Rare Disease Portrait Unveiling
Beyond the Diagnosis CEO and Founder Patricia Weltin (left) presents the newest painting to the collection of art featuring rare disease patients. The painting by artist Jota Leal features 9-year-old Amber (right), who is part of a gene therapy trial at the NIH Clinical Center and a resident of The Children’s Inn at NIH. The portrait was unveiled at Rare Disease Day at NIH on Feb. 28, 2019. Amber’s parents, Miguel and Leticia, stand on either side of the portrait with Stephanie Feinberg of The Children’s Inn at NIH.
Credit: Daniel Soñé Photography
Rare Disease Portrait Unveiling
Beyond the Diagnosis CEO and Founder Patricia Weltin (left) presents the newest painting to the collection of art featuring rare disease patients. The painting by artist Jota Leal features 9-year-old Amber (right), who is part of a gene therapy trial at the NIH Clinical Center and a resident of The Children’s Inn at NIH. The portrait was unveiled at Rare Disease Day at NIH on Feb. 28, 2019. Amber’s parents, Miguel and Leticia, stand on either side of the portrait with Stephanie Feinberg of The Children’s Inn at NIH.
Credit: Daniel Soñé Photography