Our community is planning a fundraiser to raise money for our dear friends' baby daughter, Isabel, who was diagnosed with Spinal Muscular Atrophy (SMA) type I last fall. SMA is an autosomal recessive genetic disease. It is an incurable genetic and degenerative muscular disorder, and Type I is the most severe form, with children in this category typically having a prognosis of 2 years to live. Isabel has rapidly lost the ability to swallow, move her limbs, and breathe without assistance. She lives with a permanent feeding tube and requires respiratory airway clearance multiple times a day to ensure she is comfortable and breathing well since she is too frail to do this herself.

 

After spending as much as 6 weeks at a time in the hospital, time away from work is making it difficult for this modest family to make ends meet and cover the exorbitant medical expenses. Anne, a restaurant server, is now limited to working very few hours in order to care for her daughter, and Andrei works overtime to try to help compensate, taking extremely precious time away from his daughter. Together we hope to make it easier for Anne and Andrei to focus on savoring every day together and help alleviate the worries of cost for medical treatment and living expenses.

 

Please join us on Sunday August 19th from 5pm-8pm for a cocktail reception, silent auction, blind wine sale, and 50/50 cash raffle including bonus prizes.

 

$50 tickets include 3-hour open bar of Belgian and American craft beer and wine complemented w/ hors d'oeuvres. Tickets can be purchased in advance at: www.eventbrite.com/event/3755902004/

 

If you do not wish to purchase a ticket for the bar/food package but would like to attend the event, a cash bar is available for guests. A $10 donation at the door (per attendee) is suggested.

 

Net proceeds from the event tickets and activities will be going to the Poluchowicz family.

 

We encourage everyone to participate in the silent auction, blind wine sale, and 50/50 cash raffle (with bonus prizes).

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