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Gli zii di Sonia da Montevideo by Rare Disease Day

Gli zii di Sonia da Montevideo per trisomia 9 a mosaico
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, on the Bob Kerrey Bridge in Omaha, Nebraska. Photo by J. Grace Young / Bold Nebraska

#NoKXL, #JoinHANDS
nonna Alina da Firenze per trisomia9 a mosaico by Rare Disease Day

Nonna Alina da Firenze nel giorno del suo centesimo compleanno!
Join Hands for Nepal - Fashion For Food Show by Wildstar Beaumont
Raising hands for Rare Diseases at the RD-Connect, Neuromics and EURenOmics annual conference in Heidelberg. by Rare Disease Day

The teams from RD-Connect, Neuromics and EURenOmics gather to show support for rare disease patients and families during their annual meeting. The projects are dedicated to furthering RD research
Surfers Honor Charleston AME Victims by Richard Ellis

Charleston area surfers join hands in a floating circle during a traditional memorial paddle out to honor and remember the nine people killed at the historic mother Emanuel African Methodist Episcopal Church June 27, 2015 in Folly Beach, South Carolina. Earlier in the week a white supremacist gunman killed 9 members at the historically black church.

i cugini di Sonia in Uruguay by Rare Disease Day

Trisomia 9 a mosaico
hands across the sand 2016 - 5210187 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
xcc racing for rarediseaseday 2015 by Rare Disease Day

Cousins of Sonia, Trisomy 9 mosaic, for rarediseaseday 2015. Photo of Lorenzo Cancellieri.
hands across the sand - 5170248 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Rare Disease Day at Pfizer Canada - 3 by Rare Disease Day

Colleagues joining hands against rare diseases
la voix des rars by Rare Disease Day

Président d'une association et atteint de la sarcoïdose au stade IV (Fibrose pulmonaire avec atteintes multiples)

avec une HTAP (Hypertension Artérielle Pulmonaire) .

la voix des rares
hands across the sand - 5005 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
WE ARE RARE BUT WE ARE NOT ALONE. by Rare Disease Day

Moment from zumba lesson organized by the federation of adapted physical activity on the balkans and black sea area, sofia, bulgaria. 27 feb 2016
rare diseases day ukraine by Rare Disease Day

26th of FEB 2015
CSL Behring: Kankakee Site Executive Management Team by Rare Disease Day

The CSL Behring Kanakakee Executive Management Team raises their hands to show solidarity with our rare disease patients around the globe.

hands across the sand - 2015 - 5161459 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
POR LA INVESTIGACION by Rare Disease Day

Nos unimos al lema nuestra esperanza es la investigacion!!!

 

Juntos somos mas fuertes!!!
hands across the sand - 2015 - 8927 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHands

#oilfreeseas

#oilspillsR4eva
hands across the sand - 5186 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
Genomics Policy Unit & Telling Stories team support RDD215 by Rare Disease Day

The Genomics Policy Unit (University of South Wales) and Telling Stories Understanding Real Life Genetics project teams work to educate health professionals about genetics/genomics and healthcare practice, and engage with the public about genetic/genomic issues in everyday life. Our Telling Stories website (www.tellingstories.nhs.uk) has over 100 real life stories from those affected by genetic conditions, many of which are rare. We are delighted to be supporting the campaign for Rare Diseases and to raise our hands for Rare Disease Day 2015.
tutti uniti per le malattie rare - trisomia 9 a mosaico by Rare Disease Day

Cristina ed i suoi colleghi per trisomia 9a mosaico
Raising hands for RD in the Czech Republic by Rare Disease Day

Together we can care better!
Malta joins EPF Board in joining hands on RDD 2013 by Rare Disease Day

Malta, represented by Philip Chircop (4th from L)Vice President of Malta Health Network (MHN) joins hands with fellow Board members of the European Patients' Forum (EPF) during their Board meeting in Brussels on 27.02.13

EPF Board raises hands for the Rare Disease Day!

 

The Board Members of EPF is proud to raise its hands to support all rare and unique patients throughout the world to celebrate the World Rare Disease Day 2013. EPF is an umbrella organisation representing members that are specific chronic disease groups at EU level or are national coalitions of patients and Eurordis is one of our 57 members.
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, on the Bob Kerrey Bridge in Omaha, Nebraska. Photo by J. Grace Young / Bold Nebraska

#NoKXL, #JoinHANDS
Rome Run4Rare by Rare Disease Day

Competitive running race and non-competitive walk on the circuit of Villa Ada Rome
Car wash day in aid of RDM by Rare Disease Day

Members and volunteers of the National Alliance for Rare Deseases Support Malta during a fundraising car wash day in aid of the Alliance, held on the 1st of February 3020 to launch the Rare Disease awareness campaign
Notre tribu by Rare Disease Day

Nous sommes tous solidaires ... La tribu
We are the water by Angela Sevin

Photo by Angela Sevin, Oakland, CA USA
Guadalajara Alza las Manos by Rare Disease Day

En Acto Protocolario de la Celebración de la Organización Mexicana de las Enfermedades Raras OMER
Church by atitsince82

For Sale
My amazing family .....!! by Rare Disease Day

My eldest son has Crohn's Disease and my youngest boy Chronic Imflammatory Dyemylinating Polyneuropthy. All 3 of my kids just get on with it and are complete legends :)
Keep Tahoe Blue Keep Rare Hands Raised by Rare Disease Day

One of two known cases of WAGR Syndrome in Nevada, we raise our hands to raise awareness and show support to our WAGR families around the world #wagrstrong . www.wagr.org
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, on the Bob Kerrey Bridge in Omaha, Nebraska. Photo by J. Grace Young / Bold Nebraska

#NoKXL, #JoinHANDS
hands across the sand - 5387 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Unidos por las Enfermedades Raras by Rare Disease Day

IV jornada Interdisciplinar en Enfermedades Raras, organizada por AHEDYSIA en Villajoyosa
CSL Supports Rare Disease Day! by Rare Disease Day

CSL Behring supports Rare Disease Day. This photo is sent from Parkville, Australia.
Joining Hands in Brazil! by Rare Disease Day

Shire's Brazil team joining hands to support Rare Dsiease Day!
Hands Across the Sand, East Bay (Alameda) by Angela Sevin
Los estudiantes junto a la Enfermedades Raras by Rare Disease Day

AHEDYSIA y los alumnos de 1ª y 2º TAPSD,1º y2º de Infantil del I.E.S. Malladeta(Villajoyosa)
Puma Bisenzio Rugby per trisomia 9 a mosaico by Rare Disease Day

Trisomia 9 a mosaico da Firenze
Rare Disease Seminar by Rare Disease Day

The National Alliance for Rare Deseases Support Malta held a Rare Disease Seminar targeted at healthcare professionals titled 'Where Every Patient Counts' as part of wareness campaign
Rare disease day by Rare Disease Day

Prune Belly Syndrome is a rare disease. IF the child makes it to 2 yrs of age, there life expectancy is 50%. Levi has beaten the odds!! Celebrating Rare Disease Day.
Razorfish Healthware team supports #RRD by Rare Disease Day

We will continue upload our photos of our team raising and joining hands for a better care!
Girls at the Rome Run4RARE in Rome by Rare Disease Day

UNIAMO Federazione Malattie Rare organizes Rome Run4RARE in Rome
Rare Disease Day Awareness by Rare Disease Day

We did a rare disease awareness shoot for rare disease day and also my accomplishments pertaining to the organizations and Community Partners I am involved in, due to the fact that I was born with four rare pediatric disorders that are recognized on N.O.R.D. If it wasn't for Nord I don't know who I would be today. They helped me come out of my shell and realize that it's okay to be who I am. Today I am now an active patient, volunteer, advocate & Inspiration for people.

Thank you, Thank you!!

 

Ashley Wurtz
Raise hands for Sam vs. VWM by Rare Disease Day

Raising our hands for Sam vs. Vanishing White Matter disease at Epcot. www.facebook.com/SamVsVwm
Maxence - Williams et Beuren by Rare Disease Day

Maxence, syndrome de Williams et Beuren

"Quelques gènes en moins ... ça vous gêne?"
UMF ”Carol Davilla” Bucuresti by Rare Disease Day

With the help and support of Mr. Mircea Ioan Popa MD, Ph.D., MPH Professor, Faculty of Medicine Department II / 2, Department Microbiology II Member of University Senate Pharmacy "Carol Davila" I received these wonderful photos. "Carol Davila" Bucharest (students are in Year 2 different series) raise hands for those with rare diseases. They are with the rare.
An associate special teacher sharing the love to those who are living with a rare disease' by Rare Disease Day
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