View allAll Photos Tagged SpinaBifida
These belong to a young man with Spina Bifida; the Segway was a gift from a group of people and has been great for him.
Subject: Congenital Dispositions.
Medium: Digital Artwork.
Inspiration: Reflecting upon congenital dispositions and how they affect a person, short-term and long-term. Each of us has a rare view of life, based on our own circumstances and dispositions.
As I said in my earlier post, October is Spina Bifida Awareness Month. We are hosting events every Friday 12Noon-2pmSLT for it (maps.secondlife.com/secondlife/Mieville%20Doyle/128/219/54). One big reason is, that our regular, and my best friend, Minie has it. Read more here: pieni.art/spina-bifida-and-our-minie-ponycorn/. You can still donate giftcards etc for our contests. Spread the word, and im Pieni, if you would like our poster with useful links. Big thanks for Night's Toy Box for donating a giftcard! (maps.secondlife.com/secondlife/Mieville%20Doyle/34/171/32)
My grandson is the biggest Red Sox and baseball fan I know. I challenge you to stump him. Chances are, he will stump you. He totally ROCKS!!
Added to the Cream of the Crop pool as "Most Favored"
Blogged on the following pages as of October 22, 2011
blog.enfemenino.com/blog/see_83543_73/PAGINAS-DE-CARNE
On Getty Images - See my lightbox at Getty Images Warren Photography.Thanks!
Please Note: All My Images are Copyrighted. Use without written permission will result legal actions. Do not use any of my images ANYWHERE, including blogs, without first requesting rights to do so. Thank you for your understanding and cooperation.
Stella had an eeg today. They marked all over her head with red marker, then applied bunches of leads with thick goop. It left her hair pretty funky and made her cop quite an attitude. I found it inspiring. (:
Stella has been benched. Crawling around on the porch and sidewalk have quite literally tore up the tops of her feet. The sweet girl can't feel them of course because of the paralysis in her lower legs and will keep going until we notice the trail of blood and take her in for a bath and banadages. Of course she cries and screams for wanting to stay and play...at least it doesn't hurt.
This October we celebrate Spina Bifida Awareness Month with Rainbow Tinies and anyone else interested. If you organize your own events or have anything else to report on this subject, message Pieni, and we will promote your project. My first blog post on this is here: pieni.art/spina-bifida-awareness-month/. Our events are Fridays 12NoonSL-2pmSLT: maps.secondlife.com/secondlife/Mieville%20Doyle/128/219/54 #SpinaBifida #SecondLife #SLevents
Musée Dupuytren
From series James G. Mundie's Cabinet of Curiosities
[Copyright © 2008 James G. Mundie. Image may not be reproduced in any form without express written permission.]
Our Spina Bifida daughter, Helen is 55 years old in a couple of weeks, despite the doctors claims when she was born that she wouldn't survive into her teens.
Here, she's chatting to her mum, Rhona a few years ago in Liverpool's William Brown Street.
A picture began circulating in November. It should be 'The Picture of the Year,' or perhaps, 'Picture of the Decade.' It won't be. In fact,unless you obtained a copy of the U S paper which published it, you probably would never have seen it.
The picture is that of a 21-week-old unborn baby named Samuel Alexander Armas, who is being operated on by surgeon named Joseph Bruner.
The baby was diagnosed with spina bifida and would not survive if removed from his mother's womb. Little Samuel's mother, Julie Armas, is an obstetrics nurse in Atlanta . She knew of Dr. Bruner's remarkable
surgical procedure. Practicing at Vanderbilt University Medical Center in Nashville , he performs these special operations while the baby is still in the womb.
During the procedure, the doctor removes the uterus via C-section and ma kes a small incision to operate on the baby. As Dr.Bruner completed the surgery on Samuel, the little guy reached his tiny, but fully developed
hand through the incision and firmly grasped the surgeon's finger. DrBruner was reported as saying that when his finger was grasped, it was the most emotional moment of his life, and that for an instant during the procedure he was just frozen, totally immobile.
The photograph captures this amazing event with perfect clarity. The editors titled the picture, 'Hand of Hope.' The text explaining the picture begins, 'The tiny hand of 21-week- old fetus Samuel Alexander Armas emerges from the mother's uterus to grasp the finger of Dr. Joseph Bruner as if thanking the doctor for the gift of life.'
Little Samuel's mother said they 'wept for days' when they saw the picture. She said, 'The photo reminds us pregnancy isn't about disability or an illness, it's about a little per son.'S amuel was born in perfect health, the operation 100 percent successful.
Pass it on. The world needs to see this one!
tiny 19th century fetal skeleton exhibiting spina bifida (Musée Dupuytren)
From series James G. Mundie's Cabinet of Curiosities
[Copyright © 2008 James G. Mundie. Image may not be reproduced in any form without express written permission.]
Six years old Arwen is a very sparkly girl who happends to have spina bifida. But that does not stop her. She wants to see everything. She wants to do everything and she wants to talk to everybody! And she can! :o)
Today I had the priviledge of photographing her and her family for an assignment. And I had the most terrific day.
this has become an obsession of hers. always raiding the art cabinet and leaving crayons out for the dogs to snack on. she will sit and draw curly q's for hours. but now we move onto a new medium.
60046 "William Wilberforce" (DC Rail Freight).
0Z60 : 0900 DB Cargo Fan A&B Sdgs - Foxton Exchange Sdgs (actually continued into Barrington Sdgs, the site of the former Rugby Cement Works).
Welwyn North - 1004 (1 late) - 16/06/20.
After a gloriuos sunny start, the clouds started builing from 0800 & when I arrived at Welwyn North, the good Lord said "You were born with spinabifida, your bladder/bowels don't work properly, the NHS has failed to diagnose/treat them correctly, leaving you in constant pain [I found out today, the painkillers prescribed by the Doctor, can be brought over the counter at £2.59, instead of £9.15!!!], SO YOU AIN'T GETTING A SUNNY SHOT TODAY", which is why I laugh everytime, I see photographer mention clouds in their Flickr upload (if only that was my only problem)!!!!!
Will Kirkpatrick
Sixteen-year-old Will Kirkpatrick, born with spina bifida, walks with the support of a cane or crutches, but most of the time he uses a wheelchair. Will’s disability doesn’t interfere with his busy schedule. When he’s not in school, he enjoys spending his time fishing, hunting, swimming, playing basketball and hanging out with family and friends. He and his brother like to watch TV together and surf social media sites such as Facebook. In the summer, he spends his time at two recreational camps.
More information about living with disabilities:
•CDC’s work in Disability and Health www.cdc.gov/ncbddd/disabilityandhealth/index.html
•Lakeshore Foundation www.lakeshore.org
•United Nations International Day of Persons with Disabilities (December 3) www.un.org/disabilities/default.asp?id=111
•CDC Video: Bernard Baker - “What’s Disability to Me?” www.cdc.gov/NCBDDD/video/bernard/index.html
•CDC Feature Article: “People with Disabilities: Living Healthy” www.cdc.gov/Features/Disabilities/
•CDC Feature Article: “Twentieth Anniversary of the Americans with Disabilities Act (ADA)” www.cdc.gov/Features/ADAAnniversary/
Stella finally got a new walker. This one has swivel wheels so she is really learning to get around great! What a blessing!
When after 20 weeks of pregnancy an echo is made of the foetus it can turn out that not all is perfectly in order. When during the pregnancy the foetus is diagnozed with spina bifida in 80% of the cases in The Netherlands the future parents decide to abort the pregnancy. This is WAAAYYYY too much! This is mainly because physicians always paint a worst case scenario which scares the future parents. I myself am the living proove that you can live a good life with spina bifida. Before I was born my parents were told that I could never walk and live a good life. Those of you who know me know better.
Today I turned in photos for an assignment. This is one of the selected photos for a booklet about kids with spina bifida and their families. In this booklet they tell their story and it also give future parents some information about what to expect and how to deal with the situation.
In this photo you see 11 years old Erin. He is a very positive kid with a wonderful attitude and sense of humour. In the past he practiced wheel chair hockey, Jiu Jitsu and currently he is very determined to make it in sport rowing. On the day that I came to photograph him he was training and was very determined to show me what he could do. After 4 km of rowing he was exhausted but very proud of himself. Afterwards his parents told me that he was scouted by the Dutch rowing association for the paralympic team to represent his country in the future.