support Rare Disease Day and raise awareness of Vascular Ehlers-Danlos Syndrome.

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva

Members of IIH UK's North East Groups raise their hands for Rare Disease Day.

www.iih.org.uk

E-Access forum Wales marks RarediseaseDay 2013

In front of Univeristy of "La Sapienza" in Rome, with students, patients, doctors, and other stakeholders in RareDisease, just before going to play-to-decide all together...

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