9K a Month
So, a bit of prep was needed before my HSCT. I need a washout of my system of all DMDs (disease modifying drugs) 3 months prior.
I did a bit of more research.
The DMD I was taking, Gilenya by Novartis, came out in 2010 at $4000/month. It’s now $9000/month. You might qualify for a discount because having a debilitating, life long disease that has no cure is not enough. Price setting for drugs is a black hole. The biomedical engineer I spoke to said it takes about $.05 - $1 per pill to make Gilenya.
The average worker at Novartis makes $50k/yr.
Doctors there make about $250/yr.
The CEO, last year, made $11,437,500. That’s before perks.
And I was expected to make a decision on what drug to take within a couple of days based on the pamphlets I was given. Yet, my 8 months of research into HSCT was scoffed at.
What pissed me off the most was that I was not given a choice of this treatment. Even though it’s been around for 50 years and everything that was given to me was FDA approved. I suspect that since HSCT can’t be owned by a single big pharma company it was not FDA approved. Aka: no single owner to make $ off of it.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.
9K a Month
So, a bit of prep was needed before my HSCT. I need a washout of my system of all DMDs (disease modifying drugs) 3 months prior.
I did a bit of more research.
The DMD I was taking, Gilenya by Novartis, came out in 2010 at $4000/month. It’s now $9000/month. You might qualify for a discount because having a debilitating, life long disease that has no cure is not enough. Price setting for drugs is a black hole. The biomedical engineer I spoke to said it takes about $.05 - $1 per pill to make Gilenya.
The average worker at Novartis makes $50k/yr.
Doctors there make about $250/yr.
The CEO, last year, made $11,437,500. That’s before perks.
And I was expected to make a decision on what drug to take within a couple of days based on the pamphlets I was given. Yet, my 8 months of research into HSCT was scoffed at.
What pissed me off the most was that I was not given a choice of this treatment. Even though it’s been around for 50 years and everything that was given to me was FDA approved. I suspect that since HSCT can’t be owned by a single big pharma company it was not FDA approved. Aka: no single owner to make $ off of it.
Copyright © 2020 Vic Bonilla All Rights Reserved.
Do not reproduce this image without expressed permission from the photographer.