International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

Photos by Gabee B. (bygabee.com)

Photos by Gabee B. (bygabee.com)

Photos by Gabee B. (bygabee.com)

THE RIGHT TO HEALTH: THE RARE DISEASE PERSPECTIVE

(Photos by Gabee B.; bygabee.com)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress on Research of Rare and Orphan Diseases. 7th-10th March 2018, Rizzoli Institute – Istituto di ricerca Codivilla Putti (Bologna, Italy). Pictures by Laboratorio Immagine (labimmagine.com)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)

International Congress of Research on Rare and Orphan Diseases. 8th-10th May 2019, Sheraton Centre Toronto Hotel (Toronto, Canada). Pictures by Leah Han (Rapid Photo)