View allAll Photos Tagged HuntingtonsDisease
In memory of a dear friend that lost a two decade long battle with Huntington's Disease this week. You graced our lives in so many ways, peace at last.
Scientists at PNNL are developing a model of the microbial environment inside the human gut. This model is composed of three-dimensional human intestinal cells cultured with specific gut bacteria. Changes in certain bacterial populations within the gut have been attributed to colon cancer, obesity, type 2 diabetes, and neurological diseases such as Alzheimer’s and Huntington’s diseases. The three-dimensional model provides an approach to study how changes in bacteria affect gut health and overall human health. Research was funded by the U.S. Department of Health and Human Services and PNNL’s Laboratory Directed Research and Development initiative in chemical imaging.
Team Members from PNNL: Janine Hutchison, Alice Dohnalkova, Becky Hess, Helen Kreuzer and Timothy Straub.
Image was colorized by Chad Marrington.
Terms of Use: Our images are freely and publicly available for use with the credit line, "Courtesy of Pacific Northwest National Laboratory." Please use provided caption information for use in appropriate context.
It wasn't until I'd started uploading this pic that I noticed one of the Veyron door mirrors was missing. I wonder how much that costs in real life. Here we have my: Cetamine, Pregabalin, Paracetamol, Diclofenac sodium & Omeprazol.
This line up of tablets includes a wee difficult to see, C-3PO. I'll bet it knows something about the missing Veyron mirror. lol.
Not that many people will read this but here's a quick run down of the names of most of 'our' helpers and so in alphabetical order here they are: Bev (Marie Curie), (Craig, who has moved to another client), Evance, Ian, Laura, Marie, Mhairi, Michelle, Paul & Steph.
The pain is still excruciating!
As it happens, after a real good look at the Veyron door mirror, it turns out that there's no glue required.
A recent scientific breakthrough in pre implantation genetic diagnosis gives many couples new hope. Next generation sequencing is a game changer for couples who turn to IVF. This new technology sorts through genetic information and mutations, improving doctors' ability to detect abnormalities and identify embryos with the highest chances of producing a viable pregnancy.
The fertility treatment, known as mitochondrial transfer, tries to replace a faulty part of a mother‘s egg with healthy material from a donor, creating a “genetically modified child” with three biological parents. The technique has proven successful in human cells in the ivf laboratory and is awaiting recognition.It involves intervening in the fertilization process to remove faulty mitochondrial DNA, which can cause inherited conditions such as fatal heart problems, liver failure, brain disorders, blindness and muscular dystrophy.
In all IVF treatments eggs, sperm and embryo creation is very essential. Whether it is donor egg, donor sperm or infertile couples own eggs and sperm. Handling of all these requires very hygienic conditions and prescribed temperatures and sterlisation. They are to be stored in freezer. Handling of all these requires expert training and knowledge be it either embryologist or gynaecologist.
A crazy little pump that sucks the puss from the main wound and deposits it into the reservoir attached to the right.
In vitro fertilization (IVF) is the most common and most effective type of assisted reproductive technology (ART) to help infertile women become pregnant. In an IVF process, eggs are removed from the ovaries and fertilised with sperm in the laboratory. The fertilised egg (embryo) is later placed in the woman’s womb.
The blue awareness ribbon is for ALS, Free Speech, Foster Care Awareness, Colon Cancer, Child Abuse Awareness, Drunk Driving Awareness, Education, Arthritis, Crohn's Disease, Huntington's Disease and Save the Music to name a few. Let the blue awareness ribbon angel help support awareness for these causes!
QUILT Art with a HEART - Hand Embroidered Framed Quilt - 15x12 inches Support Your Cause and Raise Awareness, for each piece of art sold a donation of $5 will be submitted to your cause.
This featured block is for Colon Cancer, Arthritis, Child Abuse Prevention, Colitis, Crohn's Disease, Erb's Palsy, Huntington's Disease, Police Lost in Duty and a cause near and dear to my heart Anti Bullying and other causes that the blue ribbon represents. Displaying the ribbon is a great way to raise Awareness. This art piece measures 15" x 12" and is framed in a black solid wood frame*. The ribbon motif is a pretty hue of blues, reds, yellows, white and cream. The embroidery is all hand sewn, every stitch. These pieces of art make very special gifts, memorials, dedications, donations, tributes etc.
Diagnosed today 19th August 2015. My Prostate cancer is described as 'advanced prostate cancer', meaning (I think) that my prostate is riddled and the cancer is showing on the left hand side of my pelvis and a tiny sliver on a lymph node.
Because I have Huntington's disease, the surgeons have chosen not to operate on me.
The picture above shows roughly where my bone cancer has spread to thus far. I asked my doctor at ARI if she could send me my result pictures by e-mail: not allowed. I asked if I could take a screen capture of her computer screen: not allowed. So me and my wife have marked as well as both of us can remember what we were shown yesterday (8th March 2017) on to a 'stock' skeleton picture. It appears that the hormone therapy that I was on, failed to do its job. I now have approx. six months left. My bone cancer is in the whole left side of my pelvis, spotted through my ribs, breast bone and at the base of my neck.
Because I have the added complication of Huntington's disease it was decided that I would not be operated on. I made the decision not to have chemotherapy, but I will be getting a few blasts of radiotherapy. I declined the offer of another CT scan, because I know that time on that machine is precious and I won't live any longer by having another one. I'd rather let someone else get the use of it.
Grampa's big fat ass, getting its 11th 3-month hormone injection "Decapeptyl", from nurse Coreen at the Cults Clinic today 16th January 2018. pic. by Julie.
This stuff makes me form man boobs and a pot belly, which is fair enough.
In a cell model of Huntington’s disease, the compound NCT-504 lowers the amount of toxic protein in the cell by inhibiting the enzyme PIP4Kγ. Here, the panels show cells before (top) and after treatment (bottom) with NCT-504. The right column indicates the abundance of the toxic protein. The cells after treatment with NCT-504 show a significant decrease in toxic protein accumulation.
Credit: National Center for Advancing Translational Sciences
The blue awareness ribbon is for ALS, Free Speech, Foster Care Awareness, Colon Cancer, Child Abuse Awareness, Drunk Driving Awareness, Education, Arthritis, Crohn's Disease, Huntington's Disease and Save the Music to name a few. Let the blue awareness ribbon angel help support awareness for these causes!
A crazy little pump that sucks the puss from the main wound.
On the left of this container you can easily see the puss collecting in the reservoir. This is on a window sill in my garden room.
Back to Roxburghe for an impromptu blood transfusion.
This particular pump seemed to do nothing but 'beep'. It was extremely annoying. I quickly noticed that the time between the beep starting and someone coming to re-set the pump grew greater. I also learned that each time re-set was pressed it added time to the procedure. As usual with much of our NHS services, we appeared to be lacking hands on, nurses. Before I arrived for my transfusion, I had been given an idea of how long it would take. With my pump playing up the way it was and with time flying by, I announced to the nurses that I would be leaving the ward by such and such a time, no matter how the pump was faring. All the way through the procedure, I was jokingly being blamed for the rubbish performance of the pump. Just in case the pump was out of calibration or some such, I photographed a label on the back of it. The label turned out to be insignificant. Within 30-mins of the end of the appointment, I was given permission to reset the pump myself. Anyway, I managed to leave the ward very close to the time that had been suggested to me with pretty much all the blood inside me. Thank you very much, Roxburghe again!
I was initially in the High Dependancy Unit at ARI, then after three days I was fit enough to be taken down a level to a ward with more beds. The rooms in the lower level had individual TV's for each patient; which was nice.
Maggie's Centre, Aberdeen picture by Philip Vile. Had my first radiotherapy session at ARI today after which I was informed that there's a great chance that I will have a pathological fracture of / in my left hip. Then 'WE' went to meet the staff at Maggie's Centre within the grounds of the ARI. Very Nice.
Dopey has arrived for his spine scan at the ARI, hastily arranged by Roxburghe House. That's a real slick wheelchair you've got there Pops.
On Friday 2nd February 2018, Julie got an e-mail message about my prostate cancer story read out on The Jeremy Vine Show on Radio 2.
On Monday 12 June 2017, I was lucky enough to be whisked into Roxburghe House, Aberdeen on the advice of my GP at Cults Medical Practice. He had ran out of ideas of what to do about my immediate condition which includes losing the hearing from my right ear. Within 30-minutes of entering Roxburghe, it was determined that I would need a brain scan. Doctor Morgan and his team knew exactly what medication I needed to be put on and that was implemented straight away. I got my brain scan this afternoon (Friday) at ARI and the results were on Roxburghe House doctors desk before I had returned from ARI. Tomorrow the lovely Amanda-Jane is doing a "RACE FOR LIFE" fund raising exercise in Dundee to raise money for cancer research and I promised her I'd be there to watch her / watch her finish. Roxburghe House agreed to let me travel to Dundee on the understanding that I'm back with them on Saturday evening. Above is my current list of medication. It feels very strange having been in Roxburghe House for a few days, but I'm now back wandering about my own house again. I think posting of car pics will quickly cease. It's weird sitting at my PC typing this stuff. I still consider myself to be so lucky that I won't be getting operated on in the prostate area because of complications brought on by my Huntington's disease.
Tuesday 20th June 2017, and I have been allowed back home.
My weekly dose of drugs, used to keep me alive. The main change recently has been from Dihydrocodeine to Tramadol.
Not shown in this very fine picture are the four Dexamethazone steroids that I take each morning. They arrive separate to my weekly delivery from my chemist.
None of the above have anything to do with my Huntington's disease. There is no medication for that.
Lucky Me: Huntington's disease and Prostate cancer T4.
A well out of date article that was first printed in the Evening Express, Aberdeen on Thursday 1st May 1997.
Still worth a glance if your effected by or interested in Huntington's disease.
My very fine NHS toilet frame / elevated seat. This is to stop my hip bones being on a lower plain than my knees whilst sitting on the pot. This should slow down the parting of my left hip from my pelvis. EEK!! This device was supplied free by Bon Accord Care, Aberdeen. Also supplied free by Bon Accord Care were: a device that helps me to put on my socks. a grabber device to help me pick up things, two 4" thick foam cushions for propping up my sofa base cushions and a table on casters to go with my NHS bed. Lewis & Kyle have christened this device; Grampa's poo chair.
ARI today (26th April 2018) to see what work was entailed with Friday 13th operation. There was approx. four x-rays taken today. I was allowed a screen capture of one of them. The vertical rod goes all the way down to my left knee, where it's secured by two screws. I have to return in eight weeks time for more checks. Happy days.
Met up with friends from photography class for a sunrise at St. Petersburrg Pier. It was quite a busy morning as they were holding a 5K walk-a-thon to help raise awareness and funds for research of Huntington's Disease. This young girl made crafts, necklaces and magnets and was donating all of her proceeds to the Huntington Disease Foundation. I loved how excited she was everytime she made a sale. Everyone was very proud of her for putting her talents towards the cause.
I had this 11.25 mg of Decapeptyl injected into my right arse cheek this morning 25th September 2015. I get another one every three months for the rest of my life.
I am now on Tramadol in place of Dihydrocodeine as of yesterday. Last night I slept most of the way through with no pain from my pesky left hip / leg combo.
My latest bedtime ration: 2 x Paracetamol, 1 x Diclofenac sodium, 2 x Senna, 2 x Docusate sodium, 1 x Tramadol, 1 x Zopiclone, 1 x MST Continis, 1 x Sevredol & half a Lorazepam.
Eleven and a half tablets.
The book in the background is "Minichamps A Passion for Model Cars".
I think the reason for my very clean scar at this stage is because of the suction dressing. It looks just like a joint of meat.
Another out of focus pic. of Sunday mornings ration of 10 tabs, 6 capsules and one 5 ml dose of Oramorph.
From the top: MST Continus-30, Dexamethasone, MST Continus-10, Paroxatine, Pregabalin, Paroxatine, Ducosate sodium, Paracetamol, Ducosate sodium, Paracetamol, Dexamethasone, MST Continus-30, Pregabalin, Tamsulosin, Omeprazole and MST Continus. Phew!!!
Instruction manual for Grampa's current wheelchair. My first chair was returned as it turned out to be a bit unwieldly within the house.
Also shown is Grampa's new laptop.
Got this stuff to try today, combined with my heap of other meds.
I hope it works because I went from having brilliant pain relief but very little sleep with Tramadol, to great amount of sleep and absolutely very little pain relief from Morphine in tablet form.
When I sit or lie down with Morphine, I feel little or no pain. When I stand up or walk about with Morphine the pain is excruciating!
I only visited Roxburghe House day centre to see if some of my meds could be cut down. Ended up being given more tablets and virtually no pain control.