Raindrops ...
The rains continue to fall. It rained on St Swithin's Day and so we expect another 40 days of it. As each drop of rain falls, I feel my fear and worries rise. I am once again picking our son up from the floor following a seizure induced fall. His new specialist epilepsy neurologist is seeing us soon and I am documenting his current condition in his ‘seizure diary’. It does not make good reading.
I fear how I will convey this crucial information. I can talk about epilepsy and autism as well as his other conditions fluently and with confidence. But this meeting will be about our son. When I talk about the pain and torment our son lives through each day, I am always overcome with emotion.
The diary will help, and it will contain thoughts and questions that I will refer to if I need prompts. I am not expecting anything in particular, we have been trying different things over many years now. But his condition is getting worse. In front of our very eyes, we see the changes.
My fears are as plentiful as the endless raindrops falling outside. I just hope this new neurologist listens to my story and commits to continuing to support us through whatever the future holds …
Raindrops ...
The rains continue to fall. It rained on St Swithin's Day and so we expect another 40 days of it. As each drop of rain falls, I feel my fear and worries rise. I am once again picking our son up from the floor following a seizure induced fall. His new specialist epilepsy neurologist is seeing us soon and I am documenting his current condition in his ‘seizure diary’. It does not make good reading.
I fear how I will convey this crucial information. I can talk about epilepsy and autism as well as his other conditions fluently and with confidence. But this meeting will be about our son. When I talk about the pain and torment our son lives through each day, I am always overcome with emotion.
The diary will help, and it will contain thoughts and questions that I will refer to if I need prompts. I am not expecting anything in particular, we have been trying different things over many years now. But his condition is getting worse. In front of our very eyes, we see the changes.
My fears are as plentiful as the endless raindrops falling outside. I just hope this new neurologist listens to my story and commits to continuing to support us through whatever the future holds …