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hands across the sand - 2015 - 5161712 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
hands across the sand 2016 - 5211275 by bill doyle

hands across the sand 2016, glenelg beach, adelaide, south australia

 

because BP has no right to risk the great australian bight!

 

BP - of deepwater horizon fame - proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

 

#joinHANDS

#FightfortheBight
OIF Staff photo- Rare Disease by Rare Disease Day

Along with many other rare disease organizations and advocates, the Osteogenesis Imperfecta (OI) Foundation honors the millions of people worldwide living with a rare disease. Let's Join Together for Better Care! Happy Rare Disease Day 2014!
Hands Across the Sand, Morro Bay, CA, June 26, 2010 by Teddy Llovet

Betty Winholtz (far left), Morro Bay Mayor Candidate, joined hands with others.

 

People from across the world in over 700 locations joined hands to say no to offshore oil drilling and yes to clean energy and renewables. www.handsacrossthesand.com/
Cycle4RARE Fiesole Tuscany by Rare Disease Day

Cycle4RARE Fiesole Tuscany
Ensemble la mobilisation continue ! by Rare Disease Day

Plus d'infos sur www.hypophosphatasia.eu
I love Rare Genes by Rare Disease Day

My daughter has WAGR Syndrome...ultra rare with under 400 documented cases worldwide. The IWSA (www.wagr.org) strives to support families around the globe and stimulate research to enhance the lives of those with WAGR/11p Deletion Syndrome.
CSL Supports Rare Disease Day! by Rare Disease Day

CSL Behring is a global leader in the plasma protein biotherapeutics industry. We research, develop, manufacture and market biotherapies that are used to treat serious and rare conditions. This photo is sent from Parkville, Australia.
CSL Supports Rare Disease Day! by Rare Disease Day

CSL Behring supports Rare Disease Day. This photo is sent from Parkville, Australia.
CRPS (complex regional pain syndrome) by Rare Disease Day

Let's raise awareness for all rare diseases! I am living w/ CRPS (complex regional pain syndrome) & am hoping for a cure. ☀️ www.crpsforum.com
trisomia 9 mosaico by Rare Disease Day

Trisomia 9 mosaico
Volo di Pegaso event for Rare Disease by Rare Disease Day

Art and Science event of “Il volo di Pegaso” Prize-giving of the literary and artistic competition.
by steve p2008
hands across the sand - 4921 by bill doyle

local band jupiter music provides entertainment

 

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
my supportive colleagues by Rare Disease Day

My supportive colleagues for my son Anton, who has microdeletion 22q11.2.
hands across the sand - 4927 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Aniridia by Rare Disease Day

Hello! I represent the Russian organization with aniridia patients. In the picture, my daughter Lisa.
hands across the sand 2018 - 0918 by bill doyle

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Across the Land," National Day of Action to Say #NoKXL, May 17, 2014, on the Bob Kerrey Bridge in Omaha, Nebraska. Photo by J. Grace Young / Bold Nebraska

#NoKXL, #JoinHANDS
Centre for Medical Genetics, Vilnius by Rare Disease Day

Centre for Medical Genetics wishes a Happy RDD 2016!
hands across the sand 2018 - 0735 by bill doyle

the wilderness society SA's campaign coordinator cristel chambers performing MC duties

 

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight
Supporting Rare Diseases Day - 2 by Rare Disease Day

We all need to work together to succeed!
Joining together for better care in Finland by Rare Disease Day

Joining together for better care in Finland
CSL Supports Rare Disease Day! by Rare Disease Day

CSL Behring is a global leader in the plasma protein biotherapeutics industry. We research, develop, manufacture and market biotherapies that are used to treat serious and rare conditions. This photo is sent from King of Prussia, United States.
Rare Disease Day at Pfizer Canada - 7 by Rare Disease Day

Colleagues joining hands against rare diseases
Rotaract FIU Chapter by Rare Disease Day

Chapter member picture following the end to our Rare Disease Day photo event.

More photos available: www.facebook.com/pages/FIU-Rotaract/121916111238669
Supporting Rare Voices for Rare Disease Day by Rare Disease Day

the staff at Alexion Australia demonstrate their support for Rare Disease Day with Rare Voices Australia T-shirts and Jeans for Genes denim ribbons
Join Hands to help Nepal by Wildstar Beaumont
hands across the sand - 5305 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
"Hands Across the Land": National Day of Action to Say #NoKXL by Bold Nebraska

"Hands Around the Spirit Camp," National Day of Action to Say #NoKXL, May 17, 2014, in Ideal, South Dakota. Photo by Kernit Grimshaw / Bold Nebraska

 

#NoKXL, #JoinHANDS
hands across the sand - 5377 - [mono] by bill doyle

face painting stall, hands across the sand - an event organised by the wilderness society, south australia

 

the rally called on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
UMF ”Carol Davilla” Bucuresti by Rare Disease Day

With the help and support of Mr. Mircea Ioan Popa MD, Ph.D., MPH Professor, Faculty of Medicine Department II / 2, Department Microbiology Member of the University Senate. UMF "Carol Davila" I received these wonderful photos. UMF "Carol Davila" Bucharest (students are in Year 2 different series) raise hands for those with rare diseases. They are with the rare.
We support Rare Diseases research at the National Institutes of Health by Rare Disease Day

The Intellectual and Developmental Disabilities (IDD) Branch at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institutes of Health (NIH) supports research in many rare diseases. This includes research on natural history, biomarkers, and treatments and interventions for many rare conditions. We support Rare Disease Day!
hands across the sand - 2015 - 8978 by bill doyle

the wilderness society's 'hands across the sand' event for 2015, highlighting public concern for the potentially disastrous consequences if a spill similar to the deepwater horizon oil-spill in the gulf of mexico was to happen in our waters, given that the company responsible - BP - is currently applying to drill in the great australian bight

 

glenelg beach, south australia, australia

 

#joinHANDS

#oilfreeseas

#oilspillsR4eva
hands across the sand 2018 - 0845 by bill doyle

hands across the sand 2018, semaphore beach, adelaide, south australia

  

because no oil company has the right to risk the great australian bight!

  

norwegian company statoil recently changed its name to equinor and promises to shift its operations towards clean energy production, but it still proposes to undertake offshore drilling operations in the bight in south australian waters, threatening one of the most pristine marine habitats in the world

  

#joinHands

#UnderwaterWilderness

#FightForTheBight
hands across the sand - 5241 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS

#joinHANDS
University Square Stratford Join Hands by Rare Disease Day
hands across the sand - 4926 by bill doyle

hands across the sand, an event organised by the wilderness society, south australia

 

the rally calls on the community to 'join hands in support of a clean energy future and to oppose BP's plans to begin deepsea drilling in the Great Australian Bight whale nursery and siesmic testing in the sensitive waters off Kangaroo Island by Bight Petroleum, which are planned to begin in 2015'

 

semaphore foreshore reserve and beach, adelaide, south australia

 

hands across the sand

 

#BP_BIGRISKS #joinHANDS
Kate my sweet girl by Rare Disease Day

Kate was diagnosed with FPIES at 7 months old. It's been one crazy journey, but I wouldn't change a thing...she has brought so much joy to our lives!
Joining hands for rare diseases in Guissona (Catalonia) by Rare Disease Day

In 2012 we recorded a lipdub in the Residence for the elderly in Guissona. We had a great time and we enjoyed that day. We want to participate on the Rare Disease Day by sharing one of those pictures.

Foro stenopeico - Pinhole 1 - Negativo su carta by Francesco Belsito

Storia di questa foto:

Foro stenopeico, pinhole. Questo è un negativo su carta, la mia prima foto con il foro stenopeico.

 

Ho fatto due calcoli per l'esposizione, erano 8 min, nel frattempo mi sono messo a fare altre cose, quando sono andato a chiudere l'otturatore erano passati 9 min e 30 sec.

Messa in positivo con photoshop, la foto è un pò sovraesposta ( la scannerizzazione ha comunque accentuato la sovraesposizione), quindi i miei calcoli sugli 8 minuti erano più o meno giusti, questo mi fa capire che il foro è uscito della larghezza che avevo immaginato.

 

La fotocamera stenopeica l'ho costruita così:

Scatola di scarpe da bambini+ foro costruito con un pezzo di vassoio di alluminio , quello dove qualche volta si mettono pop corn e patatine alle feste per intenderci

Foro fatto con l'ago più fino che avevo che ad occhio e croce mi sembrava mezzo millimetro e che si è rivelato proprio di mezzo millimetro visti i calcoli di esposizione. Poi ho costruito una sede per un otturatore che scorre orizzontalmente, sia la sede che l'otturatore costruite con del cartone bello spesso , che ho riciclato da una copertina di libro da bambini che i miei figli avevano fatto a pezzi.

Poi tanto nastro isolante nero.

 
Feeling the love by Rare Disease Day

Chisholm trail middle school students wore pink and blue in support of Brooke.

#doparesonsivedystonia
3 cousins by Rare Disease Day

Philomène Méline et Paul
Living With Albinism & Intracranial Hypertension by Rare Disease Day

My kids supporting each other for Rare Disease Day 2015 for Max who's 6 with OCA2 and idiopathic intracranial hypertension and Saydie who's 3 and has OCA2.
Unis, réunis sur les cancers rares du péritoine by Rare Disease Day

Mobilisation autour du professeur Marc Pocard, hôpital Lariboisière, pour mieux comprendre les actions, recherches,collaborations multiples menées pour la prise en charge des tumeurs rares du péritoine.
UMF ”Carol Davilla” Bucuresti by Rare Disease Day

With the help and support of Mr. Mircea Ioan Popa MD, Ph.D., MPH Professor, Faculty of Medicine Department II / 2, Department Microbiology Member of the University Senate. UMF "Carol Davila" I received these wonderful photos. UMF "Carol Davila" Bucharest (students are in Year 2 different series) raise hands for those with rare diseases. They are with the rare.
UMF ”Carol Davilla” Bucuresti by Rare Disease Day

With the help and support of Mr. Mircea Ioan Popa MD, Ph.D., MPH Professor, Faculty of Medicine Department II / 2, Department Microbiology Member of the University Senate. UMF "Carol Davila" I received these wonderful photos. UMF "Carol Davila" Bucharest (students are in Year 2 different series) raise hands for those with rare diseases. They are with the rare.
ÍNTEGRACIÓN FUPER by Rare Disease Day

Compartir es mejorar la calidad de vida de las personas que conviven con enfermedades raras
Forno di campagna di Reggio Emilia partecipa alla giornata delle malattie rare! by Rare Disease Day

Da quando è nata mia figlia Caterina con la Sindrome di Williams anche i miei colleghi e i miei titolari ci sostengono nel duro percorso che c'è da percorrere con un malato raro.. ed eccoci qui tutti insieme a partecipare al flash mob per gridare ad alta voce: CI SIAMO ANCHE NOI!! PERCHE' SI E' RARI.. MA NON SOLI!!! <3
digital Wales by Rare Disease Day

the Pembrokeshire voluntary services team Raise hands for Raredisease at the communities 2.0 conference in Cardiff, Wales

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