View allAll Photos Tagged SickleCell
Graphic for SCOOTER - an Open Educational Resource project from De Montfort University, Leicester, UK.
Outdoor Sickle Cell Fashion Show on 19th June 2021. The Event was part of Sickle Cell Society Ireland [@Sicklecellireland] education and awareness programme of events. I was invited to take photos at the event
The 19th of June has been declared as World Sickle Cell Day by WHO. Every year Sickle Cell Society Ireland celebrate the lives of people affected by sickle cell in the World. This year in Ireland was the 9th year of official events
Caption: John F. Tisdale, M.D., chief of the Cellular and Molecular Therapeutics Branch at NIH’s National Heart, Lung and Blood Institute, participates in the “No Disease Left Behind, No Patient Left Behind” panel session at Rare Disease Day at NIH on Feb. 28, 2019.
Credit: Daniel Soñé Photography
Hereditary blood diseases. Be guided by the results of the pre-marital genetic testing.
CHILDREN WHO SUFFER FROM SICKLE CELL & THALASEMIA BENEFIT FROM BLOOD TRANSFUSIONS - Please donate your blood.
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
The face of a sick child afflicted by a hereditary blood disease.
Be guided by the results of the pre-marital genetic testing.
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة .
Special thanks to: Mrs. Hoda Al-Mansour.
Hereditary blood diseases. Be guided by the results of the pre-marital genetic testing.
CHILDREN WHO SUFFER FROM SICKLE CELL & THALASEMIA BENEFIT FROM BLOOD TRANSFUSIONS - Please donate your blood.
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
Allahu al mujeeb. God answers supplications.
May God grant recovery and good health to all, children of the Eastern Province of Saudi Arabia and all ethnically high risked persons worldwide.
Be guided by the results of the pre-marital genetic testing.
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
NIH scientist Dr. Makio Murayama with the molecular model he built to study sickle cell disease. Using the model, he discovered why red blood cells take on a sickle shape in people with the disease and developed the first effective therapy with Dr. Robert Nalbandian. Photo circa 1955.
Credit: National Institutes of Health
Hereditary blood diseases. Be guided by the results of the pre-marital genetic testing.
المصاب : تظهر عليه أعراض المرض
ويمكنه الزواج من شخص سليم لإنجاب أطفال أصحاء
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
Outdoor Sickle Cell Fashion Show on 19th June 2021. The Event was part of Sickle Cell Society Ireland [@Sicklecellireland] education and awareness programme of events. I was invited to take photos at the event
The 19th of June has been declared as World Sickle Cell Day by WHO. Every year Sickle Cell Society Ireland celebrate the lives of people affected by sickle cell in the World. This year in Ireland was the 9th year of official events
The Board of Supervisors designated September 2019 as Sickle Cell Awareness Month in Fairfax County.
In 2008, a rare winter storm buried Portland, Oregon under more than a foot of snow. The city was gridlocked. Nickole Chevron was stuck in her home for eight days. Many people would consider that an inconvenience. For Nickole, whose muscles are too weak to support her body, those eight days were potentially life-threatening.
Born with spinal muscular atrophy, a genetic disease that progressively weakens the body's muscles, Nickole is fully reliant on a wheelchair and full-time caregivers for most routine tasks. Being alone for eight days was not an option. So Nickole signed up for "Ready Now! [PDF - 4.8MB] ," an emergency preparedness training program developed through the Oregon Office of Disability and Health .
"The most important thing I learned from 'Ready Now!' was to have a back-up plan in case of an emergency situation," she said. "When I heard the snow storm was coming, I emailed all my caregivers to find out who lived close by and would be available. I made sure I had a generator, batteries for my wheelchair, and at least a week's supply of food, water and prescription medication."
Nickole said the training was empowering, and reinforced her ability to live independently with a disability. She felt better informed about the potential risks people with disabilities could encounter during a disaster. For example, clinics might close, streets and sidewalks might be impassable, or caregivers might be unable to travel.
Among the tips Nickole learned from Oregon's "Ready Now!" training are:
• Develop a back-up plan. Inform caregivers, friends, family, neighbors or others who might be able to help during an emergency.
• Stock up on food, water, and any necessary prescription medications, medical supplies or equipment. Have enough to last at least a week.
• Make a list of emergency contact information and keep it handy.
• Keep a charged car battery at home. It can power electric wheelchairs and other motorized medical equipment if there is an electricity outage.
• Learn about alternate transportation and routes.
• Understand the responsibilities and limitations of a "first responder" (for example, members of your local fire department of law enforcement office) during a disaster.
"This training shows people with disabilities that they can do more to triage their situation in a crisis than anyone else can," she said. "'Ready Now!' encourages people with disabilities to take ownership of their own care."
CDC would like to thank Nikole and the Oregon Office of Disability and Health for sharing this personal story.
Learn about disability and health >>
Learn about emergency preparedness for people with disabilities >>
"My name is Rahul Kapoor, and I was born with thalassemia, a blood disorder which requires transfusions every other week to keep me healthy and alive. When I get transfused, the whole process takes seven or eight hours, which means I have to do a lot of "working around" to fit it in my schedule. Also, on transfusion days, I am given several pre-meds which cause me to become very drowsy and keep me from eating properly or functioning for basically an entire day. There are a lot of complications associated with thalassemia, especially transfusion-related iron overload which requires a daily drug treatment, and sometimes it can be scary knowing that excess iron will damage my heart and liver if I can't get it out. But thanks to the expert care I receive from experienced and knowledgeable doctors, I am able to lead a fulfilling and rewarding life.
"Right now, I am studying microbiology at the University of Georgia; I want to study medicine so that I can help people, just as others have been able to help me. My goal is to study hematology, concentrating on blood diseases. Eventually, I would really like to travel the world and treat patients in places where blood disorders like thalassemia are especially prevalent.
"Giving back to others is something I've learned from my own family. I would never have been able to handle all of the challenges associated with thalassemia had I not had a family that was willing to seek out the information that we needed and the medical care that we needed to deal with such a demanding disorder. And they have always been willing to give up a lot of their time to make sure I can stay healthy. Now I hope to one day be able to help others who face difficult medical challenges. I think that knowing from my own experience what they have to go through will help me to better help them."
CDC would like to thank Rahul and the Cooley's Anemia Foundation for sharing this personal story.
The girl in the photo with us is cousin Karen. This is my favorite picture of her(my Mom). She died a year later,10/27/76 of Sickle Cell Anemia at the age of 21.
Rock Hill, SC
Being alone is when my mind just goes wild. If I'm in any pain from my Sickle Cell things can get bad quickly.
More and more I'm forgetting things like where I am, who I am and who my friends are. My pain crisis last longer and are more frequent.. I've never had anxiety before but it gets so bad I can't control my breathing. I get dizzy and often times I fall.
The stress of being sick and alone is truly getting to me.
Outdoor Sickle Cell Fashion Show on 19th June 2021. The Event was part of Sickle Cell Society Ireland [@Sicklecellireland] education and awareness programme of events. I was invited to take photos at the event
The 19th of June has been declared as World Sickle Cell Day by WHO. Every year Sickle Cell Society Ireland celebrate the lives of people affected by sickle cell in the World. This year in Ireland was the 9th year of official events
March 17, 2022
About 100,000 people in the United States have sickle cell disease - most are of African descent. Today, we hosted a forum on the need for diverse blood donors in the fight against this disease.
Our CEO, Celena Roldán facilitated the panel discussion, which highlighted the importance of African Americans donating blood due to unique attributes that can benefit sickle cell patients. Dr. Yvette Miller, executive medical director of the Red Cross, discussed how people with sickle cell historically have been underserved in healthcare. Janine Hopkins, our Illinois region sickle cell account manager and Linda Hubbard, who lost a son to sickle cell, also joined the panel. The conversation included an overview of the disease and its reach, and included a look at the pain and suffering sickle cell patients face on a regular basis. Thank you to all of the panelists for providing your valuable insights today.
Visit rdcrss.org/3p7idMr to learn more about sickle cell and please consider giving blood to help in this fight!
Hereditary blood diseases. Be guided by the results of the pre-marital genetic testing.
حامل المرض : يحمل صفة المرض ولا تظهر عليه
الأعراض ومن الخطر ان يرتبط بشخص حامل للمرض مثله
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
Five-year-old Ansu is spooning up high calorie milk with a big appetite. MSF has been treating the little boy for severe malnutrition for a week now. He is a patient at the Gondama Referral Centre (GRC) in Sierra Leone. In his first few days at GRC, Ansu lost more weight. This is a typical result of the oedema that can come with severe malnutrition and happens when the body sheds the previously retained fluids. Now Ansu is slowly starting to regain weight. If he maintains his appetite, he will soon be put on ready-to-use therapeutic food instead of the milk. Ansu also suffers from sickle-cell disease, or sickle-cell anaemia. This is a genetic blood disorder characterized by red blood cells that assume an abnormal, rigid sickle shape. The sickle-cell disease weakens Ansu further. His liver is enlarged and he suffers from severe anaemia. When Ansu first came to GRC, his haemoglobin count was down to 1 which is life-threateningly low. He was immediately given a blood transfusion and antibiotics for reasons of precaution - for a healthy child of his age a count of 11 to 14 g/dl is normal. On average, MSF treats 150 children with severe malnutrition each month. In Sierra Leone, severe malnutrition is a major problem, in particular during the hunger gap between May and July every year. Foto: Annika Schaefer
Being alone is when my mind just goes wild. If I'm in any pain from my Sickle Cell things can get bad quickly.
More and more I'm forgetting things like where I am, who I am and who my friends are. My pain crisis last longer and are more frequent.. I've never had anxiety before but it gets so bad I can't control my breathing. I get dizzy and often times I fall.
The stress of being sick and alone is truly getting to me.
Sickle Cell support. Celine Dion concert in Las Vegas supporting the Children's Hospital Boston
Jan 15 2012
Photos By Denise Truscello
Outdoor Sickle Cell Fashion Show on 19th June 2021. The Event was part of Sickle Cell Society Ireland [@Sicklecellireland] education and awareness programme of events. I was invited to take photos at the event
The 19th of June has been declared as World Sickle Cell Day by WHO. Every year Sickle Cell Society Ireland celebrate the lives of people affected by sickle cell in the World. This year in Ireland was the 9th year of official events
Croydon's Sickle Cell and Thalessaemia Centre, Whitehorse Road.
The signs show the distribution of sickle cell and thalessaemia genes across the globe. None in Croydon, apparently. They're going to move the centre 2500 miles to the South, so it's more accurately positioned.
Hereditary blood diseases. Be guided by the results of the pre-marital genetic testing.
السليم : لايحمل صفة المرض
ويمكن أن يرتبط بشخص مصاب أو حامل للمرض
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة
Special thanks to: Mrs. Hoda Al-Mansour.
Little girl petting a dog at the Walk For Sickle Cell held Sat morning on Oct 24, 2015 in Houston, Texas.
Outdoor Sickle Cell Fashion Show on 19th June 2021. The Event was part of Sickle Cell Society Ireland [@Sicklecellireland] education and awareness programme of events. I was invited to take photos at the event
The 19th of June has been declared as World Sickle Cell Day by WHO. Every year Sickle Cell Society Ireland celebrate the lives of people affected by sickle cell in the World. This year in Ireland was the 9th year of official events
Being alone is when my mind just goes wild. If I'm in any pain from my Sickle Cell things can get bad quickly.
More and more I'm forgetting things like where I am, who I am and who my friends are. My pain crisis last longer and are more frequent.. I've never had anxiety before but it gets so bad I can't control my breathing. I get dizzy and often times I fall.
The stress of being sick and alone is truly getting to me.
Young kid participating in The Walk For Sickle Cell held Saturday morning Oct 24, 2015 in Houston, Texas.
Be guided by the results of the pre-marital genetic testing.
السبب الرئيسي
في إصابة الأطفال بأمراض الدم الوراثيه
هو تجاهل الطرفين المقبلين على الزواج نتيجة الفحص الطبي الذي قاما به مما يؤدي إلى زواج رجـل حامـل لصفـة المرض من إمراة حاملة لنفس صفة المرض ، الأمر الذي يتسبب في ولادة أطفالهما مصابين بهذا المرض الخطير ..
الآثار السلبية الإجتماعية للقضية:
عملية الإجهاض في حالة ثبوت إصابة الجنين بهذه الأمراض .
الطلاق وهو أبغض الحلال عند الله عز وجل .
تزايد عدد المصابين بهذه الأمراض كل يوم .
السلوكيات الخاطئة : إهمال أهالي المرضى لعلاجهم – الآثار النفسية السيئة للمريض وعائلته جراء هذه الأمراض المزمنة .
Special thanks to: Mrs. Hoda Al-Mansour.