View allAll Photos Tagged Positivevibes
You pretend you're high
Pretend you're bored
Pretend you're anything
Just to be adored
And what you need
Is what you get
What drives you on
Can drive you mad
A million lies to sell yourself
Is all you ever had
Stupid Girl - Garbage
A lost posting here for the #myEDSchallenge founded by @ehlers.danlos society.
Day 4: What a flare-up looks like for me
In my opinion a flare-up has a deeper meaning when a bad pain gets even worse.
Many others including myself struggle with daily pain and fatigue caused through this permanent cell based stress.
My personal flare-up is a daily challenge between things I would love to do and the unbelievable fatigue and pain. I know "hey that's a flare-up" when I lay down and I notice to myself that darkness shouldn't occur in my mind.....maybe someone who is struggling under 24/7 pain can understand that.
I would love to post one picture everyday......that should be no problem for me, because I have a 100+ minimum of showable pictures from the last years on ssd here. But when I have flare-ups my personal mood is in a bad condition too...in a comprehensible way.
I got big respect for everybody who is able to take part every day at this myEDSchallenge and enjoy the posts very much. It's not like a community - the pain and the daily problems caused through faulty collagen and hypermobility connects us like a family.
Hey strugglers out there!: You are not alone!!! 😎😘✌🌻🍹
This picture is straight from the archives and a straight out of the camera shot from January 2019 when my hEDS problems reached it's highest level.
A sony a77 z-edition🙈 a blue gelled/toe triggered flash and a guy struggling with his problems.
No magic - no tricks - pure EDS life
My happy place
Another posting here for the #myEDSchallenge founded by @ehlers.danlos society.
Day 12: Favourite Activities
There was a life before and after my hEDS probs gone worse.
I don't regret one day when I overwhelmed my body.
Hey everything is already possible but even slower and I have to plan for pain beforehand... My activities are the same as before but much more focused.
Beside living a good life with my family I love to take pictures, care about 2 cats and my dog, take care about vehicle collection and love to spend my time in the garden when I'm in mid-pain......my joints are going crazy....😂🌅 A straight out of the camera #sooc shot from my last "Magic glasses" shooting in early February.
#Sony a77 Z-Edition, 16-50/2,8 standard kit lens. A double exposure in one 81 second single shot.
No photoshop - pure lightpainting
#magicpassionphotography #fozziebear #ehlersdanlossociety #chronicalillness #ehlersdanlos #eds #zebra #hypermobility #hEDS #crohnsdisease #DUbistnichtallein #weltcedtag #awareness #bodymindsoul #mentalhealth #positivevibes #lightpainting #lightart #photography #lightpaintingblog #longexpoelite #bealpha #a77 #sonyalphapro #itsnotatrickitsasony #nophotoshop #lightpaintsooc
..waving that Magilight around my car...
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Thanx Dr. Hibbert! 😋🍭
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Sony a6000 + Samyang 12/2,0 + Fotorgear´s #Magilight + some tweaks in LR
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no photoshop - pure lightpainting
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#magicpassionphotography #mybestmedicine #vw #corrado #flgntlt #volkswagen_is_a_lifestyle #chronicalillness #ehlersdanlos #eds #zebra #hypermobility #hEDS #crohnsdisease #bodymindsoul #mentalhealth #positivevibes #creative #lightpainting #lightart #photography #lightpaintingblog #automotivelightpainting #bealpha #a6000 #sonyalphapro #itsnotatrickitsasony #fotorgear #thesimpsons #nophotoshop
PoWow!, noun, (ˈpaʊˌwaʊ): a once-in-a-lifetime musical mashup featuring virtuoso performers, major surprises and superstar special guests... What is your dream artist collaboration for the Okeechobee PoWow?Give me some good feedback!#rlgrime #entertheportal #jointhejourney #okeechobeefest #art #electronic #prettylights #music #mybestfriend #camping #kandikid #edm #altnation #love #musiclover #TOMORROWLAND #inspired #purpose #dancemusic #edmfamily #siriusxmu #positivevibes #artists #plur #rappers #indiemusic #bonnaroo #coachella #livemusic #vinyl
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7 Comments on Instagram:
senkuh: Love it!!! ❤️
blink_tattoos: 💜💜
eastcoastfestivals: I'll probably still say superjam 😭
giggypopapp: 👌
kaseymurdock: 👍😉
ftd_apparel: Nice! Love your posts :)
gloriarovere: This is wonderful