INFLAMMATION OF THE BRAIN.........

Today is World Encephalitis Day

That's what Encephalitis is, for those who don't already know.

 

Long before as much information was known on this condition, we as parents experienced it first hand, when our eldest became ill

Unbeknown to us the night before becoming unwell she had experienced uncontrollable shaking, which we now know was rigors. It happens when you have a steep rise in your temperature.

At the time she thought it was just her cold, as she had a sore throat too

The events that followed were an utter parents nightmare.

We saw five doctors before she finally got diagnosed, by which time nothing could be done and we were told it was just a waiting game, to see if she recovered

Months and months went by, most days she slept 24/7

Then after about six months, we saw signs of improvement

The neurologist informed us that something as simple as paracetamol would have helped with the temperature, had we known

We got her back thank god but it robbed her of many of the goals she wanted to achieve

Today she still suffers with extreme tiredness and very similar symptoms to long covid

I've written this, to make others aware, as prior to this happening, I had never heard of Encephalitis. A lot more is known now

I remember the first doctor we spoke to telling us, he was out of his depth knowing what was wrong

 

With love to my beautiful daughter, we're glad we got you back XX

Done