*****
What I write may appear self-indulgent and it is true that journaling our family accomplishments is a little cathartic. I do, however, share our story primarily to create awareness. Through that awareness, I hope in some small way to play a part in the enhancement, acceptance and understanding of those health conditions which so often attract prejudice and ridicule. Not just the prejudice against the individual who suffers from Epilepsy, Autism, Hydrocephalus, paralysis, and many other conditions, but also the people who care for them.
This community of people have so much to offer to society if only society would take a moment to listen and understand and not turn their back and walk away. In the modern world materialistic wealth and a limit on time outweighs emotional wealth and compassion. Eyes glued to mobile devices prevent a person from seeing a person in distress and keep walking on by, oblivious to that need. My words, I hope, will go some way to encouraging thought and maybe even a desire to see those struggles we walk past.
Our son is struggling. Multiple and complex mix of conditions that are not easily supported. It takes time. It means an absence from interacting with a life we once had until he is calm. I know many who will read this will understand us and already support us so much. To those of you who do understand, I need you to know that we are eternally grateful for your support and your encouragement, your friendship and even your love. Others may visit and pass by without such understanding. I have no complaints about that, I have no right to. Maybe a moment to read about our journey and to understand why we do not consistently engage with the world may be rewarding in some way.
Our son has been prescribed additional medication for his epilepsy. The reaction has not been good. The daily seizures he was having, continue. These are now accompanied by additional traits. Over the past few weeks, we have been giving him this additional medication, his mind, his memory, his awareness, and even his beautiful character has been affected, and not in a good way. So many people will pass by either in total ignorance of him even being there, struggling, or pass by with some derogatory comment or complaint. We steel ourselves against such behaviour. We can take it even though we should not have to. But we protect our son with a passion. That protection means greater isolation, not inclusion …
*****
What I write may appear self-indulgent and it is true that journaling our family accomplishments is a little cathartic. I do, however, share our story primarily to create awareness. Through that awareness, I hope in some small way to play a part in the enhancement, acceptance and understanding of those health conditions which so often attract prejudice and ridicule. Not just the prejudice against the individual who suffers from Epilepsy, Autism, Hydrocephalus, paralysis, and many other conditions, but also the people who care for them.
This community of people have so much to offer to society if only society would take a moment to listen and understand and not turn their back and walk away. In the modern world materialistic wealth and a limit on time outweighs emotional wealth and compassion. Eyes glued to mobile devices prevent a person from seeing a person in distress and keep walking on by, oblivious to that need. My words, I hope, will go some way to encouraging thought and maybe even a desire to see those struggles we walk past.
Our son is struggling. Multiple and complex mix of conditions that are not easily supported. It takes time. It means an absence from interacting with a life we once had until he is calm. I know many who will read this will understand us and already support us so much. To those of you who do understand, I need you to know that we are eternally grateful for your support and your encouragement, your friendship and even your love. Others may visit and pass by without such understanding. I have no complaints about that, I have no right to. Maybe a moment to read about our journey and to understand why we do not consistently engage with the world may be rewarding in some way.
Our son has been prescribed additional medication for his epilepsy. The reaction has not been good. The daily seizures he was having, continue. These are now accompanied by additional traits. Over the past few weeks, we have been giving him this additional medication, his mind, his memory, his awareness, and even his beautiful character has been affected, and not in a good way. So many people will pass by either in total ignorance of him even being there, struggling, or pass by with some derogatory comment or complaint. We steel ourselves against such behaviour. We can take it even though we should not have to. But we protect our son with a passion. That protection means greater isolation, not inclusion …