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Sickle Cell Promotion Photoshoot, Balbriggan Beach, Dublin, Ireland

Children at The Walk For Sickle Cell held Saturday morning Oct 24, 2015 in Houston, Texas.

Abnormal, sickled red blood cells blocking blood flow in a blood vessel. The insert image shows a cross-section of a sickle cell with abnormal (sickle) hemoglobin forming abnormal strands. (Graphic from National Heart, Lung and Blood Institute. www.nhlbi.nih.gov/health/health-topics/topics/sca/)

 

Read the article: www.militaryblood.dod.mil/viewcontent.aspx?con_id_pk=1453

Georgia National Guard's own Sgt. Latoya Tucker (in black warm-up suit) of Joint Force Headquarters participates in the 31st Annual Sickle Cell Road Race. The race includes a 7k road race, a 4k walk, and team competitions. Tucker, whose son has sickle cell, is joined with her boss Lt. Col. Mark Powers (in army PT uniform). “Leading is not only talking the talk,” he said, “but in this case, it’s literally walking the Walk.”

NIH Clinical Center patient Tesha F. Samuels (left) shares her journey with sickle cell disease during the “No Disease Left Behind, No Patient Left Behind” panel session with John F. Tisdale, M.D. (right), chief of the Cellular and Molecular Therapeutics Branch at NIH’s National Heart, Lung and Blood Institute at Rare Disease Day at NIH on Feb. 28, 2019.

 

Credit: Daniel Soñé Photography

 

More Info: bit.ly/2SG7cRj

Kenneth Peterson, a professor and vice chair in the biochemistry and molecular biology department at KU Medical Center, is researching compounds that counteract the effects of sickle cell disease.

 

This hereditary blood disorder, which affects 3-4 million people worldwide, can cause strokes, anemia, and organ damage. Most in the U.S. die by age 50.

 

Today, there is no cure, there’s only treatment. And most of those treatments are ineffective or costly.

 

“As basic scientists, we can make a fundamental contribution to the movement of medical science without actually seeing patients,” Peterson said. “The idea is that if we can discover a compound and we can make it into a good pharmacologic, that it will be that sort of magic $3 pill.”

 

Learn more: bit.ly/1sQ3rv4

Graphic for SCOOTER - an Open Educational Resource project from De Montfort University, Leicester, UK.

Being alone is when my mind just goes wild. If I'm in any pain from my Sickle Cell things can get bad quickly.

 

More and more I'm forgetting things like where I am, who I am and who my friends are. My pain crisis last longer and are more frequent.. I've never had anxiety before but it gets so bad I can't control my breathing. I get dizzy and often times I fall.

 

The stress of being sick and alone is truly getting to me.

10th Anniversary Conference Academy for Sickle Cell and Thalassaemia Conference (ASCAT)

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