Jennifer McCready Photography/Lady Luck Pin Ups
Precious Little Angel
This is baby Taylor. She is so precious. I was asked to do pictures of this beautiful litlte girl a few weeks ago.. please read the following story, written by her aunt, who loves her so much..
Taylor was born on July 25th, 2009...aside from being smaller than an average newborn there was no indication anything was wrong, she appeared to be healthy and perfect. The first few months of Taylor's life went by as normal, she continued to be smaller than average but there were no outward signs of what was to come. When Taylor was 4 months old her family began to notice that she wasn't developing normally, most noticeably that she couldn't support her head or sit up. Taylor's parents were referred to a pediatric specialist and then to the Toronto Hospital for Sick Children, where she ultimately spent 4 weeks. While in the hospital the diagnosis was determined to be Spinal Muscular Atrophy Type 1.
SMA is is a neuromuscular disease characterized by degeneration of motor neurons, resulting in progressive muscular atrophy (wasting away) and weakness. There are different types of the disease, Type 1 is the most severe, it presents in infancy and often leads to death before the age of one. Not many people have heard of SMA, but it is one of the leading cause of infant mortality in North America and affects 1 in 6,000 to 1 in 10,000 children born every year. One in 40 people are carriers of the disease (they don't have the symptoms, but could pass the disease to their children).
Research for SMA has made progress but is underfunded. Scientists believe finding a cure/treatment for SMA through gene therapy could could also work treating other diseases like Parkinson's disease, Alzheimer's disease, cystic fibrosis, multiple sclerosis and cancer.
A cure or treatment will not come in time for Taylor...her time with her family will be short, but full of love and they will continue to cherish every minute they have with her. She has changed the life of everyone who has met her.
You can make a donation to the Canadian chapter of the Cure SMA organization here: www.curesma.ca/makeapledge.shtml
Precious Little Angel
This is baby Taylor. She is so precious. I was asked to do pictures of this beautiful litlte girl a few weeks ago.. please read the following story, written by her aunt, who loves her so much..
Taylor was born on July 25th, 2009...aside from being smaller than an average newborn there was no indication anything was wrong, she appeared to be healthy and perfect. The first few months of Taylor's life went by as normal, she continued to be smaller than average but there were no outward signs of what was to come. When Taylor was 4 months old her family began to notice that she wasn't developing normally, most noticeably that she couldn't support her head or sit up. Taylor's parents were referred to a pediatric specialist and then to the Toronto Hospital for Sick Children, where she ultimately spent 4 weeks. While in the hospital the diagnosis was determined to be Spinal Muscular Atrophy Type 1.
SMA is is a neuromuscular disease characterized by degeneration of motor neurons, resulting in progressive muscular atrophy (wasting away) and weakness. There are different types of the disease, Type 1 is the most severe, it presents in infancy and often leads to death before the age of one. Not many people have heard of SMA, but it is one of the leading cause of infant mortality in North America and affects 1 in 6,000 to 1 in 10,000 children born every year. One in 40 people are carriers of the disease (they don't have the symptoms, but could pass the disease to their children).
Research for SMA has made progress but is underfunded. Scientists believe finding a cure/treatment for SMA through gene therapy could could also work treating other diseases like Parkinson's disease, Alzheimer's disease, cystic fibrosis, multiple sclerosis and cancer.
A cure or treatment will not come in time for Taylor...her time with her family will be short, but full of love and they will continue to cherish every minute they have with her. She has changed the life of everyone who has met her.
You can make a donation to the Canadian chapter of the Cure SMA organization here: www.curesma.ca/makeapledge.shtml