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Gli Amici di Grazia - MSA C - Scandicci by Rare Disease Day

Amici di Grazia per le malattie rare - MSA C Scandicci (Firenze)
together for life by Rare Disease Day

Friends of T9M
hands across the sand - 5235 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 2015 - 1302 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
MICHAEL'D JOURNEY WITH IH by Rare Disease Day

Michael has been suffering with severe migraines headaches for more than 7 years. Due to ih. Lets find a cure so we can live happy pain free lives.
Spanish Scleroderma Association at Maribel Maseda's "Meetings of life" by Rare Disease Day

Scleroderma is an uncommon and complex autoimmune disease of unknown origin, characterized by fibrosis of the skin and of the internal organs, and by damaging vascular changes. Scleroderma means "hard skin".

Thank you to Maribel Maseda for inviting us to her "Meetings of Life" and supporting us raising together our hands.

Alan Hand for RDD #ercdBerlin by Rare Disease Day

Alan marks Raredisease Day while online to Berlin Raredisease conference
Sorting by www.facebook.com/socialbean

The hands that work the lands.

Tags: Coffee beans, coffee farming,
Baby Grant! by Rare Disease Day

Grant is 20 months old was born with Klippel-Feil Syndrome and Situs Inversus Totalis. He has future surgeries ahead of him, but is a supper active and happy toddler despite his many challenges. He had hist 1st open heart surgery at 1 week old and will have his first upper spine/cranial surgery later this year.
Handok Blood Donation Event by Rare Disease Day

on 26th of Feb, one of major phamaceutical company, Handok, had an internal event as blood doncation campaign for 'Rare Disease Day'

we support PNH, PHT and other rare disease patients and family.
Cobra Kai asd. amici Grazia by Rare Disease Day

Cobra Kai asd. per Grazia e le malattie rare - MSA C
Rare Disease Day - Brasilia, Brazil by Rare Disease Day

It was a wonderfull day with friends. We worked together to promote the event 3º Rare Disease Day - Brasila, DF. Which will take a place at National Congress, 27th feb, 2 pm, room Nereu Ramos.
Pick Nick RDD by Rare Disease Day

It was a wonderfull day with friends. We worked together to promote the event 3º Rare Disease Day - Brasila, DF. Which will take a place at National Congress, 27th feb, 2 pm, room Nereu Ramos.
Amicus Therapeutics celebrates Rare Disease Day by Rare Disease Day

Amicus Therapeutics supports Rare Disease Day
hands across the sand - 2015 - 8941 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
parents of Scandicci 1° scouts group by Rare Disease Day

Parents of Scandicci 1° scouts group for rarediseaseday 2015
Officina Teatro'O Firenze per trisomi 9 a mosaico by Rare Disease Day

Officina Teatro 'O per la giornata delle malattie rare 2015 - trisomia 9 a mosaico
Roundtable discussion on Rare Diseases by Rare Disease Day

Okrugli sto na temu Rijetkih bolesti: zdravstvenog sektora, nevladinog , udruženja roditelja, školstva i djece sa rijetkim bolestima...televizijski prenos na nacionalnoj televiziji --obilježen 28.02.2014. Dan rijetkih bolesti
hands across the sand - 5170204 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5170304 by bill doyle

facepainting, hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5293 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Dutchies in Switzerland supporting Rare Disease Day 2013 by Rare Disease Day

While everyone at Shire works to transform the world of rare diseases and the lives of patients every day, we hope that our show of solidarity (in the Swiss office in Nyon) on Rare Disease Day 2013 can raise greater awareness for the rare disease community around the world.

  
Jim by Fleur-Ange Lamothe

Joining hands with others of the flickr world for www.flickr.com/photos/garnite/1195744982/

 

to send healing energy to Jim (garnite). Maybe you get stronger day by day, Jim. And I look to the day when you will be posting again.
rasing our hands for PCD on rare disease day 2013 by Rare Disease Day

this is amber she is celebrating her 4th birthday she has been living with PCD (primary ciliary diskenisa)all her life. we are raising our hands for a cure!

rare dissease day 2013
AFCN solidaire by Rare Disease Day

L'Association Française de Crigler-Najjar mobilisée et solidaire pour lutter contre toutes les maladies rares.

crigler-najjar.fr
MEMORIAL RARE DISEASE DAY by Rare Disease Day

We raised our hand for rare disases!
hands across the sand - 2015 - 5161702 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
hands across the sand - 5170137 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
AISMAC FLASH MOB Liceo Cutelli Catania by Rare Disease Day

Aismac meet students and teachers of the high school cutelli catania tuesday february 28 in the courtyard
TTP joins hands for Rare Disease Awareness by Rare Disease Day

Answering TTP Foundation Volunteers join hands for Rare Disease Day
Join Hands to help Nepal by Wildstar Beaumont
hands across the sand - 4877 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
MEMORIAL RARE DISEASE DAY by Rare Disease Day

Some photos from our Memorial Rare Disease Day event.
CSL Behring: Managers and Training Memebers of the Commercial Team by Rare Disease Day

CSL Behring: Managers and training members of the commercial team in Japan show their support of Rare Disease Day! CSL Behring is a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
IMG_5198 by Angela Sevin
ponte a greve calcio 2005 per trisomia9m by Rare Disease Day

Ponte a Greve calcio 2005 di Firenze
Living With FMD by Rare Disease Day

Diagnosed with Fibromuscular Dysplasia in 2003. I had renal bypass surgery in 2003 & 2004. In January 2015 I suffered an aortic aneurysm with dissection an received a mechanical valve. After months of regaining my strength & life back I was able to walk 3 miles in the American Heart Association Heart Walk in Nashvile. Every day is a blessing!
Polizia Municipale di Firenze by Rare Disease Day

La Polizia Municipale di Firenze per trisomia 9a mosaico e per le malattie rare
hands across the sand - 5170219 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
The NBIAcure Research Team by Rare Disease Day

The NBIAcure research team at Oregon Health & Science University are raising their hands to promote awareness of NBIA (Neurodegeneration with Brain Iron Accumulation) and all other rare diseases.
hands across the sand - 5244 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5068 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
hands across the sand - 5170308 by bill doyle

facepainting, hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Ethan Gentry by Rare Disease Day

Hi, my name is Ethan and I am 8 years old. I have a rare disease called POLR3. I am only the 20th documented case in the world. I have a hard time walking, talking and eating but I live my life full of love and smiles.
For better Care by Rare Disease Day

Pedijatrijski odjel Opće bolnice u Sanskom Mostu...Zajedno za bolju njegu djece sa rijetkim bolestima...
The two of us plus by Rare Disease Day

I am undiagnosed but am being treated for stiff limb syndrome
hands across the sand - 5309 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Scleroderma Society UK by Rare Disease Day

The Scleroderma Society is showing solidarity for people with rare diseases. One day we will find a cure.
U12 Florentia Rugby per trisomia 9a mosaico by Rare Disease Day

Sonia is 6 years old, lives in Florence and she 's a beautiful trisomy 9 mosaic baby. All the people in Florence is joining hands for her and for all the rare diseases!
hands across the sand - 2015 - 5161444 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva

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