"Yeah, but you do it so well" ...
I'm sure many of us have asked, "Is it ok, not to be ok?" ... Some days are like that and the frustration and anger at seeing the suffering he goes through becomes so intense.
A film, 'The Mummy Returns' sees the father, Rick O'Connell played by Brendan Fraser, rescuing his son, Alex, played by, Freddie Boath, at a tense time in the film and exclaims "sometimes it's hard being a dad!" "Yeah, but you do it so well" replies the young Alex.
Already today, Marc has been through a number of major unpleasant seizures, following a very disturbed night. He has needed comforting, cleaning up, treating with medication, just holding and knowing I am there.
Throughout it all, my own silent grief and frustration is rattling around my mind. Unspoken, but questioning why? Why could any divine being, our God, allow such torment to such a helpless and kind hearted soul as our son.
Will he never get to experience the peace and happiness that we all look to experience? Will he never step away from this torment and pain? He knows not how to pray, I do that for him. Ever since he was first born and fought for life in those early hours, I have prayed for him. I do not seem to make a difference, no matter how much I pray for his health, his happiness, his very life.
It is a hard time once again and forgive my writing down my thoughts ....
"Yeah, but you do it so well" ...
I'm sure many of us have asked, "Is it ok, not to be ok?" ... Some days are like that and the frustration and anger at seeing the suffering he goes through becomes so intense.
A film, 'The Mummy Returns' sees the father, Rick O'Connell played by Brendan Fraser, rescuing his son, Alex, played by, Freddie Boath, at a tense time in the film and exclaims "sometimes it's hard being a dad!" "Yeah, but you do it so well" replies the young Alex.
Already today, Marc has been through a number of major unpleasant seizures, following a very disturbed night. He has needed comforting, cleaning up, treating with medication, just holding and knowing I am there.
Throughout it all, my own silent grief and frustration is rattling around my mind. Unspoken, but questioning why? Why could any divine being, our God, allow such torment to such a helpless and kind hearted soul as our son.
Will he never get to experience the peace and happiness that we all look to experience? Will he never step away from this torment and pain? He knows not how to pray, I do that for him. Ever since he was first born and fought for life in those early hours, I have prayed for him. I do not seem to make a difference, no matter how much I pray for his health, his happiness, his very life.
It is a hard time once again and forgive my writing down my thoughts ....