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Today is World Encephalitis Day
That's what Encephalitis is, for those who don't already know.
Long before as much information was known on this condition, we as parents experienced it first hand, when our eldest became ill
Unbeknown to us the night before becoming unwell she had experienced uncontrollable shaking, which we now know was rigors. It happens when you have a steep rise in your temperature.
At the time she thought it was just her cold, as she had a sore throat too
The events that followed were an utter parents nightmare.
We saw five doctors before she finally got diagnosed, by which time nothing could be done and we were told it was just a waiting game, to see if she recovered
Months and months went by, most days she slept 24/7
Then after about six months, we saw signs of improvement
The neurologist informed us that something as simple as paracetamol would have helped with the temperature, had we known
We got her back thank god but it robbed her of many of the goals she wanted to achieve
Today she still suffers with extreme tiredness and very similar symptoms to long covid
I've written this, to make others aware, as prior to this happening, I had never heard of Encephalitis. A lot more is known now
I remember the first doctor we spoke to telling us, he was out of his depth knowing what was wrong
With love to my beautiful daughter, we're glad we got you back XX
The rains continue to fall. It rained on St Swithin's Day and so we expect another 40 days of it. As each drop of rain falls, I feel my fear and worries rise. I am once again picking our son up from the floor following a seizure induced fall. His new specialist epilepsy neurologist is seeing us soon and I am documenting his current condition in his ‘seizure diary’. It does not make good reading.
I fear how I will convey this crucial information. I can talk about epilepsy and autism as well as his other conditions fluently and with confidence. But this meeting will be about our son. When I talk about the pain and torment our son lives through each day, I am always overcome with emotion.
The diary will help, and it will contain thoughts and questions that I will refer to if I need prompts. I am not expecting anything in particular, we have been trying different things over many years now. But his condition is getting worse. In front of our very eyes, we see the changes.
My fears are as plentiful as the endless raindrops falling outside. I just hope this new neurologist listens to my story and commits to continuing to support us through whatever the future holds …
A visit to the National Botanic Gardens of Wales today and the most wonderful photo ops what with the frost, mist, dewdrops then full sunshine. In fact a day of mixed fortunes because my neurologist has increased my PD meds so my eyes weren't really up to it ( boo! ) but I know they'll settle in a week or so ( hurrah! ) but we got home to a letter with an appointment at long last with a Parkinson's Specialist ( hurrah ?)
I wasn’t sure whether or not I’d be able to continue with my 365 until today’s appointment with my Neurologist who specialises in Movement Disorders. However it’s a matter of ‘one day at a time’ so I continue.. ... for now anyhow When I got home I braced the high winds and captured this in my back garden – it’s the Drooping Cherry Tree just coming into full bloom
Explore: Nov 4, 2008 # 328
i found this beautiful orchid and I couldn't resist...
I want to dedicate this flower for my friend Claudio Marcio, a very special friend and photographer that always give a great support. Thank you my friend.
Claudio Marcio photostream:
He's still very unsteady on his paws, he walks like he's drunk. We can't wait to speak to the neurologist on Monday and hopefully get some answers ❤️
“Between stimulus and response, there is a space. In that space is our power to
choose our response. In our response lies our growth and our freedom.”
- Vicktor Emil Frankl (Austrian neurologist and psychiatrist)
From Devil's Dyke, Sussex, UK.
As the rain clouds parted, eventually, I had an opportunity to wade my way through the garden and draw up yet another ‘new’ to-do list. Flattened plants and flowers due to the torrential rainfall shows the vulnerability of the garden to the prevailing weather conditions and changing climate.
I reach the small garden pond where I always end up and pause. The reflections in the water allow me a different perspective of seeing things. This reminded me of the very painful conversation I had recently had with our son’s neurologist …
Please follow this link if you are interested in the story, but if you do nothing else today, do this, tell those you love how much you do love them and how much they mean to you. Hug them like there is no tomorrow …
theresilientgardener6.wordpress.com/2023/08/15/one-more-day/
He had an 'episode' late Thursday night. Not really a seizure but he cried then his legs gave out under him and he was vacant but conscious for about 4 minutes. We called the emergency vet who advised us to keep him calm overnight and see his vet in the morning which we did. He's being referred to a neurologist for an MRI scan ❤️
He spent 4 1/2 days at the vet hospital, 3 days were spent in the ICU. He has been diagnosed with immune mediated encephalitis and has had a 12 hour chemotherapy IV drip to reduce the inflammation in his brain. He has to take steroids and anti-epileptic meds daily for a few months and will be seeing the neurologist again in 4 weeks to check his progress. ❤️
Today I had my long awaited appointment with my Neurologist. The outcome of that makes me want to dance ( not that I can do ) but suffice to say that as long as my blood tests are satisfactory then I'm to get a drug called Fampyra/Fampridine which I've been campaigning for on behalf of others for many years ( in comments)... i.e. as long as my health authority are willing to fund that and the two extra staff required.
www.mssociety.org.uk/what-we-do/news/fampyra-fampridine-r...
My reply was, that 'I catch him when he falls, comfort him when he cries, and pray for him while he sleeps ...'
The question was intended to ensure I have an escape from my focus of care for our son. His new neurologist did listen to me. I told her about how he has deteriorated, she looked with interest at the seizure diary that I maintain and she offered some clear understanding about how a particular type of seizure is causing certain characteristics affecting him.
She looked back at EEG's and MRI's and the dozen or more anti-epileptic drugs he has tried over the years.
In conclusion she told me that, there was nothing more that can be done, other than trying to mix up the medication again and hope some combination brings him some easing to his torment. She did however say that it is clear our son is drug resistant.
I asked about Ketogenic Diets, I asked about CBD treatment, I asked about Vagus Nerve Stimulation therapy. "No", "No", "Only around 25% of the people treated by this clinic see partial improvement which is not high. In our son's case, this is an option to try, but not recommended"
"Carry on as you are doing" is in truth, all I expected, and, all I received. "There is no more we can do" still ringing in my ears.
As I manoeuvred his wheelchair to leave, a tonic-clonic seizure gripped him and contorted his body so much, it was as rigid as the chair itself until he began to relax and come out of it. The clinic door shut firmly behind us as I was trying to comfort him.
"Come on son" I whispered into his ear. "lets get you home. We will deal with this together, and with the support and encouragement of a number of virtual friends who also care"
I sense that today is the first day of something different, what that something is, only time will tell.
The Signs:
I can’t jump like I used to.
I can’t find where I buried my nuts.
I run in circles chasing my tail.
My “chatter” is incoherent.
I'm Sleepy a Lot.
However, this is my "winning" smile.
When your impossible to reach neurologist's office calls the morning after your EEG and says the doctor wants to see you immediately and won't give you a clue!!! I'm guessing it showed my seizures have returned. I thought as much when I first made the appointment with her.
IN 2001, I was broadsided by another car and began experiencing temporal lobe seizures shortly thereafter.
I was on seizure meds for many years. Then, about 4 years ago, my doctor had me slowly wean off the meds. She subsequently retired and it didn't seem to matter as I didn't appear to be experiencing any more seizures.
I did retain another neurologist recently when I began to experience what I believe to be auras and my limbic system seems to be out of control.
I saw the new neurologist, she ordered at CT scan and then an EEG. Her practice is part of a larger institution and forget about navigating the phone menu and actually reaching a person.
I was discussing this with the tech last night and when I received the call this morning from the doctor's office, the one thing she mentioned is that the tech reported to Dr. Ahmed that she needs to see me right away, before the holidays!
I can conclude two things:
1. The tech was sympathetic and didn't want me to wait and worry over the holidays or,
2. My seizures have returned and I need treatment asap
Sorry to bother you with this but I'm nervously killing time.
TTYL, thanks!
Again with the "Roly Poly" order. The chef gave us a 92 cm roll.
It seems as though sushi has once again become a weekly thing as it did in my posts from 2005/2006. Most of the neurologists that I work with suggest at least a pound of seafood throughout the week. I think this will suffice.
Although not landing on the typical Friday with the original crew, something's happening. Sushi is becoming a weekly reoccurring endeavor.
The rage is unnerving. It is, however, understandable. As vicious seizures take over his fragile mind, making sense of it is difficult. No, making sense of it is impossible. He looks at me but cannot see through the bloodied tears running down his face. His involuntary movements and shaking which the seizure causes have caught his own face. Fingernails cutting into his skin. I could not get to cradle and protect him in time to prevent the harm he had caused himself. I reach him and hold him tight. He is shaking violently. He is crying out in pain and distress and is both deafening and frightening. He struggles with cognitive overloading as he recovers, trying to make sense of it. The unspoken question, why? is in those bloodshot eyes. I have no answer, I just hold him. He manages to say 'Help me'.
These attacks are getting worse. I have managed to arrange a neurologist appointment, still a few days away, but hopefully, if the country's industrial action does not stop the consultation, I will have an opportunity to talk through Marc’s decline. I know deep down that there are no answers. Only prayers and the loving support we give as long as we need to.
Continuing from my thought in the previous post.
What is real and what is imaginary? Amitoda says, Real is what is. Imaginary is what you wish it was.
What is? How do we define 'what is'? What can be seen, felt, smelt and touched is reality? But what about what can't be touched, felt or smelt but seen, like a reflection? A reality definitely! But the same reflection can not be seen by another person looking at the same scene but from a different angle. Does that make it unreal? No, definitely no! Therefore, what is reality for one, may fail the test of what is real - sight, smell, sound, touch - for another?
How about schizophrenics then? They see things that others don't! They believe in those being real. We don't. (I am not even talking about psychics here.)
How fragile, then, is this 'reality of senses'?
When I think of my favorite foods, I start sensing their aroma! Or that first love; that first kiss; that scent on her, I can smell it every time with its thought., even 25 years later! It's definitely not a reality. It's the past. The "Bhoot".
If a past experience or a craving can haunt us like this - I mean by actually making you feel that experience in your senses, can something else also come back from a past and haunt you? Aren't we getting now into a gray area between the real and the unreal? Hindi has a nice way of putting it - it has one single word for 'past' and for 'ghost' - "Bhoot"!
I m not really sure of how real is the 'real' we experience. May be we all are living a dream. My reality is, what I m dreaming about. If you comment on my picture, may be u r not commenting at all! May be I m just dreaming about it. While I m doing this rambling essay on my picture here in my dream, I might be doing something else in your dream - a dream that you call - your reality! Can your reality be different from mine? I mean radically different - not as a matter of perspective.
Let me share an experience with you.
My mother, whom I loved so much, died of brain tumour about a decade and a half back. She was 58 years then. She was all fine till a day and then the next - she started showing signs of forgetfulness - lost her short term memory but all long term memory was intact! And then she started losing her sense of time - calling day as night; morning as evening and vice versa. All in a matter of hours! A CAT scan showed half her brain, the absolute middle of it, was taken by a tumour. Too late and too big and too deep for any medical or surgical help. She died within a month and a half of that day.
The incident I m talking about is, from the first few days of discovery of this tumour, before my mother lost all her senses and eventually her life.
That night, I stayed over at my parents house to look after my mom.
We must have slept at midnight.
I woke up with a start.
My mother was up and the room lights were on. I felt as if I had slept a few minutes back. My mother said it was 5 am in the morning. Time to start the morning chores! I looked at the wall-clock disbelievingly. It was indeed 5 am! I could swear I had slept a few minutes earlier. My wrist watch said the same. My mother pointed to the curtained window. "See, the dawn is already breaking," she said. The water is running from the tap too (in many parts of India, water is supplied only at fixed hours to homes, generally at 5 am for an hour or so. Hence, many Indian housewives leave a kitchen tap on, so that they would know as soon as water supply started. This works like a morning alarm in many middle and lower middle class households) I could see the faint light of dawn thru the heavy curtains on the window. And I could hear the tap running in the kitchen. Well, I m stressed and so I m feeling tired, I thought. I dived into my quilt again for a snooze. A few minutes later, I heard my father waking me up and trying to persuade my mother to get back into bed. He should know better, I thought. She has been waking up at 5 am for a better part of the 20th century!
"But its only 12.30 am," said my father.
I looked again.
The wall clock; my wrist watch; the light of dawn; and that sound of running tap water - all had reset themselves.
00:27 hrs! 20 odd minutes since we had slept!
My mother was still insisting it was 5 am and still pointing to now 'absent' tap sound and dawn light.
"Can you imagine your mother has gone mad in just two days!" sobbed my dad. For him there was no difference between a cancerous tumour and madness. But I was thinking something else.
For a brief moment I had seen the world the way my sick mother was seeing.
Neurologists were calling this loss of 'sense of time', a classic symptom of brain tumour. But, is it that she had moved into a different level of the 'matrix' with a different set of realities? Was this a glitch in a dream generation system? Her realities were all too real for her - sight, sound, smell and touch - all! And I had seen them and heard them too!
(I am not a great story teller. Brevity is not my forte in any case! So, if you have come this far - I love you!)
My point is, if reality is - what the senses tell - then its a very faulty and prone-to-malfunction device we have.
For now, I rest my case! Since, I do not know what is real, I can not put forward any arguments.
You see, to make a case you need to believe in it.
And how can I believe, when I do not know!
Oh by the way, the pictures are of Common Redshank Sandpiper (Tringa Totanus) and Grey Heron (Ardea Cinerea), both migratory birds commonly found in marshes all over India.
Last week, I listened to a great documentary... all about the question of happiness. Various experts (scientists, psychologists, neurologists, etc.) had their say, and they all agreed on a few basic points.
First off, we are hard wired to seek certain types of happiness. Pleasures, essentially. Sex, food, physical comfort... things needed for survival of the species.
Yeah yeah. Common sense evolutionary stuff.
But the second point was fascinating.
It was this:
Happiness is, by its nature, not designed to last.
Again, it makes sense through the lens of evolution. Take food, for example. You eat it, you enjoy it, you're satisfied, and all is well. But only for a little while. Within a few hours, you're back on the prowl... back on the trail of that so-elusive happiness.
You can extend that same line of thinking to pretty much anything that gives us pleasure/happiness. We're driven to pursue it, we get it (if we're lucky), we're pleased with that... but only for a time.
Survival-wise, it's good. Because... if we were much more easily satisfied; if happiness, once found, stayed intact forever... we'd stop wanting; stop seeking; stop even trying. And what would be the point of even getting out of bed?
I see so many ways that this applies in our society. For example, people with addictions are ensnared in an obvious cycle of pursuing/finding/losing that temporary satisfaction. Overeaters, too. There's something in their brains that can't stand the fact that the pleasure/satisfaction/happiness of tasting/chewing/digesting is oh-so-fleeting. They want to extend it, keep it going, so they keep on putting more food in their mouths.
So... yeah. Happiness is sort of like a carrot. Life uses it to keep us motivated... keep us reaching, wanting, yearning... and, every now and then, we get a little nibble. No point feeding us the whole damned carrot. That would be the end of "progress."
Depending on your point of view, this line of reasoning could be depressing. I find it encouraging. It helps to explain why we get such enormous pleasure from anticipation (and why, sometimes, the actual realization of something pales in comparison).
I think this has a lot to do with another feature of evolution - our amazing capacity for adaptation. We're designed to be alert for new things - dangers, pleasures, things unknown. And... since we can only be alert for so many stimuli at any given time... our brains have to sort of set aside their responses to those things familiar and comfortable.
Again, this explains all sorts of behaviour. Infidelity. Consumerism. Fashion. Hell... even science itself; its advances are driven by the same unquenchable human desire... in this case, for knowledge (and possibly fame, fortune, etc).
We were not designed to stay still, to be satisfied. Life drives us endlessly to seek more... experience more... experience more diversity... all in our inherent desire for happiness.
So... ironically... it seems like the best way to find satisfaction/peace/comfort/whatever is to simply accept the fact that it can never last... and to (pardon the cliche) focus less on the destination and more on the journey. Because what really seems to make us happy is the pursuit of happiness, the promise of it... the uneaten chocolate... the fresh-poured drink... the glimpse of thigh... the pending weekend... the planned vacation...
The horizon, basically. The future. That's where it's at in terms of happpiness. And never mind the fact that when we get there... it's gone, because it is, by definition, always just beyond our reach.
[ENG] “Love is the thread with which we connect to the world”. Debasish Mridha M.D., Author, Philosopher, philanthropist. Attending Physician (Neurologist) at Covenant HealthCare.
For "Smile on Saturday" group, "Thread" theme
[ESP] "El amor es el hilo con el que nos conectamos con el mundo". Debasish Mridha MD, Autor, filósofo, filántropo. Médico asistente (neurólogo) en Covenant HealthCare.
Para el grupo "Smile on Saturday" (Sonría el Sábado), tema "Hilos"
181749
Today was spent mostly in Neath/PortTalbot Hospital because my Neurologist had referred me for a specific kind of scan which involved injecting me with a radioactive isotope before scanning me with gamma rays. Afterwards we went to Aberafan Seafront where I captured this – the Kite Sculpture- I felt that the rays is in one way representative of my day.
last thurs. we had a 7.0 earthquake. I still haven’t completely cleaned up from the 6.4 we had in 2022.
the dogs are nervous.
that day [thursday, the 5th] we had 200+ aftershocks. we are still having them. everyone sits upright when we feel one. boo and nellie are good predictors.
actually, the one 2 years ago caused more damage than this last one…we had to pick up lots of broken glass.
there was broken glass with this one too, I have small cuts all over my hands from trying to pick out the glass from piles of other stuff.
I put off posting this because it’s hard for me to type when I can’t see too well.
this quake almost knocked me off my feet, I was at the fridge so I just hung on. the dogs stood stock still and then ran outside. I tried to reassure them that it was okay.
I had an appointment with my neurologist that day. I think he's chasing cancer in me. I will have a spinal tap sometime in Jan.
youch.
so here we are during a shaky holiday season, still standing, but just barely.
I planned on writing more but unfortunately I am somewhat limited in my typing skills.
happy holidays to you all. I love you.
s.
**I apologize to those I owe emails to.
I poop out early these days.
Chi Cerca Trova.....
"Salvation lies in research,
even if it is not found,
even if you do not know what to look for"....
Rosario Magri
Rosario Magrì (1924 - 2005) was an Italian writer.
Neurologist, for many years he has been primary in a large hospital of Milan.
This shot of last year reminds me of my son.
When he was a child was a great "seeker"
Sea, lake, river, mountain, country, every place was good to seek and find and bring home ....:) That was his favorite pastime.
Stones, "fossil", shells now fill boxes under the bed, and even though he now has twenty years his "findings" are "untouchables")
Now is studying medicine, and continued his research in another way ....
Thank you for stopping by....
All rights reserved. Image can not be inserted in blogs, websites or any other form, without my written permission.
Max saw a neurologist on Monday and was admitted for an MRI. The neurologist has diagnosed Max with an autoimmune disorder meaning his immune system is attacking his brain and causing severe inflammation. This is why he has been so uncoordinated and why he unfortunately lost his sight at the weekend 💔 Max is in the ICU recovering from the anaesthetic needed for the MRI and will begin treatment for the inflammation today. This is via an intravenous drug that takes 12 hours to administer so he'll be in hospital for at least one more night, if not two ❤️
Please comment on this image and post.
I do not care if you feel differently than I do. I believe in freedom of speech, and thought. My opinion is not necessarily the most accurate one. As anyone who follows my stream knows, this is far from my normal image and description. I feel this is important enough an issue that I am highly interested in knowing what you think. Thank you!
I apologize in advance if the wording in my post is offensive (some of it may be). I am extremely angry with this entire farce. All opinions in this are just that my opinion (or that of the quoted source). Disclaimer is for sue happy assholes!! :) Any errors in my data are mine and mine alone ( or the quoted source).
I logged in to Yahoo tonight to find an article from the Associated Press relaying information released by the CDC (Center for Disease Control) which nearly triples the previous totals for death and illness associated with the H1N1 virus (commonly called swine flu). What a load of steaming bullshit!!!! This is an obvious scare tactic aimed at getting you to be afraid enough to go get stuck with their genocidal cocktail, err I mean vaccine. I followed up on this by reviewing the actual "study" which was a phone poll given to 1006 people. From this meager selection a number of nearly 4,000 deaths, and 22 million ill has been estimated. Who do they think they're fucking kidding?? Obviously you!
People across the country have been refusing to take the vaccine for this (most likely) man-made virus. I say man-made, as H1N1 is a combination of bird, pig, and human flu DNAs. I'm no scientist but I don't think this sounds even remotely natural. In fact, to me it sounds very much like a genetically manipulated virus. Hmm, I wonder if a large pharmacutical corporation, say one that makes insane amounts of money selling drugs and vaccines, would have the facilities necessary to do this? Makes one think.
Why are people refusing to take this "miracle" cure? Mostly, I've heard the word untested being used as the reason. The vaccine was tested for a total of seven days. Yet according to world renowned neurologist Dr. Russell Blaylock, in a video interview that I watched, it is commonly known within the non-pharmacutically paid scientific community that seizures may occur from vaccinations that may not begin for up to 6 months from the injection. Another common reason is Thimerosal. The mercury laced preservative used in many vaccines as a preservative. Every mother in the educated world knows not to let their children play with mercury, as it is readily absorbed into the body, causes neurological side effects, and once in NEVER leaves your system.
Yet the FDA (Food and Drug Administration) approved this shit for you, and especially your kids (target group), and oh yeah, pregnant women (target group), start 'em young folks. Why would the government agencies concerned with health and the protection of consumers of the health industry approve injections for us that may contain up to 100 times the amount of MERCURY allowable in drinking water? Hmm, why indeed? Could it possibly have anything to do with the staggering amounts of $$$$ to be made? Could the huge flux of pharmacutical lobby dollars in Washington D.C. have any affect on this deciscion? Duhhh!!!! Of course it does. The FDA says no plant based cures or derivitives are effective in fighting disease. They are not classifiable as drugs, and are considered inert in the human body. Luckily for British sailors of old (Limeys) no one had told them this information. So, sucking on limes, lemons or oranges, thereby ingesting vitamin C cured their scurvy. Why would the FDA say that no plant based medicine could be effective? Could it be that they can't make HUGE sums of money from holistic cures, and natural treatments? Not much profit in a scurvy cure that grows on trees folks.
Hey America, and anyone else in the "free" world wake the fuck up! You and your children are being poisoned for profit. And by the way, what a great means of population control. If the vaccine doesn't kill you outright, which it may, you also could be left sterilized or with a terrible neurological disorder (ie Autism, Guillain-Barre Syndrome, etc., etc., etc....) But, don't just take my word for it, do some research. The information is not even hard to find. Stop believing the controlled and regulated syndicated news agencies lies. Take your ass off the couch, turn off Survivor or whatever "reality" (LOL) show you are watching and look around. Shit ain't right!
I rode 35 miles to support Parkinson Orgazation.
'And there is no place to hide'
Bob is not alone, as forum's speakers demonstrate
By Tom Beal
ARIZONA DAILY STAR
Tucson, Arizona | Published: 04.11.2008
advertisementFebruary 2, 2008
Richard Carothers has overseen more than 3,200 projects in his career as a designer, architect and developer, but this morning he's focused on getting his feet to shuffle him onstage at DuVal Auditorium.
Bob Dolezal is not alone in his fight against Parkinson's disease or his plight as one of its victims. I've decided to learn how others cope with the disease at a forum Carothers helped arrange through the University of Arizona College of Medicine and the Arizona chapter of the American Parkinson Disease Association.
Carothers is still seeing clients 14 years after his diagnosis, but he doesn't think that will last much longer.
After a short freeze, his feet get going and he reaches the podium.
"I have Parkinson's disease. You probably surmised that," he says to laughter from the audience of Parkinson's patients and caregivers.
"Do any of these sound familiar?" he asks. "Rigidity, dozing off, urinary urgency, slowed physically, banging your hands and knuckles, trouble buttoning shirts, tying ties, sleeping, short-term memory loss. These are all my symptoms. Last year my walking decreased in efficiency by 50 percent."
He compares his movements to "a sloth climbing a tree."
"It's a challenge," he says, "being comfortable in your own skin."
He's gotten past the embarrassment of holding onto people's chairs as he makes his way to the bathroom in a restaurant. He uses wheelchairs and motorized carts in airports to avoid missing connecting flights. He relies more and more on his wife.
"I'm super-fortunate," he says. "I have a caregiver who is my foundation, as Bette Midler says," and here Carothers stops to still his heaving chest, "she is 'the wind beneath my wings.' "
Parkinson's is tough on caregivers, reports the panel that Carothers introduces. They describe the little funerals they are always holding for the loss of yet another function. Life fluctuates between despair and a profound sense of nobility.
Sharon Kha is the odd woman out on this panel. Like Bob Dolezal, she has no caregiver and she's found advantages in that.
"You know how we are. We get up, turn the TV on, go back to bed. When you live alone, you can do that all night."
Kha says she has days when she has energy to cook dinner, but not to clean up after. "So you put your skillet on the table and eat right out of it. You can annoy yourself all you want."
She is amused when she goes for her checkups.
"They ask, 'Do you need help getting dressed?' Yes, I need help, but I don't get it."
"Buttons are a problem. I buy big. I button 'em once. I wash 'em buttoned. I hang 'em up buttoned."
Kha, formerly an associate vice president for communications at the UA, wrote, in March 2005:
"I feel like I am standing in a sunny meadow watching a storm approach. Even though I can feel the sun warm on my shoulders right now, the darkness and cold rain are moving inexorably toward me and there is no place to hide."
She has been in the center of that storm. Her father had Parkinson's and took shelter for his last eight years in Sharon's home.
"I watched people treating Dad like he was drunk or senile."
Kha spent a decade in television as a reporter and assignments editor at KGUN Channel 9 in Tucson, then 22 years at the UA, where she was working when she diagnosed herself.
"I was looking in the mirror one day and dad's face looked back at me," she wrote. There was a droop in her right eyelid and the right side of her mouth.
When we get together, she tells me her self-diagnosis was ratified by a neurologist three years later – Nov. 11, 2003, at 11 a.m. It's not something you forget.
Kha said her dad managed to work until he died, slowly folding boxes for a religious audiotape company.
Kha quit working when the reporters she dealt with began to finish her sentences, her boss began rewriting her memos and she began to fall asleep at meetings.
"It drives a wedge between your brain and your mind or your soul. I always thought my brain is where I resided. It's where I have my memories, my abilities. Everything I know how to do is stored there," she says.
And now her brain is lying to her. It tells her she is taking big steps when she shuffles. It tells her she is speaking normally when her volume is a weak echo of her TV announcer days.
She has trained, through a program called "Big and Loud," to override her brain. She instructs herself to take a giant step and takes a normal one. She pretends to shout and she speaks clearly. She is a liturgist — a scripture reader — at St. Mark's Presbyterian Church, where she also volunteers weekly.
"People come up to me now and say, 'You're the only one I can understand.' "
She hopes she won't deceive herself when the time comes to seek more help. She doesn't expect to live long enough to experience the final Parkinson's decline. She has chronic kidney disease and an inoperable "giant aneurysm" in her brain.
Her son, David, who has been living a gypsy life in New Zealand, is coming to stay with her for a while, now that her long-term boarder is moving out.
She is beginning to examine her options and feels fortunate to have some.
"My dad's only solution was, 'I will cope with this by going to live with my daughter.'
"I don't have to do that to my son."
It is the only time at lunch when her voice chokes and her lip trembles.
My friend sent this to me and encouraged me to post it and spread the word. I agree. If everyone can remember something this simple, we could save some folks. Seriously.. Please read:
STROKE IDENTIFICATION:
During a BBQ, a friend stumbled and took a little fall - she assured everyone that she was fine (they offered to call paramedics) and just tripped over a brick because of her new shoes. They got her cleaned up and got her a new plate of food - while she appeared a bit shaken up, Ingrid went about enjoying herself the rest of the evening. Ingrid's husband called later telling everyone that his wife had been taken to the hospital - (at 6:00pm, Ingrid passed away.) She had suffered a stroke at the BBQ. Had they known how to identify the signs of a stroke, perhaps Ingrid would be with us today. Some don't die. They end up in a helpless, hopeless condition.
It only takes a minute to read this...
A neurologist says that if he can get to a stroke victim within 3 hours he can totally reverse the effects of a stroke...totally. He said the trick was getting a stroke recognized, diagnosed, and then getting the patient medically cared for within 3 hours, which is tough.
RECOGNIZING A STROKE
Thank God for the sense to remember the "3" steps, STR . Read and Learn!
Sometimes symptoms of a stroke are difficult to identify. Unfortunately, the lack of awareness spells disaster. The stroke victim may suffer severe brain damage when people nearby fail to recognize the symptoms of a stroke.
Now doctors say a bystander can recognize a stroke by asking three simple questions:
* S Ask the individual to SMILE.
* T Ask the person to TALK - SPEAK A SIMPLE SENTENCE
* R Ask him or her to RAISE BOTH ARMS.
NOTE: Another 'sign' of a stroke is this: Ask the person to 'stick' out their tongue... if the tongue is 'crooked', if it goes to one side or the other that is also an indication of a stroke}
If he or she has trouble with ANY ONE of these tasks, call 9-1-1 immediately and describe the symptoms to the dispatcher.
A cardiologist says if everyone who gets this e-mail sends it to 10 people; you can bet that at least one life will be saved
It's been quite a while since I've posted anything. There has been a lot going on.
I have been doing physical therapy to try to help my brain reconnect with the leg that was affected by the stroke I had. When I started, I only scored 54 out of 100, which was surprising to me. I'm in the 60's now, and they think they can get me up into the 70's, but I will always have some disability. The leg has gotten progressively worse, something that the neurologist said is not typical, so I will be having another brain scan to rule out more strokes. It is frustrating, and the therapy is exhausting, not because it's exhaustive exercise, but because my brain has to work very hard to do things that used to come naturally. It is helping, though, as I've gone from a severe to a moderate fall risk. I've learned how adept a person can become at compensating for weaknesses, and the therapists are excellent at noticing those "hidden" things and exposing them by making my brain be forced to do things it doesn't want to do. Needless to say, it's about all I can do to work a full week and also battle through some of this rehab. I am hopeful that I'll be getting stronger as I continue to work with the therapists.
I posted this crazy shot of the Great Egret I photographed some time ago because it seemed to fit with my life right now, which is topsy turvy! I believe this is a female Great Egret because there appears to be bite wounds on the back of the bird's neck, something that I've observed with ducks during mating season. The males become quite aggressive while subduing the females. The green coloration around the eyes is seen only during mating season as well.
I hope everyone is doing well. Till next time...
Today I have taken the day off work to go to my appointment with the Neurologist at the hospital. I've only seen her once before, 4 years ago, before all my brain haemorrhage dramas in October 2012. Luckily, all turned out fine, and after 4 months off work, the hospital discharged me. There have been no such dramas since, but the headaches/migraines continue.
So yesterday I had a fairly quiet day in, and did some drawing with my Mum (using my pencils that Billy sent - thank you, Billy!) I know this drawing isn't quite right (Lina is too skinny here!), but it's the first time I attempted to draw her! Hope you like it!
Copyright © Heavenxxx89 2012 -2013 You may not, except with my express written permission, copy, reproduce, download,
distribute or exploit In any way Thank you
view my photostream here portfotolio.net/heavenxxx23
sorry 4 no comments lately I got a call last tuesday from my doctor telling me the neurologist who I had been referred to rang her and told her I needed to get to hospital as soon as possible this was because he was looking over my referral notes and see my results for my eyes from the opticans which indicated that I could have high pressure arround my brain so I literally had to drop everything ring round family ect and get to the hospital asap Thankfully my cat scan was clear but there are a few things that need to be investigated further they wanted to keep me in but I wanted to come home I had a stroke neurologist come and check me over before I left which totally freaked me out I just wanted to get the hell home been trying to get some rest this week because I know I need to rest more Im seeing the neurologist in July and hoping everything is gonna be ok thank you so very much for your kind comments and messages I really appreicate it xxx
I think once my subscription is up in July I wont be renewing Just as I was getting used to the changes flickr has changed again and dont know if it is a bug but when the page loads the photos veer of the side then my page jumps not good for someone like me who is having problems with my eyes and head I cant seem to tolerate to much of flickr at the moment and it is so slow now its becoming a chore more then anything I also feel very isolated from my contacts I miss seeing every bodies latest uploads come up on the bottom of my page and dont get me started about stats and views I will still be here until July but if flickr dont make improvements Im gonna close this account I have already Joined ipernity so Im prepared lol pop by and say hello heres the link to my page
www.ipernity.com/home/brokenangel
tree tree 06 frostbo.deviantart.com
E' TORNATA L'ORA LEGALE
Alle due di notte tra sabato 25 e domenica 26 marzo è tornata l’ora legale. L’appello dei neurologi non ammette repliche: «Basta cambi d’ora, le continue modifiche fanno male alla salute»
Un’indagine finlandese ha dimostrato che, eccetto nel primo, in tutti i giorni della settimana successiva all’entrata in vigore dell’ora legale si è notato un aumento del numero di infarti cardiaci . Lo stesso vale per la fibrillazione atriale, secondo uno studio condotto nello stato di New York: la particolarità in questo caso è che questa significatività statistica sembra più valida per le donne. Insomma,questi cambi orari non fanno bene alla salute e sarebbe venuto il momento che i governo si decida....ora legale per sempre, basta tira e molla !!!
----------------------------------------------------
DAYLIGHT SAVING TIME IS BACK
At two in the morning between Saturday 25 and Sunday 26 March, daylight saving time returned. The appeal of neurologists does not allow for replies: "No more changes now, the continuous changes are bad for your health"
A Finnish survey showed that, except for the first, an increase in the number of heart attacks was noted in the week following the entry into effect of summer time. The same goes for atrial fibrillation, according to a study conducted in the state of New York: the peculiarity in this case is that this statistical significance seems more valid for women. In short, these time changes are not good for your health and it would be time for the government to decide .... summer time forever, just push and quit !!!
CANON EOS 6D Mark II con ob. CANON EF 70-300 f./4-5,6 IS USM
News from the Far Side:
*I still can't see properly. I'll see a neurologist when I can get in. I don't have much hope that things will change. but I'm still standing. mostly.
*I had to get hearing aids, there's a loss in both ears. they should arrive next week. the cost of mine was about the same as a down payment on a million-dollar house would be. but they are pink.
*I'm listening to the wind. we are supposed to get tons of rain, but they've been telling us that for weeks. it's drizzling right now.
*I signed up for French lessons on both Babbel and Duolingo. I'm flunking. but tomorrow is another jour.
*eye cream does not erase under-eye bags. no buts about it.
*I read a lot, two or three books a week. but it's hard when I really can't see.
*my social calendar is full. with dr. appointments. but, maybe it'll get better.
we can only hope.
life in the fast lane
please view the photo in large size. I look less like a chipmunk.
loves to you all.
**There is still a war going on in Ukraine. please don't forget. do what you can to help.
and there is yet another war, in Israel and the Gaza strip. People in Gaza need help, too.
I know many of us are overburdened with trying to help....do your best.
NO MORE WARS.
NO MORE KILLING.
NO MORE SHOOTINGS.
and in the US Americans continue to kill Americans:
www.gunviolencearchive.org/reports/mass-
shooting
:
signature of Alzheimer's which has functional repercussions on brain circuitry,
news.yale.edu/2022/11/30/swelling-along-brains-axons-may-...
Stop Alzheimers Corp
stopalzheimerstest.com/index.html
«light of new knowledge and the roots of ownership»
Microbes and Alzheimer’s Disease
content.iospress.com/articles/journal-of-alzheimers-disea...
Microbial Sequence Associated with Alzheimer’s Disease
content.iospress.com/journals/journal-of-alzheimers-disea...
young and healthy old people
www.healthyageing.eu/healthy-ageing-action
Елена Палей
Population biology
Microbiome
Commensal bacteria
www.gutmicrobiotaforhealth.com/en/about-gut-microbiota-info/
Skin in the Game
www.nature.com/articles/d41586-018-07429-3
informa
ventures.informa.com.
Мироздание и вектор времени
Естественное состояние
0:40 Когда Звёзды погаснут
Инфракрасное излучение
0:59
Шахматы как модель сознательного
Sean Carroll
( From the Big Bang to the Meaning of Life )
at 19:20 the core theory on T and time at 30:00
miracles of the natural world | Louie Schwartzberg
Alzheimer’s asana:
Dunkel was fully recovered by Wednesday so we started to slowly go back to dog walks. He meets with a neurologist on Memorial Day weekend, and we sure hope to find some answers to his episodes. Thank you for all the prayers and well wishes!
Hawthorn, Victoria
Australia is about to vote.
I took a quick drive down to Hawthorn today as one of the more high profile contests is in the inner eastern Melbourne seat of Kooyong between the Federal Treasurer, Josh Frydenberg, and a strong independent candidate, Dr Monique Ryan, a paediatric neurologist.
The usual electoral contests in Australia are between the centre right Liberal and National Party Coalition (currently in government nationally) and the centre left Labor Party which has been more successful at a state/provincial level. Not any more though and the current government is under serious challenge in its generally very safe inner urban seats from high profile independents running on issues such as climate change and integrity in government.
The photo features Mr Frydenberg with his dog greeting early voters. I will be frank and say I don't support him or his party but am quite fascinated by the fact that one of our most powerful and prominent politicians cannot afford ever be too distant from his community!
We will know tomorrow night how it goes but, needless to say, it will be a highly watched result!
An update: Dr Monique Ryan will be the new Member for Kooyong after a significant swing against Josh Frydenberg. She will join a now quite expanded cross bench in the Australian House of Representatives.
Time for my half-yearly check-in with my neurologist.
Take Aim - Waiting
119 in 2019
#106 - Tools of a Trade
Thank you in advance for your views, comments, and faves. They are much appreciated!
No, this is not the hearse coming to get me, I made it, I survived my open heart surgery. Only one complication, I now see everything in orange, it is totally bizarre. I have been to 4 specialist and they cannot find the cause. Friday I go to a retina specialist, then a neurologist. I wish it were a pretty pink or blue color instead of this horrible raw sienna color
We new this day was coming and my GP and Neurologist had sown the seeds but no mater how prepared you are the word "Dementia" is a difficult one to hear. I went to my assessment at St Martins in Canterbury. All my tests results had been collected and I had my consultation with the Regional Dementia Consultant who confirmed my diagnosis with Dementia. This does mean that all the support services will now be available, time to draw a line in the sand and move forward and positively from here.
I removed a lot of plants in the last 2 years that I don't love. I don't love dianthus, but man, these POP so much. I think I've taken this exact shot every year we've lived here. lol I can't help it!
Next Sunday is the Neurologist Consult! Crossing my fingers and toes they figure out his neck issue without an MRI. Really, just hoping they figure it out.
This is the place where I stood with my grandma when we visited the city together last time. She was at the early stage of Alzheimer’s, and I took her to a neurologist, then to eat at Columbus Circle. I always find bittersweet memories to be both bitter and sweet. The right side of the heart feels empty and silent, the left side throbs with emotions. It’s like being completely alone while being surrounded by a crowd in New York City.
Copyright © Heavenxxx89 2012 You may not, except with my express written permission, copy, reproduce, download,
distribute or exploit In any way Thank you
view my photostream here portfotolio.net/heavenxxx23
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inside window Window_01_by_PandoraLore_Stock[1]
prison shackle Prison_Shackle_by_Falln_Stock[1]
bars chain_link_fence_precut_stock_by_celticstrm_stock-d4x5gvv[1]
model Alone_2_by_Shiskababe[1]
cell abandonned__hq_01_by_gd08-d4fxn0j[1]
models face photoshop brush Crack_decay_peel_brush_sampler_by_FrozenStarRo
texture shadowhousecreations.blogspot.co.uk/ one of his light leak ones
Processed in DPHDR 5 AND PHOTOSHOP CS5
Hi everyone sorry for not commenting on your pictures and just faving just had a phonecall from the gp who has been told by the neurologist that I need to get to hospital as soon as possible will catch up when I can 4/6/2013
Louise Bourgeois’ work often explores the physical, emotional and psychological aspects of pain and fear, at time represented through isolated body parts or even dismembered figures. This work takes inspiration from the research of 19th century neurologist Jean-Martin Charcot (1825-1893), who sought to understand the condition of Hysteria by documenting its symptoms, especially as experienced by female patients. The physical tension of the hysterical arch – an intense muscular contraction resulting in immobility and paralysis of the limbs – is emblematic of an equally extreme emotional experience.
Here, Bourgeois accentuates this highly vulnerable position by suspending her headless male figure from the ceiling. By representing him in a state historically associated with female emotional excess , the artist transgresses the social and sexual roles assigned to women, challenging the misconception of Hysteria as a female malady.
... and a time to every purpose
under heaven...
This a part of the hydrangea bush in my garden on the turn due to autumn. The caption is part of a folk song but also part of a Biblical Quotation (Ecclesiastes 3 vs1) and pertinent to my own life at the mo, in so much as that in a previous 365 upload I. alluded to the fact that I was going to make enquiries into taking part in a Clinical Trial to slow down progression in MS ( Multiple Sclerosis) It emerged that my Neurologist contacted me first (by phone) and offered me a place on it but when I read and digested the information pack which subsequently arrived in the post, I declined. There was no compulsion to give my reasons and therefore 'mouth zipped' on Flickr :)
Studying biology at high school in the the 1970s I became aware of the "Piltdown Man Hoax". en.wikipedia.org/wiki/Piltdown_Man
Piltdown Man was "discovered" in England by Charles Dawson in 1912, and although questions were asked over the ensuing decades, it was not until 1953 (long after Dawson's death) that it was shown to be an academic fraud. Well, perhaps "fraud" is too strong a word. Maybe it was an insiders' joke that got out of hand. One thing led to another and soon this fossilised skull appeared in the textbooks.
Needless to say, such a scientific hoax would be impossible to fabricate today. DNA testing has put a stop to that once and for all. Mind you, that's not to say some prominent theories of science today (Global Warming for instance), might not be scrutinised more closely in the future. I hope we can retain enough of our sense of skepticism (THE scientific method par excellence) to make such questions possible in the face of cancel culture.
Well let me tell you straight out. This image is a fake. It's not an "ancient alien", and although he goes by the name of "Phrenology Man", this pseudo science was itself shown to be fake by the end of the 19th century. The one thing I will say about Phrenology is that it got the "mechanics" completely wrong and the Phrenology bust model was complete fiction, but the general idea when applied to the brain (not the shape of the skull) is now regarded as likely. In other words, neurologists have shown through CT scans and the likes, that certain sections of the human brain do in fact control aspects of the mind and body.
Just a quick word on this and then I'll leave you in peace. We've all heard of the ideas about Right Brain and Left Brain. The simplistic notion that the right hemisphere controls the "feeling and creative" aspects and, the left hemisphere our "rational and linguistic" aspects. Now the major problem here is that it is far too simplistic. In fact, it is better to say that whilst certain sections of the brain do specialise in particular functions, it is the neural networks linking all these sections that do the real work of the mind.
Perhaps the preeminent expert in this field is the British psychiatrist, Professor Iain McGilchrist. In the same year that Jung's Red Book was first published, McGilchrist's masterwork appeared, "The Master and His Emissary: The Divided Brain and the Making of the Western World" (2009). Here is a brief synopsis of his work: www.youtube.com/watch?v=81Ci-9y_EYo
For a fuller discussion of the implications of his work (although there is no substitute to reading the incredible book): "Matter is a Relative Matter With Iain McGilchrist" www.youtube.com/watch?v=1kAlwrnpHIs
The brain is truly an extraordinary organ. More than that, it is the pinnacle of the creative process. The problem with Phrenology Man is that he is really a simpleton.