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Watch video interview here Betty Jones Alston was paralyzed from the waist down this January due to multiple sclerosis which she was diagnosed with in 1990. She had begun dropping things and attributed it to being very busy and worn down directing a food ministry and prison ministry, but it was not so.

 

But she is walking again and on a recent chilly spring day, she was methodically making her way down the steep entrance steps of the J.S. Jenks School after a meeting about her grandson, a student. She placed her three-footed aluminum cane on the step below her before taking each step.

 

Also afflicted with lupus Minister Alston credits her faith, positive attitude and taking control of her body for enabling her to continue to lead an active life. She also sings gospel but due to a recent illness, was not able to sing in the accompanying video.

 

My partner has MS - this is 2 months' worth of her Rebif (Interferon) injections. (Three times a week, in the butt.) It's not an enjoyable experience, nor was it working for her after several years. She began a new treatment in November '07, a monthly infusion called Tysabri. She already feels better. For more information about MS, click here: www.nationalmssociety.org

My support group recommended that I slow down in order to heal more. Thing is…

I don’t know how to slow down.

 

Copyright © 2021 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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This weekend I jumped on an online call with other folks from all over the world that were part of my HSCT group in Puebla last fall. It was really good to catch up with them ^_^

 

Copyright © 2021 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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I can ski on one leg if I need to - Paul Grout

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

This past year I have had to dig deep to have courage to do self injections as part of the treatment for this uninvited guest that is in my body called MS. I have anxiety each time I have to do this, it really does not hurt-most of the time. The side effect is fluish symptoms so I do this at night so I can sleep through it.

Facing fears...this past decade has been about that. ..divorce, finding a job, illness, self-doubt.

One day at a time, it's okay to fall down, get back up & keep moving forward...courage even when it feels like fear, let go and see the power within and the beauty that radiates of the simplicity of each day...live life in the light of peace & love.

Our rest place in the clouds.

Taken by Aparna Guha

Norah O'Donnell and Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Stones carved with Sanskrit mantras guide our way back through the mountains and villages.

Taken by Aparna Guha

Kellie Romer, Jill Hodges, Carrie Marriott, Amy Baier. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

Chris Broullire, Corby Lawrence. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014

I always enjoy volunteering for charity work for those who are more courageous than I am especially for those among us who live and fight a much tougher battle everyday in their family lives. I had an opportunity to volunteer my photography services for the MS Society last week for a WAMS function and this candid moment, as they prepared for their portrait shot in the booth, makes my two hours of driving in an ice storm worth every moment.

 

April, 16th, 2013 - I must take a moment here to thank my photojournalism instructor Peter Sibbald - www.petersibbald.com who opened my eyes to the world of capturing humanity through my camera lens. Though I took this class for the purpose of enhancing my wedding photography skills, he taught and guided me to see beyond the surface and reach deeper into capturing the relationships between people. Thank you Peter.

 

For more photos I have taken for MS Society, please visit the links below:

2013 WAMS (5D3) www.flickr.com/photos/msontarioevents/sets/72157633163752...

MS Bike Tour (5D3) www.flickr.com/photos/msontarioevents/sets/72157631566284...

MS Bike Tour (7D) - www.flickr.com/photos/msontarioevents/sets/72157627810616...

MS Bike Tour (T2i) - www.flickr.com/photos/msontarioevents/sets/72157624870782...

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

She doesn't always walk with a cane -- only when the M.S. symptoms are flaring. But, she's still coming along with me. Even if the walk is slow.

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Listen: Kickstart My Heart by Motley Crue

 

It was 2 years ago today that I received my own stem cells directly to my heart via a PICC line surgically installed.

 

© 2022 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

A flock of sheep in West Lothian have turned orange to celebrate MS Week 2012 (30 April – 6 May). They have been given the coat of animal-friendly paint by farmer Andrew Jack to help raise awareness of multiple sclerosis in Scotland.

 

www.msfightback.org.uk

 

©DN Anderson

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

We watched this helicopter fly in and land to evacuating some climbers from 4620 m. Not an easy job I can imagine, but they did it with precision and grace.

Taken by Aaron McCourtie

 

Waiting for the Bus to Les Houches - Day 1

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Multiple sclerosis is really a very serious and hard condition as it affects nerves. Multiple sclerosis is really a disease that ” attacks” the nerves fund un your spinal cord or your brain. Due to this, you’ll suffer with issues with controlling muscle tissue, vision and your...

 

healthsame.com/ms/multiple-sclerosis-fact-sheet/

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

Mount Vernon, WA | Sept. 10-11, 2016 | Photo by Jessica Jones

One of the items I made sure to monitor, after my stem cell transplant, was to adjust my diet. I didn’t eat badly before. I adjusted so that fewer things would have an adverse affect on my health. Now, I’m mostly vegetarian, for instance. I do feel better in general, cleaner. I need to monitor what I ingest.

There are a few meds I need to continue to take.

Not for MS though :-)

 

© 2023 Vic Bonilla All Rights Reserved.

Do not reproduce this image without expressed permission from the photographer.

 

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