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hands across the sand - 5170219 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
The NBIAcure Research Team by Rare Disease Day

The NBIAcure research team at Oregon Health & Science University are raising their hands to promote awareness of NBIA (Neurodegeneration with Brain Iron Accumulation) and all other rare diseases.
hands across the sand - 5244 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5068 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
hands across the sand - 5170308 by bill doyle

facepainting, hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Rare Disease Day 2015 by Rare Disease Day

I am Stephanie and I have a rare disease called Cystinosis.

 

*Join the International Online Community for people living with Cystinosis: www.rareconnect.org/en/community/cystinosis
Ethan Gentry by Rare Disease Day

Hi, my name is Ethan and I am 8 years old. I have a rare disease called POLR3. I am only the 20th documented case in the world. I have a hard time walking, talking and eating but I live my life full of love and smiles.
For better Care by Rare Disease Day

Pedijatrijski odjel Opće bolnice u Sanskom Mostu...Zajedno za bolju njegu djece sa rijetkim bolestima...
Scleroderma Society UK by Rare Disease Day

The Scleroderma Society is showing solidarity for people with rare diseases. One day we will find a cure.
U12 Florentia Rugby per trisomia 9a mosaico by Rare Disease Day

Sonia is 6 years old, lives in Florence and she 's a beautiful trisomy 9 mosaic baby. All the people in Florence is joining hands for her and for all the rare diseases!
hands across the sand - 2015 - 5161444 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
Christie beats Klippel-Feil Syndrome by Rare Disease Day

I advocate at: www.facebook.com/KlippelFeilSyndromeFreedom

Holding my skeleton key, my symbol of HOPE this Rare Disease Day! ‪#‎KFStyle‬ ‪#‎KFStrong‬ ‪#‎WRDD2015‬ ‪#‎DefyRARE‬
Luc and his big brother raising there hands by Rare Disease Day

Luc has Hids Igd
Pongo is visiting schools by Rare Disease Day

The rare purple elephant Pongo teaches rarity to kids from his rare story !!!
Sarepta Therapeutics Employees in Corvallis, OR by Rare Disease Day

Sarepta Therapeutics supports Duchenne muscular dystrophy patients and organizations, as well as those who live with, support and/or represent the 7,000 rare diseases around the world.
Alone we are rare, together we are strong by Rare Disease Day

From my 2014 rare disease day on Staten Island NY
My Pulmonary Hpertension Family in South Africa. by Rare Disease Day

The Pulmonary Hypertension Association South Africa (PHSA) was founded by patients for patients. We are a source of support, connection and hope to PH patients and their loved ones. The voice of the PH community is built on the personal stories of patients, caregivers, family, friends and medical professionals. Each of these stories is a powerful tool in educating and raising awareness amongst the general public about PH.

PHSA is a young upcoming association with many ambitious projects in the pipeline, a keen interest in innovation and the potential of IT technology and social media. It is open to any new projects and ideas which could help to achieve its goals
Join Hands to help Nepal by Wildstar Beaumont
Raising Hands for CDH Awareness by Rare Disease Day

The Keohane family wanted to help with supporting CDH UK with Rare Disease Day 2014
Isaac and his MeMaw by Rare Disease Day

The cute fellow in the picture with his MeMaw has Glycogen Storage Disease type 9 as well as being a carrier of type 1A. We in Nitro, West Virginia want to continue to raise awareness to Glycogen Storage Disease, a rare live disease.

Hands up for Biliary Atresia awareness! by Rare Disease Day

Joe's journey is a group supporting and working on raising awareness for Biliary Atresia, a rare liver disease that my son Joe has.
hands across the sand - 2015 - 5161538 by bill doyle

an ultrapanorama - download the full-sized 13,623 x 2022 pixel version via the download icon or the ellipsis ('...') lower right

 

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
Dad and kam fun day bowling by Rare Disease Day

Kamryn brumbeloe is 3 years old. At. 6 months , we were told she has Npc which no cure for this terrible disease . Although there are treatments to help. We help and support , nih can help her. Seem to be so unfair . Prayers, doctors, and medicine is our hope .

 

Join the 1st International Online community for families living with Niemann-Pick type C: www.rareconnect.org/en/community/niemann-pick-disease-type-c
Alnylam Pharmaceuticals Alewife by Rare Disease Day

Alnylam Pharmaceuticals employees raised and joined hands in support of Rare Disease Day in our Alewife, MA office.
CSL Behring: Norman, OK Collection Center by Rare Disease Day

CSL Behring/CSL Plasma: Employees at the CSL Plasma collection center in Norman, OK (US) show their support of Rare Disease Day! CSL Plasma is a subsidiary of CSL Behring, a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
CSL Behring: Mesquite, TX Collection Center by Rare Disease Day

CSL Behring/CSL Plasma: Employees at the CSL Plasma collection center in Mesquite, TX (US) show their support of Rare Disease Day! CSL Plasma is a subsidiary of CSL Behring, a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
MassBio celebrates Rare Disease Day by Rare Disease Day

The team at MassBio, the Massachusetts biotechnology trade association, is proud to support the Rare Disease Day efforts. We raise our hands!

 

Join MassBio in celebrating Rare Disease Day 2013 on February 28th at the State House in Boston. Visit www.massbio.org/events/calendar/1934-rare_disease_day/eve... for more information.
hands across the sand - 5048 by bill doyle

senator penny wright

 

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Stoff persons warrior by Rare Disease Day
Yo ya me vacuné contra la indiferencia 2013 by Rare Disease Day

Campaña 2013 de la Organización Mexicana de Enfermedades Raras OMER, el objetivo Información y Difusión sobre las Enfermedades Raras.
hands across the sand - 2015 - 6584 [mono] by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
Uncle Bens Girls by Rare Disease Day

These two sisters Kaylee 10 and Addy 9 share the same disease "urea cycle disorder" Valentines night 2015 they shared the same date when their Uncle Ben took them to a father-daughter banquet that they look forward to each year. Its a time they get to dress up and be a princess for a night. Forgetting all the troubles of urea cycle disorder. They are a blessing to our family!
Gli amici di Grazia - Perugia by Rare Disease Day

Gli amici di Grazia da Perugia per le malattie rare - MSA C
hands across the sand - 5170245 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
hands across the sand - 5365 - [mono] by bill doyle

face painting stall, hands across the sand - an event organised by the wilderness society, south australia

 

the rally called on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Gitelman's Syndrome daddy by Rare Disease Day

This is my husband, Billy. After a lifetime of symptoms, of weeklong ICU visits, of constant, stressful sickness, he was diagnosed with Gitelman's Syndrome in mid-2011. He has good days, he has bad days, and he has terrible days, but he takes his medication and does what he can to power through and be the best dad in the world to our beautiful daughter Willow Faye.
Join Hands to help Nepal by Wildstar Beaumont
hands across the sand - 5322 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Fighting Blindness raise and join hands for Rare Disease Day! by Rare Disease Day

Fighting Blindness in an Irish patient led charity that funds research into many rare diseases that cause sight loss and works to support and empower people living with these conditions. We are delighted to be involved in Rare Disease Day 2015 and help raise awareness about rare diseases.
MEMORIAL RARE DISEASE DAY by Rare Disease Day

RDD in Turkey!
'एनएसजी' में एंट्री और भारत-चीन सम्बन्ध - Nuclear supplier group and Indo China relations, Hindi Article, Mithilesh by Mithilesh Singh

…. इसके अंतर्गत परमाणु हथियार बनाने में इस्‍तेमाल की जाने वाली सामग्री की आपूर्ति से लेकर नियंत्रण तक आता है. इसकी स्‍थापना 1975 में हुई जिसमें 49 देशों की सदस्यता है. साफ़ तौर पर इसका मकसद परमाणु हथियारों की प्रतिस्पर्धा को रोकना है. यह संस्था इस बात का भी ध्यान रखती है कि न्यूक्लियर मटेरि...

 

goo.gl/JELwg5
hands across the sand 2016 - 5211257 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
Omega Psi Theta raise their hands for rare diseases by Rare Disease Day

Omega Psi Theta, a sorority at Doane College in Crete, Nebraska, is proud to represent Rare Disease Day 2013!

pool fun by Rare Disease Day

loving pool time. unbalanced translocation
Helping Hands by Rare Disease Day

At the Center for Human Genetics (KU Leuven, UZ Leuven) rare genetic diseases are an important topic.

That's why some of the PI's and staff members took time out of their busy schedule to take a colourful photograph.
hands across the sand - 5170015 by bill doyle

OLYMPUS DIGITAL CAMERA
CSL Behring: Duluth, MN Collection Center by Rare Disease Day

CSL Behring/CSL Plasma: Employees at the CSL Plasma collection center in Duluth, MN (US) show their support of Rare Disease Day! CSL Plasma is a subsidiary of CSL Behring, a biotherapies company committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
Join Hands - Together by Rare Disease Day

This picture was drawn by Regina Ahmadi, Class 10/5 IGS Roderbruch Hannover for the Exhibition at our school on Rare Disease Day
Awareness Program for rare disease day 2014 by Rare Disease Day

Awareness Program organized by the department of Genetic Engineering, SRM University, India.

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