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Rare diseases day by Rare Disease Day

My daughter Ramona. She has rare autoimmune blood disorder, immune thrombocytopenia or ITP
2012_08_0412_16_089999 by Healthy Gulf
_MG_4670 by PowerShiftNetwork
11403490_449524518553437_5712382227039230618_n by Yesung ForU

cr: Listen to KRY, TTangkomming, 日本菲菲, excitemusicsj, mybabycloud, StellaTWloveKyu
Hands Across the Sand Pensacola Beach 2014 by Elaine Sargent

Hands Across the Sand Pensacola Beach 2014
The Pituitary Foundation Rare Disease Day 2020 by Rare Disease Day

Staff and volunteers at The Pituitary Foundation are supporting Rare Disease Day!
Hands Across The Sand by allison_b216

www.handsacrossthesand.org
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
UAG by Rare Disease Day

Solidarios
Enfermedad de mi hija rara aún por descubrir en la piel. by Rare Disease Day

Dale tus alas a la vida

Transforma tus miedos en sonrisas

Echa a volar en cada amanecer

Siempre hay luz en tu camino.

#RareDiseaseDay
2017_SACE_Hands_Across_the_Sands_web-0112 by The Southern Alliance for Clean Energy

Hands Across the Sand Folly Beach 2017
2017_SACE_Hands_Across_the_Sands_web-0199 by The Southern Alliance for Clean Energy

Hands Across the Sand Folly Beach 2017
2017_SACE_Hands_Across_the_Sands_web-0117 by The Southern Alliance for Clean Energy

Hands Across the Sand Folly Beach 2017
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
_MG_4675 by PowerShiftNetwork
JOE by Rare Disease Day

De visita en eurordis
FL by Rare Disease Day

Uag escuela de medicina
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
join hands by William Keckler

 
Hands Across the Sand Folly Beach 2012 by c.s.carnevale

Hands Across the Sand gathering at Folly Beach, SC on August 4, 2012 to say "no" to offshore drilling and "yes" to clean energy. Photos courtesy of Foxworthy Studios (www.foxworthystudios.com).
DSC03430 by www.facebook.com/socialbean

Workers on the farm preparing the beans for drying.
We study rare diseases by Rare Disease Day

The Schuldiner and Erez labs from the Weizmann Institute of Science took this picture to show their support in studying rare diseases
Belegschaft von CSL Behring by Rare Disease Day

Die Mitarbeiter, des Biotechnologie Unternehmens CSL Behring, sind stolz darauf einen Beitrag zu Verbesserung der Lebensqualität der Menschen mit seltenen Krankheiten zu leisten. Das Wohl unserer Patienten, liegt uns bei unserer täglichen Arbeit, am am Herzen.
Crowd at press conference. by The Southern Alliance for Clean Energy

SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...
Géraldine by Rare Disease Day

On the Radiorg stand in Cliniques Saint Luc
Hands Across the Sand Pensacola Beach 2014 by Elaine Sargent

Hands Across the Sand Pensacola Beach 2014
Ian born with Phenylketonuria PKU by Rare Disease Day

Ian is a very active healthy 8 year old boy. Ian was born with a Rare Disease called Phenylketonuria PKU

Phenylketonuria (also called PKU) is a condition in which your body can't break down an amino acid called phenylalanine. Amino acids help build protein in your body. Without treatment, phenylalanine builds up in the blood and causes health problems.

Ian has learned to follow a Low Protein Diet. He has a special formula he drinks every day. And is Pro T doing his monthly blood draws at the lab.
RareMed Solutions Celebrates Rare Disease Day by Rare Disease Day

RareMed Solutions transforms the lives of patients afflicted with rare and devastating conditions by accelerating access to biomedical breakthroughs. At RareMed every day is rare disease day, but February 29th is particularly special as we join with the rare disease community to celebrate rare and spread awareness for rare disease.
LDRTC- Reaching out to RARE by Rare Disease Day

Lysosomal & Rare Disorders Research & Treatment Center located in Fairfax, VA, USA is a non-profit organization and our mission is to provide high quality care for individuals with lysosomal storage diseases and other rare disorders by utilizing a variety of clinical treatment and research protocols, conduct training programs to increase awareness and to offer compassionate care and platform for the families affected by these debilitating disorders.
Hands Across the Sand Pensacola Beach 2014 by Elaine Sargent

Hands Across the Sand Pensacola Beach 2014
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
Rare Disease Day activities in Ankara, Turkey by Basket University by Rare Disease Day

Başkent University, Faculty of Health Sciences, The department of Social Work organized Rare Disease Day activities in Ankara.
Chris Carnevale gives remarks at the press conference. by The Southern Alliance for Clean Energy

SACE organized a Hands Across the Sand event for the Charleston area at Folly Beach, SC on May 18, 2013. This was one of over 100 similar gatherings around the world, sending the message "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy. More information at blog.cleanenergy.org/2013/05/23/37-southeastern-communiti...
CIMG7170 by c.s.carnevale

On May 17, 2014, Charleston-area residents gathered on Folly Beach to say "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy, as part of Hands Across the Sand/Land day of action. #JoinHANDS #NoKXL
Nos solidarizamos con las enfermedades huérfanas y sus familias by Rare Disease Day

Las alumnas de Integración Social del Centro Zalima, queremos apoyar a este colectivo para hacer un mundo mejor.
Rare disease day -batten disease by Rare Disease Day

Rebeca, 5,6 y , has NCL2 (batten disease). She is from Romania, but she is in a clinical trial in Hamburg, Gemany.
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Rare Disease Support in York by Rare Disease Day

We work together to develop the research needed to support the fight against rare diseases around the world.
Rare diseases day by Rare Disease Day

Fashion designers from high school „Taki Daskalo“ Bitola, Macedonia
Hands Across The Sand 2012 Buckroe Beach - Hampton, Va. by emwinters1
Malibu HandsAcrosstheSand JoinHands by Malibu Muffie
CIMG7186 by c.s.carnevale

On May 17, 2014, Charleston-area residents gathered on Folly Beach to say "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy, as part of Hands Across the Sand/Land day of action. #JoinHANDS #NoKXL
Hands Across The Land, MSP 2014 by MN 350

#NoKXL #JoinHANDS

 

Photo by Alex Vagac, MN350
join hands by William Keckler

 
CIMG7173 by c.s.carnevale

On May 17, 2014, Charleston-area residents gathered on Folly Beach to say "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy, as part of Hands Across the Sand/Land day of action. #JoinHANDS #NoKXL
CIMG7176 by c.s.carnevale

On May 17, 2014, Charleston-area residents gathered on Folly Beach to say "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy, as part of Hands Across the Sand/Land day of action. #JoinHANDS #NoKXL
BlueDil's team by Rare Disease Day

BlueDil's team is committed and supportive for Rare Disease Day !

Our goal ? Raise awareness about rare disease !
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
CIMG7171 by c.s.carnevale

On May 17, 2014, Charleston-area residents gathered on Folly Beach to say "NO" to offshore drilling and risky fossil fuels and "YES" to clean energy, as part of Hands Across the Sand/Land day of action. #JoinHANDS #NoKXL
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
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