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8th December 2016
Meeting with Dr Dainius PÅ«ras, the United Nations Human Rights special rapporteur on the #right to #health to advocate for #RareDisease patients, for more support to #research, for our international program #RAREvolution and for the #RAREvolutionPetition with Eurordis, Rare Disease International and NPSuisse. A unique and important starting point for rare diseases to be recognized as a health and research priority!
(Dr Olivier Menzel, Dr Dainius PÅ«ras. Paloma Tejada, Chiara Ciriminna and Christoph Poincillit)