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AISMAC FLASH MOB Liceo Cutelli Catania by Rare Disease Day

Aismac meet students of the high school cutelli catania.Whit a nice choreography
Levi Cooper by Rare Disease Day

Levi was born with Prune Belly Syndrome, this occurs in 1 in 40,000 live births.
Devin by Rare Disease Day

My 7 year old son, Devin who has Prader Wili Syndrome.
ponte a greve calcio i babbi per trisomia9m by Rare Disease Day

I babbi del ponte a greve calcio
De braços abertos as maravilhas do convívio raro by Rare Disease Day

Minha pequena homenagem ao Dia Mundial das Doenças Raras, inspirado no tema: " Doenças Raras sem Fronteiras", em um dos locais mais democráticos do mundo, onde todas as barreiras são derrubadas, onde todas as fronteiras são ultrapassadas, onde todas as desigualdades se igualam: em plena Av.Paulista, de braços abertos a deliciosa maravilha do convívio raro!!!!!
And we wake up... by Rare Disease Day

And we wake up...
hands across the sand - 2015 - 6565 [mono] by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
togoshi-ginza shopping mall by tomoko umino
Join Hands to help Nepal by Wildstar Beaumont
Join Hands to help Nepal by Wildstar Beaumont
American Bible School by Rare Disease Day

American Bible School for rarediseaseday 2015
hands across the sand - 5335 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
hands across the sand - 5170305 by bill doyle

facepainting, hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5205 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Committee for Orphan Medicinal Products (COMP) at EMA Join Hands in Solidarity with Rare Disease Patients by Rare Disease Day

The Committee for Orphan Medicinal Products (COMP) is the committee at the European Medicines Agency that is responsible for reviewing applications from people or companies seeking 'orphan-medicinal-product designation'.

 

Learn more: www.ema.europa.eu/ema/index.jsp?curl=pages/about_us/gener...
MEMORIAL RARE DISEASE DAY by Rare Disease Day

RDD in Turkey!
Raising hands, raising awareness by Rare Disease Day

Members of #SPEC and #SPJ team up to raise awareness for Rare Disease Day 2015
We Support rare Disease Day by Rare Disease Day

Aiden is a survivor of a Rare Lung Disease.

Congenital pulmonary airway malformation (CPAM) is a rare congenital birth defect that includes a cystic mass of abnormal lung tissue. A cystic mass is a noncancerous tumor that is filled with fluid or other material. This condition used to be referred to as congenital cystic adenomatoid malformation, or CCAM. In CPAM, the cystic mass cannot function as normal lung tissue. Males have this condition slightly more often than females.
landforhope Lebanon by Rare Disease Day

In the picture an MD child in the Ceder forest in Lebanon enjoying a summer day with his family
Alnylam Pharmaceuticals Cambridge by Rare Disease Day

Alnylam Pharmaceuticals employees raised and joined hands in support of Rare Disease Day at one of our Cambridge, MA office.
RD-Connect is rising hands for the rare disease patients by Rare Disease Day

RD-Connect is an international, EU-funded project facilitating research on rare genetic diseases to improve diagnosis and develop new treatments. RD-Connect colleagues are proud to participate in the Rare Disease Day and here you can see us raising hands to show solidarity with rare disease patients around the world!
CSL Behring: Japan (Hokuriku Region) Commercial Team by Rare Disease Day

CSL Behring: Employees from the CSL Behring Commercial team in Japan (Hokuriku) show their support of Rare Disease Day! CSL Behring is a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
ta main dans la mienne by Rare Disease Day

un après midi où je faisais une sieste caline avec mon petit garçon de 5 ans .
hands across the sand - 5170140 - [mono] by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Hands Up For Alexis Lato by Rare Disease Day

Alexis Lato has Neurofibromatosis and her mommy,Elise works with us as Adecco. We love the Lato family and support them in whatever they need!
Participants at our #RareEU2015 event raising and joining hands for Rare Disease Day! by Rare Disease Day

Participants at our #RareEU2015 event raising and joining hands for Rare Disease Day!
Samuel - Oklahoma by Rare Disease Day

Samuel has Immune Thrombocytopenic Purpura and is raising hands in support! Thanks for all you do!
HOPE by Rare Disease Day

I was diagnosed with stiffperson syndrome in 2009. I am one in a million. I shared my story with my son's 5th grade class. Together we made poster to spread awareness for those who suffer from a rare disease and give HOPE!
Colombia: Juntos somos más by Rare Disease Day

5 years ago we started to celebrate our Rare Disease Day, this year we have increased the number of participants up to 600 people and more than 15 patients associations united.
A ARPA apoia esta causa! by Rare Disease Day

Friends of Rare Disease Day!
hands across the sand - 5354 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
l'équipe sobi France Afrique du Nord by Rare Disease Day

Cette année nous avons tenté de reproduire le logo du rare Disease Day en peinture!
KFS in Germany by Rare Disease Day

A wonderful friend of mine made this picture for me, because I'm a computer dummy and just couldn't successfully get it right.

So this picture means a lot to me.
Histio Warriors Raising Hands for Rare by Rare Disease Day

Family and friends of 6 Histio Warriors gather together to help raise awareness for Rare Disease Day.
hands across the sand - 5170098 by bill doyle

OLYMPUS DIGITAL CAMERA
hands across the sand - 2015 - 5161079 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
Hudak family and friends show support by Rare Disease Day

Our son, Joe is diagnosed with a very rare genetic mutation. Today his school, Ridge Ruxton School, along with his family and friends show their support for this great cause.
Join Hands to help Nepal by Wildstar Beaumont
hands across the sand - 5170233 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5111 - [mono] by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 2015 - 5161649 [mono] by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
In support of Rare Disease Day by Rare Disease Day

A compilation of supporters of MichaelAnn who has a rare disease, BPAN.
Long Island State Parks supports Rare Aware by Rare Disease Day

This is part of the administration staff at New York State Parks, Long Island Region. Photographed in front of the Administration building in Belmont Lake State Park, Babylon, New York on February 28, 2017.
hands across the sand - 2015 - 5161144 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
U12 florentia rugby - rarediseaseday by Rare Disease Day

U12 Florentia Rugby per trisomia 9 a mosaico
Crystal Lupus Fighter by Rare Disease Day

I am 25 years old barreling SLE and fibromyalgia .. It's hard being at a crucial age on my life. SLE has been debilitating to me and although I have many things on hold in life. I still push on and appreciate everyday for what it is!
Juvenile Dermatomyositis Myositis UK by Rare Disease Day

Raising my hands here in Gloucester for Juvenile Dermatomyositis which is a rare inflammatory muscle disease affects 3 in a million children each year in the UK.
Hope by Rare Disease Day
FLASH MOB AISMAC CATANIA 2020 catania by Rare Disease Day

aismac catania flashmob 2020
150 Reasons why KFS Research is Key! by Rare Disease Day

Klippel-Feil syndrome patients of all ages, from across the globe, submitted recent photos for Rare Disease Days Raise and Join Hands For Rare Disease 2017, to patient organization Klippel-Feil Syndrome Freedom! We put together this image, of 150 KFS patients who need research, care, and understanding. Klippel-Feil syndrome is a rare skeletal disease that affects 1 in 42.000. Our symbol of hope is the skeleton key. Research is key! We are #KFStrong!

Thank you!

 

Visit us

Facebook: www.facebook.com/KlippelFeilSyndromeFreedom/

Instagram: @kfs_freedom

Twitter: @KFS_Freedom

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