View allAll Photos Tagged joinhands

Cheles Maria Laura ......Sindrom Prader Willi!

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

I was diagnosed at age 51 with Ehlers Danlos Syndrome after many years of misdiagnosis. Awareness of rare disease is very important.

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

the wilderness society south australia's director peter owen in discussion with the media

  

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

Inner montage from the Banshees "Join Hands" programme

People from across the world in over 700 locations joined hands to say no to offshore oil drilling and yes to clean energy and renewables. www.handsacrossthesand.com/

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, on the Bob Kerrey Bridge in Omaha, Nebraska.

 

Photo by J. Grace Young / Bold Nebraska

 

#NoKXL, #JoinHANDS

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

le samedi 27 février 2015 l'Association Shifa des maladies NeuroMusculaires & l'Association ADEM des maladies rares ont célébrée la 9 ème journée internationale des maladies rares par une journée d'information et de sensibilisation au niveau de la salle de conférence de la commune de bir mourad rais

My sister and I both suffer from Vascular Ehlers-Danlos Syndrome. The rarest and most severe form of EDS, we are Zebras not horses and it's time the medical/political world took note.

This is a photo of some Cutaneous Lymphoma Foundation staff at offices in Michigan, USA.

Girl Scout Troop 74394 kicked off Rare Disease Day earlier this month by writing a letter to the editor in our local newspaper. Last Friday we passed out 650 flyers asking our school to get involved. We also participated at school today by distributing bead packets and completing the activity found on the website in all K-5 classes. We finished the day by visiting Respite Care, Inc. in Ft. Collins, CO. We left Rare Disease Day coloring pages, toured their wonderful facility, and dropped off Girl Scout cookies of course!

In this picture is myself and 9 of my siblings, one is deceased. Of the 11 children There is 8 in the family who have Hereditary Hemorrhagic Telangiectasia. There is no cure for it, but it can be managed, if the doctor knows about HHT. Too many doctors are not familiar with HHT. There have been many people die with HHT because it was undiagnosed.

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

This is a photo of one of our younger Cutaneous Lymphoma Foundation supporters.

the bike ride nears it destination

 

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

#OperationJeedara

Alan visits freinds in Chesterfield while visiting the Ataxia clinin in Sheffield, UK

I was diagnosed with Noonan Syndrome at age7, but am now undergoing testing for other rare diseases. I am a fighter and am brave.

Raise your hands for rare disease (Sheffield)

Friends helping Friends

EB Without Borders (EBWB) is a key initiative of DEBRA International. Its focus is on helping patients, families and doctors in countries where there is no or little support and to help establish national DEBRA groups.

More info here:

www.debra-international.org/news-and-events/news/news-det...

The picture was taken at the International Debra Conference in Rome 20-22 september 2013. From left to right: Sabine Daby (Debra Germany), Ingrid Jageneau (Debra Belgium), Gena Brumitt (Debra Canada), Anna Kemble-Welch (Debra New-Zealand), Vlasta Zmazek (Debra Croatia), Polona Zakosek (Debra Slovenia).

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

Crew of the MY Steve Irwin as it sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

#OperationJeedara

The pilots depart the ship>

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

My name is Laura and I was born with Holt-Oram Syndrome.

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame -proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#Fightfor the Bight

From the city to the mountains: raising hands everywhere!

Круглый стол в на день редких заболеваний 29 февраля 2012 год (Научный центр педиатрии и детской хирургии г.Алматы)

Raise your hands for Rare disease / Las Vegas - Cardiff

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight

Круглый стол в на день редких заболеваний 29 февраля 2012 год (Научный центр педиатрии и детской хирургии г.Алматы)

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

The Wilderness Society's Peter Owen and Mirning Elder Bunna Lawrie.

 

The MY Steve Irwin sails in to Port Adelaide as part of Operation Jeedara, the Great Australian Bight Alliance's campaign opposing BP's plans to drill in the Great Australian Bight.

 

#FightForTheBight

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