The Rare

Started from 2009, this photography project focuses on
people who have rare diseases in china. Who are they?
How can they survive? What do they need? Most of them
struggle along on their own.

A rare disease (sometimes known as an orphan disease) has
such a low prevalence in a population. WHO define rare
disease as illness with 0.65‰-1‰rate. Accordingly, there
should be more than one and a half million in China.

This project aims to rouse people’ understanding and
attention, promote the government to solve their diffculties,
give them more dignity to live or to die.