View allAll Photos Tagged joinhands
this is amber she is celebrating her 4th birthday she has been living with PCD (primary ciliary diskenisa)all her life. we are raising our hands for a cure!
rare dissease day 2013
L'Association Française de Crigler-Najjar mobilisée et solidaire pour lutter contre toutes les maladies rares.
the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight
glenelg beach, south australia, australia
#joinHANDS
#oilfreeseas
#oilspillsR4eva
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS
#joinHANDS
Aismac meet students and teachers of the high school cutelli catania tuesday february 28 in the courtyard
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS
CSL Behring: Managers and training members of the commercial team in Japan show their support of Rare Disease Day! CSL Behring is a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
Diagnosed with Fibromuscular Dysplasia in 2003. I had renal bypass surgery in 2003 & 2004. In January 2015 I suffered an aortic aneurysm with dissection an received a mechanical valve. After months of regaining my strength & life back I was able to walk 3 miles in the American Heart Association Heart Walk in Nashvile. Every day is a blessing!
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS
#joinHANDS
The NBIAcure research team at Oregon Health & Science University are raising their hands to promote awareness of NBIA (Neurodegeneration with Brain Iron Accumulation) and all other rare diseases.
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS
#joinHANDS
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS
facepainting, hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS
#joinHANDS
I am Stephanie and I have a rare disease called Cystinosis.
*Join the International Online Community for people living with Cystinosis: www.rareconnect.org/en/community/cystinosis
Hi, my name is Ethan and I am 8 years old. I have a rare disease called POLR3. I am only the 20th documented case in the world. I have a hard time walking, talking and eating but I live my life full of love and smiles.
Pedijatrijski odjel Opće bolnice u Sanskom Mostu...Zajedno za bolju njegu djece sa rijetkim bolestima...
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS
Sonia is 6 years old, lives in Florence and she 's a beautiful trisomy 9 mosaic baby. All the people in Florence is joining hands for her and for all the rare diseases!
the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight
glenelg beach, south australia, australia
#joinHands
#oilfreeseas
#oilspillsR4eva
I advocate at: www.facebook.com/KlippelFeilSyndromeFreedom
Holding my skeleton key, my symbol of HOPE this Rare Disease Day! ‪#‎KFStyle‬ ‪#‎KFStrong‬ ‪#‎WRDD2015‬ ‪#‎DefyRARE‬
Sarepta Therapeutics supports Duchenne muscular dystrophy patients and organizations, as well as those who live with, support and/or represent the 7,000 rare diseases around the world.
The Pulmonary Hypertension Association South Africa (PHSA) was founded by patients for patients. We are a source of support, connection and hope to PH patients and their loved ones. The voice of the PH community is built on the personal stories of patients, caregivers, family, friends and medical professionals. Each of these stories is a powerful tool in educating and raising awareness amongst the general public about PH.
PHSA is a young upcoming association with many ambitious projects in the pipeline, a keen interest in innovation and the potential of IT technology and social media. It is open to any new projects and ideas which could help to achieve its goals
The cute fellow in the picture with his MeMaw has Glycogen Storage Disease type 9 as well as being a carrier of type 1A. We in Nitro, West Virginia want to continue to raise awareness to Glycogen Storage Disease, a rare live disease.
Joe's journey is a group supporting and working on raising awareness for Biliary Atresia, a rare liver disease that my son Joe has.
an ultrapanorama - download the full-sized 13,623 x 2022 pixel version via the download icon or the ellipsis ('...') lower right
the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight
glenelg beach, south australia, australia
#joinHands
#oilfreeseas
#oilspillsR4eva
Kamryn brumbeloe is 3 years old. At. 6 months , we were told she has Npc which no cure for this terrible disease . Although there are treatments to help. We help and support , nih can help her. Seem to be so unfair . Prayers, doctors, and medicine is our hope .
Join the 1st International Online community for families living with Niemann-Pick type C: www.rareconnect.org/en/community/niemann-pick-disease-type-c
Alnylam Pharmaceuticals employees raised and joined hands in support of Rare Disease Day in our Alewife, MA office.
CSL Behring/CSL Plasma: Employees at the CSL Plasma collection center in Norman, OK (US) show their support of Rare Disease Day! CSL Plasma is a subsidiary of CSL Behring, a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS
CSL Behring/CSL Plasma: Employees at the CSL Plasma collection center in Mesquite, TX (US) show their support of Rare Disease Day! CSL Plasma is a subsidiary of CSL Behring, a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
The team at MassBio, the Massachusetts biotechnology trade association, is proud to support the Rare Disease Day efforts. We raise our hands!
Join MassBio in celebrating Rare Disease Day 2013 on February 28th at the State House in Boston. Visit www.massbio.org/events/calendar/1934-rare_disease_day/eve... for more information.
senator penny wright
hands across the sand, an event organised by the wilderness society, south australia
the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'
semaphore foreshore reserve and beach, adelaide, south australia
#BP_BIGRISKS #joinHANDS