View allAll Photos Tagged multiplesclerosis!!
As a volunteer photographer, I have had the privilege of being an official photographer for the MS Society for the past four years. It never ceases to amaze me the grit, determination and passion of these riders who not only raise funds for the event but also pay to be a rider and put themselves through months of training to have... THE RIDE OF OTHERS' LIVES!
Ihate that sometimes I wake up, and a 95 year old woman has taken hold of my body. Everything hurts. I overdid it. The biking and the heat. I was asking for pain. But I hate this. I want to be superwoman. I want to at least have the strength and energy of the average person my age. I hate feeling weak.
40th Annual Race Against MS June 22, 2023/ Belmont Park/ 2150 Hempstead Turnpike National Multiple Sclerosis Society NYC - Southern New York Chapter
Got this tattoo on 4/11/12 on my right wrist, it reads "no fear"... goes with my left wrist tattoo which reads "m.s. warrior" Written in my own lousy handwriting :)
Everything ready today for our Cake Break Event later.... bunting, raffle prizes and electric ballooon pump on standby for these...
It really is the small things. In another “F**K YOU” to MS, yesterday I wanted some chips that were in a high shelf. I had to get on my toes to reach the bag… only then did I realize what had happened.
Consciously, while holding on to the counter for support, I stood on my tiptoes and looked up. I had not been able to do that for years! I began to cry/laugh like a lunatic!
I was told that my recovery from HSCT would be slow and surprising.
I guess so :-D
© 2023 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Volume Rendering of an MRI scan of the brain.
Disseminated sclerosis.
Stereoscopic view.
Rendering done with a Carestream workstation.
The development of multiple sclerosis (MS) involves cells of the immune system crossing the blood-barrier into the central nervous system (CNS), where they can promote inflammation, tissue damage and ultimately neurodegeneration.
To watch the video where this image is taken from go to: random42.com/multiple-sclerosis
Volume Rendering of an MRI scan of the brain.
Disseminated sclerosis.
Stereoscopic view.
Rendering done with a Carestream workstation.
40th Annual Race Against MS June 22, 2023/ Belmont Park/ 2150 Hempstead Turnpike National Multiple Sclerosis Society NYC - Southern New York Chapter
I think this is the worst selfie ever I've done in my life with me looking so miserable and holding a scribbled banner instead of a neat one, also the awful background - but having been involved all week in the MS Society's #treatmeright Awareness Campaign I felt compelled to do it. You can read more about it here...
www.treatmerightms.org.uk/about/
I'd already taken my Photo a Day before going out this morning but I'm submitting this as today's Photo a Day..... *cringe ..........
My intended one in comments.
Carrie Marriott, Amy Knight, Ann Romney, Norah O'Donnell. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
The pain from the surgery ebbed and flowed, but she kept smiling today, knowing what she had gained.
I'm posting this shot of my wife, Janice, with the intention of submitting it to the group, "Positivity, Honesty, and Happiness in Chronic Illness and Disability." Despite having multiple sclerosis, which comes with slow walking and lessened coordination, she walks the zoos with me, even in brutally cold temperatures. Regardless of her physical struggle, she has a blast.
Sometimes, we're among the few people crazy enough to be there!
That's a quick testimony on the first day of the New Year. People can overcome challenges!
40th Annual Race Against MS June 22, 2023/ Belmont Park/ 2150 Hempstead Turnpike National Multiple Sclerosis Society NYC - Southern New York Chapter
The day before I left for home, after the neutropenic stage, I went to the roof garden, while my apartment was being cleaned, and got some quiet reflection time.
It was a sunny day and “Popo” (short for Popocatépetl, the volcano) was active.
I’ll never regret taking this journey. Ever. Not even after 4 of my flights were cancelled or even contracting COVID. All is complete now and I’ll fly home tomorrow.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
As many of you know that I, Ann-Marie Simpson was diagnosed with Multiple Sclerosis(MS) in 2017, an unforgettable day. I didn't see it coming so I was shocked, devastated, livid, kept asking myself why me, etc....
It took months and months for me to accept this horrific diagnosed. With the help of my family, my friends and coworkers, I started to figure out how to get back to feeling like myself. Also with their help, I’ve been learning how to live with this disease and how to thrive despite of it.
With the help of friends and family, we created two Walk MS teams (AnnMSimpson Is Stronger Than MS), one in CT and the other one in NC. I'm going to be walking in the Walk MS: Fairfield 2020 on May 2, 2020 and, I’ll be walking in the Walk MS: Greenville 2020 on April 25, 2020.
We would absolutely love for you to join one of our teams. If you are not able to join, please consider donating to our team. Absolutely all donations go directly to the National MS Society.
Team Page Link: main.nationalmssociety.org/goto/ANNMSIMPSONISSTRONGERTHANMS
Personal Page Link: main.nationalmssociety.org/goto/AnnMSimpson
For the past three years, it has been my mission to help bring awareness and to raise money to help the National MS Society provide award winning programs, services for those affected by MS and to help move closer in finding a cure so we can have a world free of MS.
Thank you so very much! Together we are making a difference! Your continuing support is deeply gratifying to us.
Love,
AnnMSimpson Is Stronger Than MS!
Team Link: main.nationalmssociety.org/goto/ANNMSIMPSONISSTRONGERTHANMS
Personal Link: main.nationalmssociety.org/goto/AnnMSimpson
These two beautiful women, Marinela and Nila (both have Multiple Sclerosis) were so proud to have their pictures taken at the Fairview MS Achievement Center.
An odd thing happened yesterday. As my wife and I were going home from a doctor’s appointment, I suddenly felt better. The sensation hit so suddenly that it really threw me. I immediately did a physical accounting of myself and could not pinpoint what was better. The closest thing I can compare it to is a bulb that’s been burned out for years and it suddenly came on without explanation.
Copyright © 2021 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Volume Rendering of an MRI scan of the brain.
Disseminated sclerosis.
Stereoscopic view.
Rendering done with a Carestream workstation.
This is a pseudo-colored image of high-resolution gradient-echo MRI scan of a fixed cerebral hemisphere from a person with multiple sclerosis.
Credit: Govind Bhagavatheeshwaran, Daniel Reich, National Institute of Neurological Disorders and Stroke, National Institutes of Health
Tonight I was very proud of my OH as she walked the fire for MS. Thanks to all friends who took the time to come and support her and to all who have provided sponsorship. Your support and help has been more than appreciated. Diolch.
I let my students/grads know this week, these plans have been in the works for months now. This will be my last year as a full time instructor due to my health’s rapid decline. I'll be switching to part time and fade into the shadows.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
So, a bit of prep was needed before my HSCT. I need a washout of my system of all DMDs (disease modifying drugs) 3 months prior.
I did a bit of more research.
The DMD I was taking, Gilenya by Novartis, came out in 2010 at $4000/month. It’s now $9000/month. You might qualify for a discount because having a debilitating, life long disease that has no cure is not enough. Price setting for drugs is a black hole. The biomedical engineer I spoke to said it takes about $.05 - $1 per pill to make Gilenya.
The average worker at Novartis makes $50k/yr.
Doctors there make about $250/yr.
The CEO, last year, made $11,437,500. That’s before perks.
And I was expected to make a decision on what drug to take within a couple of days based on the pamphlets I was given. Yet, my 8 months of research into HSCT was scoffed at.
What pissed me off the most was that I was not given a choice of this treatment. Even though it’s been around for 50 years and everything that was given to me was FDA approved. I suspect that since HSCT can’t be owned by a single big pharma company it was not FDA approved. Aka: no single owner to make $ off of it.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
Norah O'Donnell, Ann Romney. Photo by Tony Powell. 2014 Women on the Move Luncheon. Marriott Wardman Park. April 30, 2014
At the second Dartford MS Funday in 2003, the Red Wheelie scooter display team put on a routine based on St George and the Dragon. The dragon was pursued around the arena until caught and its tail removed.
Recently heard that the Red Wheelies have been revived in Canterbury to support the MS Therapy Centre there - watch Kent TV footage
Presentation of one of the cheques to the participating charities. A total of £832 was raised for Diabetes and Multiple Sclerosis charities.
Musician Lara Ewen (www.unstrungmusic.com) injects a 2-inch needle into her leg muscle once a week to treat her multiple sclerosis.