View allAll Photos Tagged multiplesclerosis!
For years, I've been giving my wife an injection each evening.
With multiple sclerosis, the body's immune system attacks the myelin coating on the nerves. Copaxone serves as a decoy, attracting the body's defense system away from what it shouldn't be attacking in the first place.
All this time, I've been using a plastic, spring-loaded "auto injector" to administer her medication. Years of this practice has caused some trouble with her skin.
So, today a home health nurse came to the house and taught me to inject with only the syringe. I practiced on a device that simulates the resistance of human skin.
I have yet to sink a needle into another human being, manually. But, I am soon to be initiated! The nurse says it'll actually be less painful for Janice than the auto-injector's spring-forced assault.
And quieter.
MS Awareness Week runs from 21st - 27th May.
Multiple Sclerosis effects around 70,000 in the UK. It is a disease which is more common in woman.
It affects the ability of nerve cells in the brain and spinal cord to communicate with each other, electrical signals are sent by the nerve cells down long fibres called axons which are wrapped in a substance called myelin. In MS, the body attacks and damages the myelin, when myelin is lost, the axons can no longer effectively conduct signals which explains alot of the symptoms within MS.
The most common and early symptoms of MS include tingling, numbness, loss of balance, weakness in one or more limbs, blurred or double vision. As the disease progresses other symptoms will become aparent, these can include muscle spasms, fatigue, heat sensitive, impaired thinking, mobilitly and problems with speech and swallowing.
There are 6 stages of MS these are •Benign Multiple Sclerosis
•Relapsing Remitting Multiple Sclerosis (RRMS)
•Secondary Progressive Multiple Sclerosis (SPMS)
•Primary Progressive Multiple Sclerosis (PPMS)
•Malignant Multiple Sclerosis (Marburg Variant)
•(Chronic Progressive Multiple Sclerosis)
Relapsing Remitting Multiple Sclerosis
is the most common form of MS. During this form of the disease, patients tend to experience an attack or series of attacks followed by complete or partial remission.
There is no known cure for MS, however research is on going, there have been break throughs in medication in the last few years which have helped ease some of the symptoms that people suffer from.
My mum has MS, she was diagnosed in 2003 after suffering from an awful MS attack, it was so bad she couldnt talk or barely move, she thought she was having a stroke it wasnt until she was admitted into hospital that she was diagnosed. As time has gone on the dicease has progressed as has her symptoms. She truley is an amazing woman, she fights the dicease everyday and everyday I look at her in awe. I am very proud to call her my mother.
*Please do not use any of my pictures in websites or blogs without permission.
Every day, we had our apartments cleaned, and the patients were invited to the garden roof to wait for the cleaning to finish, to get some sun, and participate in activities. Several times an artist, Monik, treated some of the patients to painting techniques. Even if they have not painted before ^_^
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
There is what is called the EDSS Score. It is used to measure your disability. 0 is none, 10 is death. I went from about a 2 to 6 in a little less than a year.
My MS was VERY aggressive.
I’m very loath to think of how I would have been next summer.
Remember that I felt I was being dragged down? I had no idea that the bottom was worse than I imagined.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
This is yours truly with my better three quarters, captured with my phone by a staff member at today’s MS Awards Ceremony in London.
‘Kiss Goodbye to MS ‘ is a fundraising challenge by the MS Society UK challenging people to give up something during the month of May. The aim of this is to raise money for research into the condition . Huw himself is giving eating up cheese ;-)
" Some 110,000 are diagnosed with MS across the UK, a neurological condition which creates a disability unique to the individual. There is no cure and so the MS Society for (which I volunteer) through its fundraising, supports research to provide disease modifying drugs, seek to find a cure whilst simultaneously providing support across the UK to all affected by MS"
I would love to use this as my Photo a Day but being a stickler for rules, as mentioned above I didn’t take it myself.
Part of the 2002 Dartford MS Funday. Scooters were lent to allow people to race along the running track (at walking speed).
I have four legs, the two polka dot ones work a little more reliably than the other two. I won't be completely defined by the MS but it is a very large and influential part of my life. I thought I'd try and capture some of how my MS and I relate ;-)
A few more shots from the walk to raise funds to fight Multiple Sclerosis. The M. S. Walk took place in multiple locations, yesterday. I attended the one in Hershey, PA.
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
HEALTH
the golden inner glow
a state of mind
sometimes my body fails to function as it should
sometimes my body fails to respond as it should
my body will never be completely well again
but my illness does not define who I am, or who I can be
I am not my illness, and my illness is not me
as long as I can feel life is worth living
I will live life as well as I can, and for me that is healthy living.
Every comment, view and fave continues to bolster my pledge to MS Australia to support research efforts into this disease. Thank you for your continued support, your words, your stories, your photos.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
Neurology is a branch of medicine dealing with disorders of the nervous system. Neurology deals with the diagnosis and treatment of all categories of conditions and disease involving the central and peripheral nervous system including their coverings, blood vessels, and all effector tissue, such as muscle. Neurological practice relies heavily on the field of neuroscience, which is the scientific study of the nervous system.
Read about The ‘Giant’ Scope of ‘Mini’ Brains - bit.ly/2eEvDze
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
One of the things I took to heart was to do small things to advance myself while healing. What I didn’t know was that too manny small things have the opiate effect.
Now I’m paying for that.
With interest.
© Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
One of Janice's favorite tee shirts. For her, it refers to the slowness that comes from multiple sclerosis. I'm glad she has a sense of humor!
Below the graphic, the shirt says, "We'll get there when we get there!"
Baking with MS .... One minute your holding the muffin try and then your dropping the muffin tray #multiplesclerosis #fuckyoumultiplesclerosis #multiplesclerosisfighter #baking #foodporn #messykitchen #selfcleaningoven
8 Likes on Instagram
Having #multiplesclerosis the energy I spend needs to be focused on me and what I'm doing. . Spending my time watching the "Winners" within my area doesn't help me, it wastes my time and energy. . Granted, yes, I do learn from the A-Listers with how they do certain things so I can emulate it and make it better. I try not to compare or compete because my energy is better spent focusing on me and my efforts. . Watching winners enables negative thinking in my life. So I chose to focus on my personal progression! . #lifechoice #focusonyourself #michaelphelps #winnersclub #olympicgold #successtips #lifetip #bethebestyou #focusingonme
When I was a kid I found this book in my dad’s shelf. It was very intimidating being over 1000 pages. I’d read this instead of doing my homework (ah well) because it was so riveting and fed my imagination. I have trouble reading books, now, due to my MS (can’t concentrate and retain what I read and I tear the pages because of my tremors). So I was able to download the unabridged audio book from the library (53 hrs long). I just finished listening to it and still love the story.
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Paralyzed Veterans of America hosts its third annual Summit + EXPO, bringing together top researchers and health professionals to share best practices and learn about the latest research, treatments and therapies in spinal cord injury/disease and multiple sclerosis (MS) health care. To learn more about Summit 2013, please visit www.pva.org/summit2013.
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
The theme for the Kiss Goodbye to MS photo challenge is "today" .. and it has been a glorious autumn day in Sydney. Blue skies, a few fluffy clouds, and even some flowers still out praising the sun.
Remember every view, fave and comment adds to my pledge to the KGTOMS campaign. The current tally is $597.15
Only 6 days left to share an image with the pledge to kiss goodbye group to help raise awareness about MS. Thank you to everyone that has contributed so far.
I also have a fund raising page, Palo's Pledge, that accepts donations on behalf of MS Australia to further research into this disease.
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COPYRIGHT © Dragon Papillon Photography. 2013. All rights reserved.
Janice cools off in a sprayer set up for that purpose. People with multiple sclerosis are especially susceptible to hot weather.
Friday is usually my "day off," but this week I'm working seven days. So, I have to scoot. Here's a quick post from the M.S. Walk. Happy Fence Friday! If you're in the area where I live, stay dry!
I had been standing here waiting for a people-free shot of Fort Point when I realized it was not going to happen. Just as I was putting my camera down I noticed the red wristband this guy was wearing. For ten years I've worn the MS Society's red "HOPE" wristband and I wondered if he was a 'kindred spirit' even if not a Walk participant...
Prime Minister Theresa May held a reception at Downing Street for the MS Society and to recognise the hard work happening within the multiple sclerosis community.
Onyx with her MS Flappy and MS Loofa toys that came from Care-a-Lot Pet Supply. The profits from these toys and other MS items sold by Care-A-Lot are donated to the National Multiple Sclerosis Society to go toward research for finding a cure.
Seventeen years ago this week I awoke one morning with symptoms that would later be diagnosed as Multiple Sclerosis. The onset of my symptoms were sudden and the progression quick and quite unusual. Within a year of my first symptoms I was using a cane and six months after that I walked into the hospital and came home five weeks later in a power wheelchair, unable to use my legs and with limited use of my right arm. Two years later the MS affected my respiratory system and two years after that I was trached and put on a vent. I have been in the power wheelchair for 15 1/2 years and on the ventilator 24/7 for 11 1/2years. Despite the limitations imposed on me by the MS not much slows me down! I am grateful and very fortunate to have a wonderful family, great friends, and an exceptional team of medical professionals - all of who are very supportive and help to enrich my quality of life. I also have Onyx who enriches my life, makes me smile every day, is a great helper, and my very best friend.
Life is a funny thing. Sometime we do not think how much we were given.
Imagine yourself at age of 26, making meal for friends, when suddenly your vision goes away in one of eyes. Imagine panic and confusion you would have when it doesnt come back. And then doctors would toss you around, and ... then they will tell you you got Multiple Sclerosis (MS). And you are ONLY 26 years old!
MS is a disease that makes you suffer in silence. It’s a slow progression, one day you can practice yoga, the next morning you can’t even get out of bed. Sometime pain is only thing around you, blinding, crippling, pushing you down. There are few forms of this disease, but they all have same end result.
Terminal.
And younger you are, faster it progresses. Some older folks getting diagnosed around 60-70 and pushing 90s now. People who diagnosed around 20s - rarely live past 30.
But Svetlana didnt give up. She is a born fighter, she threw herself at the researching about MS, created one of the most popular MS support sites and helped others.
9 long years battle continues. 9 long years, sometime going to wheel chair, sometime going with cane, sometime just walking slowly - she lives, she fights. Every step. Every day. We, her family, helping her as much we could, but most importantly she has amazing inner strength that keeps her moving, working and not complaining how hard it is for her, how horrible her days are.
Her life became series of visits to doctors, MRI scans, trials with various medical solutions that should help stabilize MS patient.
Alas, 9 years in, every single existing medical solution is exhausted and nothing helped. She starting to detiorate more rapidly than ever before and 10 more active lesions now show up on latest MRI. She shouldnt even be able to move. Yet - she does fight on. But ghost of wheelchair is more and more materializing in front of us through past two years.
Our youngest is 7 years old now, and , bearing with typical MS lifespan prediction she wont see him graduate.
Hematopoietic stem cell transplantation (HSCT) is a
relatively new procedure for MS patients. We started doing research, asking ,applying everywhere. Two places accepted her application - facility in Russia and facility in Chicaco. Both are not free, one is 45K USD and travelling overseas, another is 125K USD (and place where her family can come and visit her). Given recent progression of the disease doctors recommend to do HSCT as soon as possible, but money is where it all stops, as such amount is beyound our pockets for now .
www.gofundme.com/lanamsfighter
If you got something to spare to help Lana to get procedure done so she can see her grandkids , please donate to this cause. If you stranded - just send Lana smile and a good thought. She can use them too.
Thank you.
I got this tattoo on 4/11/2012 It reads m.s. warrior. Living with multiple sclerosis is a daily fight, there is no cure, no ribbon for" I beat ms" or "ms survivor" so.. I came up with this... it is my own lousy handwriting :)
Next Saturday is the local MS Walk, the major annual fundraiser for the National Multiple Sclerosis Society. I lived in San Francisco when my son was diagnosed, and started doing this fundraiser walk there, where they provided bibs. Each year I added my new bib to this train. When I asked the New Orleans chapter why they didn't provide race bibs, the rep said "Well, the MS Walk isn't actually a race..." (A significant number of participants complete the walk in wheelchairs or walkers...)
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Today my constant companion and I celebrate 5 years ... an intense, life changing, love hate relationship...
I tell myself that in hating this disease, I have learned to love myself, at least a little.
I tell myself that I truly mourn for what I have lost, but am grateful for what I have gained.
I tell myself that this illness will not define me, yet it cries out for attention,
but how can that be so in a world filled with so much pain,
for I know I am one of the lucky ones.
I tell myself that I will be strong, yet I am frightened.
I tell myself that this is meant to be, yet I scream with anger and frustration.
I tell myself that in posting this picture, I have taken another step towards acceptance and healing.
But I feel that five years is a very short time and we (MS and me) are still getting to know each other and we both keep changing and we will do so for life.
.. and whatever I learn, and feel, and lose and gain along the way, I know it will all come out in the wash.
Bob Diamant, Shaolin Kempo instructor with United Studios of Self Defense and guest presenter, right, demonstrated self defense techniques against Gabby Acton, group leader for the monthly multiple sclerosis support group at HealthSouth Rehabilitation Hospital in Las Vegas, Wednesday, June 17, 2015.(Jason Ogulnik/Las Vegas Review-Journal)
Everything ready today for our Cake Break Event later.... bunting, raffle prizes and electric ballooon pump on standby for these...
Not only is Janice happy about the new cowl she's just crocheted, but the project itself has personal significance. This is the first garment she's crocheted since she broke her left elbow, in 2008.
A measure of wellness!
The tattoo at the nape of Lara Ewen's neck, dedicated to the weekly interferon injections she endured for years, references a proverb: "It's a fool who dances and a fool who watches; if both are fools, you might as well dance."
this was a very sweet moment, and I just happened to capture it.
As I was walking up behind this couple I was thinking "Oh, that would be sweet, if I could get a shot of them in the "light path" of the sunset"
Just as I got the shot set up and focused, he leaned in for a kiss. Perfect!
After I passed by and was starting to look for my next shot, they got up and came up the hill, and asked Larry if he would take a picture of them with their little cheap-y camera They told him they had just gotten engaged, and wanted to have a memento of the moment.
. After they got a few shot on their camera, I offered to take a few more on my camera and then I emailed them the results. I also put this photo in, as I realize afterward that I had captured the moment after she said "Yes!" 8-)
Congratulations to Chris & Lauren.
This post is for a new group called
"Pledge to Kiss Goodbye to MS", started by my dear contact Paloetic, to raise awareness and funds for research for Multiple Sclerosis
THEME #1: Kiss
Today is National MS Awareness Day. I took several photos for the occasion, then decided on this one, as it represents a milestone for Janice, who has dealt with symptoms of multiple sclerosis since 1985. This oral treatment, called Tecfidera, replaces the injections she has taken for years, either on a weekly basis or daily. What a welcome change!
Multiple Sklerose unterbricht die Nervenbahne. Zu den Folgen gehören Kontrollverlust und Schmerz.
“Multiple sclerosis interrupts the nerve racts. Multiple Sklerose Gesellschaft Schweiz”
Read more:
osocio.org/message/multiple_sclerosis_interrupts_the_nerv...