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International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

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