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Zachary has Aarskog Scott Syndrome. Aarskog syndrome is a rare genetic condition characterized by short stature and multiple facial, limb and genital abnormalities.
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
preparativi alla piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
We have a little boy in our school with CVID here in Roscrea in Ireland. He does not let it affect his daily life and is the life and soul of the school. We are very proud of Him.
This is a photo of my daughter who was diagnosed with OMS (Opsoclonus Myoclonus Ataxia Syndrome) in January 2018.
SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
TARGA E piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
Along with many other rare disease organizations and advocates, the Osteogenesis Imperfecta (OI) Foundation honors the millions of people worldwide living with a rare disease. Let's Join Together for Better Care! Happy Rare Disease Day 2014!
My daughters school has gone above and beyond this year making this huge mural of handprints of students and teachers at st. Mary’s school. They are also celebrating all week long with a rare awareness week.
SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
We must educate and spread awareness of rare diseases !! Even with all my diagnosis I am still treated with harsh words, disrespect, disbelief...treated like an attention seeker/ hypochondriac by Dr's....not one person deserves this kind of treatment and you know if I am treated this way others are too....is it too much to ask to be treated with respect and understanding?? To be treated like a human being??
Lauren has a rare genetic condition it is called 1p 36 deletion syndrome . It's has giving her many challenges in life with alot of health issues. She is 10 yeasrs old and is such a fantastic child . We love her loads .
BaÅŸkent University, Faculty of Health Sciences, The department of Social Work organized Rare Disease Day activities in Ankara.
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
preparativi alla piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
preparativi alla piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
piantumazione dell'albero raro Chiari e Siringomielia con legambiente e la scuola Vespucci Catania rarediseaseday 2019
SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...